August 19th
2009
1:37 PM
Hi. I started Toprol-XL 25 two years ago due to high blood pressure. Recently(Feb 2009) began an exercise program (walking) and lost twenty pounds. I was allowed to reduce to 12.5 mg for a few months. My BP was still looking great so I was told by my Doc to go to 6.25 for seven days and then completely off. Today I took my last dose! I'm going to keep up the exercising and really watch my weight so I never have to take this again. While taking this, I had cold hands and sometimes was dizzy. Also had some crazy dreams (I will miss those a little bit!) ! When you're on Toprol it seems you really can't over exert yourself. The first week I took it I thought I was going to die when I mowed the lawn. Literally probably should have gone to the emergency room. So if you are just starting please take it easy !!! I always took the pill at the same time every day with food before and after. Never drank alcohol during these two years (except for very small sips). Make sure to ask for the name brand, NOT the generic, even if you have to pay more. You want the time release version so the medicine flows more steadily.
-- By ctlady | Reply | (1) replies | Private Message me
July 30th
2009
5:49 AM
I am 23 years old. After being on 25mg/once a day Toprol XL for 1 year I began to experience Head aches almost everyday, nightmares, low blood pressure 89/62, weakness, weight gain, loss of memory. I started the pill after an S.V.T episode. Any how I said enough is enough I want off this med. so I went to see my doctor and she told me to cut my pill in half so far I feel good my headache is slowly going away and my BP is 110/72 instant improvement. I will be on lower dosage for 2 weeks,if i continue feeling good she said I can then go completely off of it. I am so excited. I asked to get off pill 6mo. