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50 Side Effects posted for Toprol-XL

April 21th
2009
12:30 PM

I am a 56 year old female & have been on toprol for 7 or 8 years. I was a small business owner & under a lot of stress. I had couple of times where my heart would race & pound & I felt really strange. I went to the ER where they of course checked my blood pressure. It was a little high, but I was stressed out! After the second time this happened they put me on 50mg of toprol. I have since weaned myself down to 25 mg. I think I was having a panic attack, which I had never had before. I regret the day I ever started taking this poison. I have had such shortness of breath that I can hardly walk to my mailbox & back. I feel like I can never get enough air in my lungs. I feel a tightness in my chest all the time, sometimes my heart feels like it is beating abnormally. I am always aware of my heart beat which I never was before this med. I have gained about 20 to 30 lbs, which is very hard to lose when you feel like you are dying if you exercise. I have pain in my left shoulder, which I don't know if it is from the med or not. I do not sleep well at night & am so tired all the time it is hard to get through the day. I just overall feel like crap! It seems doctors are no help they just want to try you on other meds, I have tried that too. They are all poison I felt even worse on some of the others. I don't want to go through the rest of my life like this. Has anyone successfully gotten off this stuff? I would love to hear from you. Thanks, K. L.

-- By lipsey52 | Reply | (5) replies | Private Message me

January 14th
2009
11:14 PM

I have been taking 12.5 mg Metoprolol for my palpitation and occasional racing heart. Few days ago I got a rapid heart rate again and I increased the dose to 25 my as original prescribed. Now I have chills, cold hand and feet, insomnia, shortness of breath, chest pain, etc. I have cut back to 12.5 mg. The problem is that even with 25 mg my heart races once in a while but I can't tolerate increasing this drug. I want to wean off of it. What is the best way to stop this drug?

-- By adpcdp1 | Reply | (8) replies | Private Message me

December 4th
2008
7:13 PM

I have been on Toprol XL 25 mg for a few years, then 50 mg for 2 years. The last two have been spent on 40 mg Benicar and 25 mg of Toprol XL. Originally I was put on to elevated heart rate, blood pressure, and palps at 24 years of age. I blame it on anxiety, especially the white coat kind, but have since gotten seem to get that control. Not to mention I have quit smoking, both cigs and pot, and cut down on the late nights of boozing from my twenties. In any case, I am still taking the Benicar to make sure my bp stays in control, but off the Toprol completely for a week now. I can feel my heart rate is more elevated at times, but I think that is good and actually natural. My energy has increased, especially while working out, and I am thinking clear for the first time in years. Not that I was stupid, I managed to get promoted twice and an MBA during my time on Toprol, but feel much better. Will see if I have any of the side effects from that everyone describes, but my experience both on and off the drug was pretty good. I think most people on this drug already have anxiety, so learning to control that is key to living a life off the drug. Good luck to everyone, but glad to be off at least one medicine.

-- By illini07 | Reply | Private Message me

November 23th
2008
12:45 AM

My heart doctor had put me on toprol xl for my heart arrhythmia but I was also having really bad dizzy spells and feeling like I want to pass out before the toprol.I did pretty good on it for a good while.then out of no where the dizzy speels started back up and feeling like I want to pass out.Had all the other tests and nothing abnormal was found.But I'm still having the same problems.I had done an oxymeter test and found that I was only getting 79% oxygen to my brain.Then was put on an oxygen concentrator.It worked for a short time but the symptoms came back.So I called the doctor Friday to see if I could quit taking the toprol.They you can't quit cold turkey cause you could have a heart attack.That's scary..And I'm a 44 year old female.I'm not quite ready to go just yet.Especially from quitting a medicine.

-- By tara2 | Reply | (1) replies | Private Message me

November 13th
2008
2:23 PM

I have been on 50 mg. of Toprol xl for 5 years I find it so hard to breathe. Like I have to make myself breathe or I'll just stop breathing. I can't sleep because my breathing gets worse even with my head elevated. I'm getting terrific migraines, ready to tear my head off. I'm short of breath, can't hardly do anything and I feel I ran ten miles.. I have heart failure and low blood pressure. He's giving me this for now and then palpitations. I think this pill is causing all my troubles including anxiety. HELP!!

-- By luckford | Reply | (6) replies | Private Message me

November 5th
2008
12:19 PM

I am a 21 year old female. I have been on 25mg Toprol (twice a day) for over a year now. I was having intense heart palpitations from scary panic attacks... this drug basically cured my heart irregularity. When I first started taking Toprol I experienced some muscle cramps but that lasted less than a week. Overall I have NOT experienced ANY negative side effects from this drug. It is one of the best things I have ever done for myself. I was so scared before due to having at least 5 ‘episodes’ a day with my heart… now I may only have 2 – 3 per week. Such a wonderful improvement! It has really changed my life for the better.

-- By kc86 | Reply | (4) replies | Private Message me

October 30th
2008
1:49 PM

Similar problems. A-fib @ 37. Unknown etiology with no conclusive cause. Possible due to taking prescription allergy meds with sudafed for 15+ years.
Anyway, tried to go off of Toprol XL 25mg once a day several times. The first time I felt horrible, weak and lethargic, chest discomfort. Lasted for a few weeks. Went back on and in one day symptoms disappeared.
I tried this week to wean off by taking a half a pill a day. Made it one day! I was feeling great so I decided what the heck and tried. What a mistake.
I have tried several different ways of coming off (weaning) with no success.
My cardiologist would like me to try to go off... We need to come up with a better solution.

Things that I have found that "work" for me taking this drug is:
1. I take it after lunch. It is the only time of day taking it that I don't feel bad.
2. The generics made me feel bad. Tried several different manufacturers.
3. If I miss the normal time I take it as soon as possible. Usually by dinner time.

Good luck trying to come off or maintain with Toprol XL. Please post if anyone has success.

Toprol XL seems like a necessary evil at this point for me.

-- By donte | Reply | Private Message me

October 30th
2008
8:58 AM

Well.....ain't this drug wonderful!! Glad I came here first. I am currently on Diovan 80mg. basically doing very well on it, but I started to loose some hair, and do have some sinus issues, so talked w/Doctor he gave me a prescript. for Toprol XL yesterday, got it filled (my proper prescription for 3mos. supply mail in is written for the Brand Name) the prescrip. I filled yesterday locally (he gave me 2mos to fill locally before sending in my mail in prescrip.) My God! When I read the patient info, scared the living crap out of me! See if I TAKE that medication - NOT! I will stick with the devil I know, Diovan and hope that the hair loss thing will resolve itself. I suffer from anxiety, so can push my BP up at will, and it's been up since I started stressing on the hair loss - I have made up my mind to just try and chill about it, but Diovan appears to be one of the least "evil" of the BP meds I'v taken so far. Lisinopril was a nightmare, Diltiazem wasn't too bad, but thought my teeth were going to fall out! I swear, the anxiety about these meds. does nothing to help ones BP but I definitely am not taking this poison, probably would make me stress worrying, I'd give myself a stroke. I am making a copy of the patient info. and sending it to my Dr. (whom I love by the way) and ask him "what the hell were you thinking Doctor?" Good luck everyone

-- By camberwell | Reply | (1) replies | Private Message me

October 25th
2008
12:54 AM

I wrote on my side affects on sept. 7th on this site. I have been off topral xl for about 2 months, and my heart beats normal now, my legs are not swollen, no headaches, long story short, most my symptoms gone. I can think so much clearer. My blood pressure now goes from 160/90 to 117/84 which last weekend I did try Diovan hct, a new blood pressure med. and Sat. and Sun. were a nightmare. I do know how dangerous it is to have high bp. for my brother-in-law passed a year ago nov. 2nd and my aunt Bev 3 years ago. But I am happy with my decision to continue the Peptace and Celery seed extract and monitor my bp. closely. My son went to Doctor for his bp. and Doctor said that they get some kind of a kick back from meds. like topral so maybe thats why they push it along with other meds. True or not, I still can't figure out why they kept me on it when I asked them to take me off cause I felt so bad. It sure did take a toll on my whole body. Good luck to ya all and listen and feel what your body is telling you. I know whats good for one is not good for all.

-- By debbie56 | Reply | (4) replies | Private Message me

September 18th
2008
1:08 PM

I've been taking 25mg toprol-xl since December 07, Went to Dr one day for something not heart related and he told me I have a heart murmur, after several test I found out my tricuspid valve was regurgitating. My BP has been a little high but nothing out of control. I have gained over 20lbs since Dec, I ve been extremely tired, swelling in hands and feet. Aches and pains in joints and muscles. I just recently stopped taking zocor thinking that was the culprit and probably was, but now I think it could be the combination of the two. I am going to take myself off of the toprol (monitoring my BP of course) and was wondering how. Any suggestions would be appreciated.

-- By littletexan61 | Reply | (4) replies | Private Message me

August 22th
2008
10:48 PM

I suddenly had high blood pressure. I was put on a heart monitor for 21 days because I was experiencing frequent palpitations. I was given 25 mg Metoprolol ER the genic for Toprol XL on June 6, 2008. I had the usual symptoms extreme fatigue, headache, constipation,swelling, weight gain for the first month. I am 59 yrs. old.
The second month I started to have horrible nightmares, and headaches that would not go away. On Aug.12 while driving home I started to hear voices, had blurred vision and hallucinations. I was driving fast and screaming to make the voices stop.. I ended up in a parking lot. I was crying and for a minute I had a bit of reality. I called the cardiologist office and told the nurse what was going on. She said to immediately stop the meds because I was having a rare serious side effect. I sat crying for awhile and was able to call a friend to pick me up. I stayed at home for 4 days. The entire time my hands shook and my headache was horrible. It was one week before I was able to function properly.
I called my pharmacist and she told me that this drug affects the central nervous system. 2 % of 100,000 people have this side effect. I told her that it was not written on my paper with the prescription. She said that because it is so rare they do not have put it on. She printed out the side effects for me from her web site. A site that is only accessible to pharmacists or Dr.'s. My Dr. wants me to try Cardizeim now and I do not want to because I am afraid. I told him that the BP was down to normal but he still wanted to because of the palpitations. I was given the option of the Cardiziem or seeing and Electrical Man at the Cardiology office. As of yet I have not taken the Cardiziem. This is the first time I have read this web site and I hope that this information may help someone. I finally feel good again except for the rapid heart beat and glad to be alive.

-- By fezz133 | Reply | (3) replies | Private Message me

August 1th
2008
9:32 AM

I am a 37 year old female that went to the ER 3 days ago for chest tightness & extremely high blood sugar. I have had high blood pressure in the past years but as of a year ago when I was diagnosed as being diabetic my blood pressure has been normal about 117/75 so I go to the ER and they give me 2 EKG's and a heart monitor for 24hrs and put me through a stress test,they also give me this little pill and say it will help me, well not feeling well and wanting to feel good again I take the pill no questions asked. I have never felt so tired in my life. I thought well chest pains will do that to you so I dismissed it. I know they were making sure I do not have a heart attack but, my blood pressure seems to be going lower and lower and I am more tired by the minute, they released me from the hospital and gave me a million RX's including toprol and lisinopril both of whch lower blod pressure ??? do they want me to pass out? so yesterday I took the toprol only and felt like I was sinking , my thinking seemed foggy and my legs felt rubbery. I am sooooo glad I found this site because I will not take this drug ever again I already suffer weight issues being diabetic I don't need anything else. I would prefer to be interested in sex and be able too function this drug seems like it is more negative than it is worth. I think I will stick with the lisinopril, and why would they give me two blood pressure meds when my blood pressure is already normal??? If anyone has a comment please let me know I am very scared about this whole thing

-- By kahmere6 | Reply | (3) replies | Private Message me

July 26th
2008
11:19 AM

I am a 36 year old African American Female. I have been on Toprol for 4 years. I take 25mg a day. At one point a dr. recommended I take 50mg a day. That was horrible. All of my side effects were worse. I decided to break the pills and stay at 25mg. The lower dosage is better. At 36, I look like I am in my early 20's! Most people guess my age at about 24. I don't feel like it at all. I am always tired, I don't have orgasms ( which is bad when you have boyfriends in their early 20's all the time) and I have anxiety and depression. I love to have fun but toprol keeps me depressed, uninterested and I cry for no reason at all. I just feel severely sad for no reason at all and cry. It is horrible. I was prescribed toprol for rapid heartbeat and mildly high bp. That it works for, but the side effects are gruesome! I tried another med for a month and I thought my heart was gonna jump out of my chest. I have 2 sons: 10 and 16, I can't be depressed and crazy all the time. I am very attractive and I want to enjoy life now that my kids are older. I'm getting off toprol!

-- By sexyc | Reply | (3) replies | Private Message me

July 26th
2008
9:50 AM

I am a 39 year old white male that had aortic valve replacement surgery five years ago. About three months after the surgery (which went off without a hitch) I had a tremendous spike in my BP that went on for a few days (200/100 - enough so I could see my heartbeat in my eyes!). My Dr started me on Toprol XL 75 and while it brought my BP down some, it didn't bring it down a lot. He moved me to 200 mg a day and now my BP is around 105/55 with a resting pulse around 50.

While I experienced many of the side effects listed here (feeling groggy, confused, etc) they only lasted a few months. I must admit that I did pack on about 20 lbs over six months. However, unlike so many who choose to blame drugs (or lack thereof) for their problems, I took it upon myself to start exercising and guess what?!? The weight comes off! I now weigh less than when I graduated high school, I am in better shape than any time in my life and I believe that exercise helps me sleep better at night. All of this even though I still take 200mg a day. Given that some of you say that you're practically dead at taking 25, I should be 6 feet under or weigh 400 lbs.

I guess what I want to say is that perhaps instead of jumping on the bandwagon here that Toprol causes all of your problems, perhaps you want to take your own health into your hands and begin to eat a little better and exercise (and don't give me "but my ankles are swollen!" excuse - there is something called water aerobics). I don't deny that it can cause some side effects, but it can work wonders with your BP. You just have to DO SOMETHING to help keep the weight off (which then help with the sleep problems, mental clarity, etc).

-- By thom228 | Reply | (4) replies | Private Message me

July 20th
2008
4:49 PM

I am a 45 year old black female. After the death of my father, I started experiencing blood pressure problems and headaches. I was diagnosed with obstructive sleep apnea 2 years ago. Not having bought a CPAP yet has contributed to a lot of the blood pressure and headache problems. But, my GP put me on Toprol in June '08. I am having difficulty sleeping.Every time I eat, I have severe gas and my chest is hurting off and on. There has got to be a better solution. I started exercising and using Isagenix (******). It is simply wonderful - I have lost weight and toxins. When I go to my doctor on tomorrow, I am going to ask him if I can get off of Toprol. I do not like the way this medication makes me feel.

-- By lejoyce80 | Reply | (2) replies | Private Message me

July 18th
2008
12:25 PM

I am a woman in her early 60's. I have slightly elevated BP abd it does tend to spike first thing in the morning, after waking and is much lower (normal) at night. I have tried several different BP meds and had side effects of all of them. The Doctor recently put me on Toprol XL 25mg. After about three weeks, I really did not feel well - extreme fatigue, severe leg and joint pain, depression. I just could not function. I know I am extremely sensitive to medication. I decided to come off the Toprol, after only three weeks and go back to Lisinopril 2.5MG. Now, after only two days of not taking Toprol, I truly feel very weird. Far less tired, but extreme dizziness and a kind of spaced out feeling. Is this just the withdrawal from Toprol...and after only three weeks of taking it? Plus, my BP seems to be very low - the lowest I have ever recorded it. 112/55 last night. Does coming off Toprol actually have a reverse effect and plummit your BP until it is out of your system. If so, why has my doctor told me to triple upon the Lisinopril now I am back on that. Dealing with even slightly elevated BP has become such a major issue for me.

-- By joans0123 | Reply | (2) replies | Private Message me

July 3th
2008
4:18 AM

OK FOLKS -HERE'S A GOOD ONE FOR YA- Just over a year ago I was on a heart transplant list. Today my heart function is normal and I am off ALL HEART MEDS. Even after finding out my heart function level was normal I was still living a nightmare for some unexplained reason. After MONTHS of tests and everyone telling me I was nuts a neurologist finally found out I was having seizure activity. Funny how my "seizure activity" feels EXACTLY how I felt when they increased my beta blocker dosage. I'm telling all of you.. This beta blocker helps some but they are burying their mistakes. I now know all of my ER trips, only to have them laugh and have them send me back home, were do to seizures caused by beta blockers while I had heart failure. I'm lucky to be alive.... and now that my heart function is good I have to fight this seizure BS. *REMEMBER THIS - Only YOU know what your body is telling you.. LISTEN TO IT! But do be careful.. You can't just stop taking a beta blocker.. Good luck all cuz we sure need it!

-- By deucey22 | Reply | (3) replies | Private Message me

June 24th
2008
2:21 PM

I'm a 30 yr old healthy male. I went to the ER, and then the Dr., about 4 weeks ago after waking up with intense pain in the veins of my right arm and having pounding palps. I had just been told some extremely stressful news the night before, so I was pretty sure this was blood pressure & stress related. ... EKG showed Wolf-Parkinson-White syndrome, so that's what the Dr's assumed was the problem. I never knew what it was called, but I've had my heart race due to WPW many times since I was a young child .. this did not seem to be related. This was just pounding.

The cardiologist put me on 50mg of Toprol XL daily to control the WPW - even though that wasn't acting up. I left confused. Pharmacy issued generic Metoprolol Succinate mfg. by Sandoz.

I didn't want to be on meds, so I didn't take it for the first few days, hoping that I would return to normal. After all, I just woke up with this all of the sudden.. I had been fine the day before. Palps continued, though, so eventually I relented and started taking the meds.

The first two or three weeks were filled with ups and downs. Exhaustion, palpitations and anxiety would come and go.

This past weekend things got really bad. I began having anxiety attacks -- I think that's what it was, I'd never had one before -- and my vision was totally screwed up. I couldn't focus on anything and was sensitive to some lighting. Black text on a bright white screen (lcd monitor) was especially hard to read. I was completely in a dazed & confused state. Loud noises and crowds were bothering me... which was awful, considering it was my best friend's wedding. Also had headaches, lightheadedness & loss of appetite. These side effects came and went on Friday & Saturday and were pretty constant on Sunday & Monday.

I decided to quit Toprol cold-turkey on Sunday. I have been 2 days without. I have used L-Theamine to reduce stress and keep my blood pressure steady. It seems to be working. I also began taking CoQ10 today after reading some good things about it here.

My vision & mental focus is beginning to improve after 3 days of disabilitating problems. Anxiety has also improved. I even attempted to "get back to normal" at work today, but had to leave after only an hour of strenuous exercise in the heat. Vision problems returned, anxiety set in. It's like riding a really freaking scary roller coaster, except with a legitimate fear that this thing might kill you.

I will update this as time goes by, to let you all know how things worked out for me. I'm really hoping to be mostly back to normal in another day or two, since I haven't been on for very long. Hopefully this will be of help to someone in the future. Damn, I Wish I had never gotten on this stuff.

-- By bnm | Reply | (4) replies | Private Message me

June 19th
2008
10:27 PM

I decided a long time ago, Doctor's are not the best listeners!! I am a nurse, I know!! Read my post today June 18th. I have been praying for an answer to all my symptoms, especially the profuse sweating I have been having for the past year!!! I believe I have found my answer at this site. Thank God I found it. All because I was looking up info about Toprol because after the doctor increased my dosage yesterday , today my ankles and feet swelled up like balloons!!!!! Now I have pitting edema!!!
I have gone to a # of doctor's in the past year and a half and I think they believe it is all " in my head"!!! I have been so depressed. My husband has even threatened to leave me. NO interest in much of anything. I don't know what it is like to sleep anymore :-( My husband says " just close your eyes and sleep like a normal person". Maybe after he reads the posts at this site he will begin to understand that everything I have been going through is "REAL". I am calling my Dr. in the morning and she will WEAN me off this awful drug!!! My BP has been going up since I have been on Toprol instead of going down. I have wondered why the Dr. didn't just change the med. It really makes one wonder. DO the Dr's ever hear what we are saying???? I would be happy to share stories with anyone on this site. How many of you have experienced profuse sweating???? The doctor will WEAN me off this drug!!! :-)
God bless everyone!! I pray you all get off this drug!! It needs to be pulled by the FDA!!!
Joyce47oh ;-)

-- By joyce47oh | Reply | (4) replies | Private Message me

June 15th
2008
7:21 PM

I was on it for 6 months and the Dr. decided to change my medications. Toprol wasn't keeping my blood pressure down. I had bad chest pains and severe sweating so after 2 weeks he put me back on the Toprol. Bad mistake every time I took the Toprol My heart felt like it was skipping a beat and I would black out. Now I can't take it either. I'm on lisinopril now. Which is fine, it's keeping my blood pressure down. But still felt like my heart is skipping beats, ended up in the E.R.
they did pick up the skipped beats on an ecg and decided it was prob because the toprol is still in my system. My heart feels like it is racing all the time, and I'm having anxiety and shaking. I wish this stuff would get out of my system. good luck to everyone.
sabrina

-- By sabrina28939 | Reply | Private Message me

June 13th
2008
9:49 PM

My mother is on Toprol-XL, and she has complained of being so fatigued, she sleeps so much, and this is someone who has always had a tremendous amount of energy. The other thing, and I would love a reply to this - she said she's experienced something at night while sleeping that feels like a seizure. She describes this as follows, "like my brain is shaking or trembling inside my head and my hands are trembling too." Has anyone else experienced this? Please let me know.

-- By jpricesmith | Reply | (2) replies | Private Message me

May 29th
2008
3:00 AM

I started Metoprolol 6 months ago while in the ER. I was weak with a virus and every time I got up and did anything, my heart would race and would feel weaker. I have white coat syndrome so while I was in the ER my BP went up to 227/110. They gave me 25 mg of Toprol and a prescription for 12.5 mg a day. I have gained 17 lbs in 6 months, have zero energy, tired all the time, insomnia, and am depressed for the first time in my life,ad I know it has to be from the Metoprolol. I tried to quit it and 3 days later my heart was racing so bad and my blood pressure was real high. I want to try to quit it but am afraid to. Any suggestions on how to quit it?

-- By conniegragan | Reply | (1) replies | Private Message me

May 5th
2008
2:03 PM

Hi my history started from last couple months when I realize my bp went up very high(160/100) so I started metoprolol succinate 25mg,for couple days i felt fine and my bp went down but I noticed some pain in my right side so i thought maybe is the liver problem and i started to get off.After a week i was suffered from withdrawal(first week i decreased dose to 12,5mg)then my bp was very high so i called doctor and he prescribed metoprolol 100 mg and lisinopril 25(i never used this one)and hydloxiazyde 12,5 and i felt better for couple weeks then I started to get heart palpitation and very low bp so I quit hydroxiazyde and now I'm on toprol xl (oryginal brand) and still have chest tightness (i switch metoprolol to toprol one day ago)and how you guys divide the tablets to get exact amount its hard

-- By marszalek | Reply | (3) replies | Private Message me

April 17th
2008
3:03 PM

50 yr old female ( gasps @ 5-0 still)

I've been on ToprolXL for some time now. I started with Tenormin and felt FINE! The doctor then decided it was not the 'right medicine' for me and changed me to a 'new and better medication' names TOPROL XL, He started me on 50mg a day. I had experienced rapid heart beat of at least 150 bpm up to 200! My heart had to be stopped in the ER to get it back to being a normal rhythm. At the time I was 39 yrs old :( SCARY! I had every test imagined. Heart tests, lung and leg scans. You name it, I had it done to me ( thankfully, to make sure it was nothing serious). Although I do consider a heart beating that high to be serious! I already have a anxiety disorder, I noticed that my panic attacks are worse now more than ever! I am very very lethargic. Just thinking about doing ANYTHING makes me tired. I even getting tired when I talk too much! My mouth is always excessively dry. I put on weight and even paid for a diet that consisted of 2 'shakes' and one meal per day. Followed it to the "T"! and nothing ?! I've recently read that ToprolXL can lead to all kinds of diseases. One of them being Lou Gehrig's (ASL) :( I am SO very upset that medication is prescribed supposedly to make a person feel better AND I don't think I've physically felt this depleted and depressed in years! I want medical answers and I need support and words of encouragement from everyone that has been on this drug , most especially those weaned off ot it and are on a better drug. Most of the people I notice taking TOPROL XL are taking it fro HBP or symptoms other then the one's I have. I am SO confused now :(

-- By 2druggedup | Reply | (5) replies | Private Message me

April 1th
2008
11:16 PM

I am so glad that I found this site. I was put on Toprol in January and Just recentky i have panic attacks, chest tightness,tingling and numbing sensations in hands and feet, and i am deperessed. I also have some difficulty breathing. My Dr. told me that I am depressed and these side effects are from depression and not the medication so she gave me Zoloft, which I am not taking. I am not crazy i know that my symptoms are from the meds. i am going to wean myself off and pray i can be "normal" again. This is the worst time of my life and I pray that I can do this.

-- By neecy | Reply | (3) replies | Private Message me

March 24th
2008
6:09 PM

I was on toprol-xl for almost 8 years without many problems. i also take isosorbide mononitrate.A few months back I was switched to the generic version (metoprolol succinate er by sandoz) now i have many problems.First I have to say I am disabled with severe COPD. Although I do not feel depressed I have a lot of symptoms of depression. Remember I had no symptoms what so ever until switched by Walgreen's or HMO or Doctor to the generic version. Not sure what to do I have a doctor that does not truly listen,plus he did not want me on toprol xl to begin with. Even though it was good for me. Good luck people!

-- By tking1013 | Reply | (6) replies | Private Message me

March 15th
2008
2:15 AM

What started out as a simple visit to dentist became a nightmare. My BP was high l73/90...so I went to a doc to get something for the BP. I knew it had been creeping up. I should have been more vigilent and done my own research first. He prescribed l00 milligrams of the generic brand--metropolol. I questioned the dose, but he said it was safe, and I needed something to bring my blood pressure down right away.

By the third day I felt like I had a hangover when I woke up. I started feeling not quite right. Tiredness, depression, and headache. My BP got higher. On the 5th day my heart started racing, with a pulse in the l30's. I spent 6 hours in the ER. My pulse was in the 60's, but BP 210/110. They injected me with 5 mg of the stuff, and also gave me clonopine. My EKG had been normal at the doc visit. In the ER it showed abnormal with sinus tachycardia and First Degree AV nodal block. It returned to normal, and by BP dropped to 150/80 with the clonopine. My glucose was also high at 300. I could feel an immediate relief with the clonopine. Heart enzymes normal. ER doc denied that the Topol caused the racing heart. He said that's not a side effect..perhaps there was an underlying cause. He did say the episode could have been triggered by low oxygen to the heart. I think they all stick together----he's not going to say the first doc was an idiot.

They wanted to transfer me to the "big" hospital for cardiac workup. I refused, since I had an appt.with a cardiologist in a couple days, and the doc that prescribed his awful med. I didn't think my insurance company should fork out $50,000 for an adverse effect from a drug.

I had been doing heavy exercise the morning of the racing heart...it was after I sat down I noticed the increase in pulse rate. NO ONE gave me any warnings..not the doc, or the pharmacist. Both said this was a safe drug.

I cut the dosage in l/2 for two days, until I saw the cardiologist. He said ok to stay on the clonopine for now, and a diuretic. I feel much better, and BP has dropped to the l40's over 80 something...pulse near 80. I am going to do a stress test. Based on a heart scan, 3 arteries have 0 plaque, and two mild.

I read that this drug is not recommended as first choice for BP. In the UK they're weaning people off of it because it causes diabetes, and there's other better drugs out there. I did not wait to "ask my doctor" to take me off of it. I told him I am not taking it....I don't know how much longer he will be my doc. I don't think he should have started at l00 milligrams to begin with...and should have started out slowly at the least.

Caveat emptor (buyer beware) when it comes to this med...and do your homework, and don't be afraid to fire your doctor!

-- By gail123 | Reply | (1) replies | Private Message me

March 9th
2008
6:25 PM

I was given Metoprolol, a generic for Toprol-XL several months ago, for high blood pressure. It was prescribed after I was determined to be allergic to Lisinopril. ( It caused a cough that lasted 3 months; I sounded like a TB patient.) Anyway, I have been taking Effexor for years, for anxiety attacks. Now that I take Metoprolol along with the Effexor, I am so tired and drained all the time, that I am contemplating quiting work. I go to the grocery, come home and lie down. I can't seem to have energy to breath correctly. My Dr. won't believe that this has anything to do with meds. I have now developed blood and mucous in my stools, diarrhea, and very urgent BMs. This all started after taking these two meds in combination for about 4 months.

-- By taterwood1 | Reply | (4) replies | Private Message me

March 2th
2008
10:37 AM

HI, I was prescribed IC Metoprolol succ er 25 mg. same as Toprol xl. I feel tried, I am a fitness instructor and teach 13 classes a week. 8 aerobic and 5 weight training classes. I continue to gain weight. With this being a blocker, I have just come to find out this med wont let you heart rate go up when you exercise so you muscles can get oxygen and burn fat. The lack of oxygen makes you (us) more tried less motivated to workout or anything for that matter. It has effected me in this matter. I am calling my doctor to change my meds. this website was great. I new It had to be my meds, you don't workout this way and still gain weight!!!!!!!! I have always been very fit and muscular, something i took pride in. now I"m looking flabby. It"s really hard for me. Hard to motivate people when you don"t look like things I share with people all the time. hang in there the weight will come off just be consistent, when I continue to gain weight.

-- By kbugary | Reply | (4) replies | Private Message me

January 22th
2008
8:02 PM

I have been on Toprol XL for 4 years - was on 50MG - Dr. tried other meds for a while (bad side effects) - so put me back on 25MG of Toprol until we can figure out something else.

When I was off the Toprol I lost 16 pounds!!!! I have not gained any back being on a lower dosage.

I think it is causing me breathing problems and pain and cramping in my legs - any one else having this? How should you wean off?

Thanks!

-- By vanessa74 | Reply | (3) replies | Private Message me

January 12th
2008
8:27 PM

Been on Toprol XL for 4 years. I am 64 with SVT and mitral valve prolapse. I was started at 50mg daily and got relief but when breakthrough SVT started the dose went up to 50mg in the AM and 25mg in the evening. I still have breakthroughs but can wait them out. I did notice that my SVT or palpitations seemed to be triggered with an imminent BM. I have been diagnosed with fibromyalgia but coincidentally....it started with severe muscle pain when I started taking Toprol XL. I wasn't told that this could be a side effect.HMMMM When my insurance was discontinued (retirement) I started taking the generic due to cost. I haven't noticed any difference between the two. I also noticed that after a SVT episode I have a increase in urination....Toprol or SVT? I also noticed that I am very aware of an increase in a feeling doom. I have had ekgs etc and my heart is in good shape otherwise.

-- By judyas | Reply | (2) replies | Private Message me

January 10th
2008
9:43 PM

I am a 41 yo woman in good health. I started Toprol xl about 3 years ago for a heart palp that would happen maybe once a day, and occasional racing heart beat. I did great for a long time on 25mg once a day. Then about 6 months back I was switched to generic due to insurance issues - they only want to pay for generic.

It took me a while to figure out what was happening, but several problems started happening over the last few months that I am sure were from this generic drug. Suddenly I was having vivid dreams - fish swimming on the ceiling, cats with heads 5x too big! Worse yet, over about 3 months I gained 20 pounds with no difference in diet. And I was getting more and more tired. I started looking into what could be causing these crazy effects - I was only on Toprol and birth control pills.... well, it was not the birth control!

So, I decided to wean myself from the Toprol. I decided I prefer a heart palp and occasional racing heart to this!! I gave myself a couple of weeks of lesser doses, then 5 days ago I stopped it altogether. I am having some horrid "rebound" or withdrawal effects! Numb/tingling hands and feet, headache and - surprise! High blood pressure! I never, ever took this med for HBP, and I have never had HBP! I always had a nice, low blood pressure, even when 9 months pregnant! Now it's running around 135/93 - I work in a medical office, so I got one of the nurses to check it on Tuesday...she sort of freaked! She said she has seen much higher, but mine is not normal. So we have been checking daily, and it's staying up there. I am so mad to think Toprol could have damaged my body in some way so that my blood pressure may not stay messed up for life. I have read online that the rebound effects can last up to a month, even with a fairly low dose like I was taking. Does anyone know if a month is about right? If my blood pressure keeps this high, I suppose I will have to seek treatment at some point. Ugh!

On the plus side, I don't feel so tired. No vivid dreams since I stopped the Toprol, and much better sleep! I feel "clearer" mentally. I just wish the tingling hands and feet would stop - and the high blood pressure!

-- By ree | Reply | (10) replies | Private Message me

December 9th
2007
6:55 PM

Update - 7th day with zero Toprol. Feel just awful... Breathing has not improved, tight band feeling around chest keeps coming and going like before. B/P spikes, headaches, etc. The Diovan (80mg) was making me cough and making chest tightness worse - so she tried me on Dyazide - made me dizzy and sick to my stomach. This has been just one of the WORST experiences of my life. I was SURE all my problems were related to my (4) years on Toprol - but on day 7 with NO TOPROL and not feeling better I am depressed, discouraged, and just want to curl up and cry and cry and cry. I have ended up in the ER three times since the weaning began - once for breathing, once for pulse (over 215) and once for severe abdominal pain. My family thinks that I am 'mental' and that it is all in my head???? I cannot take much more of this.....

-- By vanessa74 | Reply | (3) replies | Private Message me

December 7th
2007
6:52 AM

I took Toprol for almost 2 years then in Aug generic came out Metoprolol and I switched over. I was taking 25mg. After a few weeks, I noticed numbness in my index finger and middle finger. Then it happened in other hand. Doc said I had tendinitis in one hand and slept wrong on the other...I was also depressed and having panic attacks. From the onset of taking Toprol my sleep was disturbed,but thought it was age related. Once I went on Metoprolol insomnia set in. Then my feet went cold and numb and my arms were so heavy and tingly and my joints hurt. My right shin hurt to touch as well. Vision was cloudy and had trouble adjusting to light changes. Finally it dawned on my that the changes occurred about the time I started the generic. I went back to doc and he pretty much told me I was crazy, prescribed Xanax and a session with a psychiatrist! He switched me back to Toprol and I felt no better then he switched me to
Atenolol with same result. By this time, my chest was on fire and I had extreme difficultly breathing. Called doc and he told me to stop cold turkey. I did and thought I was going to die one day. Throat closed up blood pressure soared. He stopped me on Nov 11 or 12th. I have been on nothing. Blood pressure is not leveled. When I first sit down it is like 140/93. If I wait a few minutes it goes down to 120/80 or a little lower. I was expecting to feel a lot better by this point in the game. I still have numbness in my pinky and ring finger and in my toes. If I take Advil it lessens to where it is not so bothersome. Anyone know how long this stuff takes to get out of your system? I am shopping for a new doc since mine know things I am a hypo. I am a 39 yr old female with no other health issues. Was originally put on for stress related palps.

-- By vkb719 | Reply | (8) replies | Private Message me

December 2th
2007
12:33 PM

Today is my ninth day coming off Toprol (had been on 25 mg for 2 1/2 years, then 50mg for 1 1/2 years) - today is the first day that the Dr. does not want me to take any Toprol. It has been SO DIFFICULT... Extreme chest tightness, shortness of breath, heart palpitations, headaches. She has me switching over to Diovan (80 mg) which I have been taking for 7 days now. I want to believe that everything I am feeling is from the Toprol Withdrawal and not NEW side effects from the Diovan - but I am scared. I feel really awful, I have no energy. I lay in bed waiting for the bad feelings to pass and they do not. I have lost 7 pounds in the past (2) weeks. Not sure if it is from going off the Toprol - or just not feeling that well. This website has been my only source of sanity and peace. Anyone else gone off this and can tell me what to expect? THANK YOU!

-- By vanessa74 | Reply | (2) replies | Private Message me

September 30th
2007
11:28 AM

I am a 56 year old female who was very active ranching, balng hay taking care of irrigation etc. 3 years ago I had pain in my left arm and my heart was racing went to the E.R. where they did a 12 lead ekg. Could not find anything wrong other than my blood pressure was up to 160/90 they gave me ToprolXl 100 mg and told me to see my primary care physcian. Which I did. He continued the medication.

Since that time I have complained to all of the symtoms I have seen on this site. With one exception. Two months ago I was watching TV and had double vision. It only lasted for a few seconds but noticed the next day my peripheral vision was gone. I made an appt with an opthomologist and he spent 3 hours with me and recommended an MRI which was conducted some 2 weeks later. I was referred to a neurologist who ran a lot of blood work. My first batch of blood work showed a raging inflamation. They started testing for MS, lymes, lupus etc. Last week i met with my neurologist for the follow up blood work report. Everything is normal he says but by the way you have myathenia gravis. You get double vision again you call me I will give you medicine. Like I am a two year old.

I have researched myasthenia and the one thing you dont want to do is be on a beta blocker or a calcium channel blocker, as both of these will aggravate the condition. I called him to ask that he change my blood pressure medication. He says I wont do that. My primary care physcian is no longer in practice with the original medical group and has left the area. I saw him only 2 weeks ago and nothing was mentioned. The point is folks Don't trust anyone. Oh and by the way the side effects you are seeing mimic myasthenia gravis. Now no one knows what causes it for sure. Stress is a factor. But if you have not been tested get yourself tested. I may not even have this disease but I am getting off this medication and I am going to find out for sure what in the heck is going on. By the way I have seen a cardiologist last month without a referral because I wanted answers and he says there is absolutely nothing wrong with my heart...so why was I put on this medication? Heaven help us all.

-- By rawson | Reply | (3) replies | Private Message me


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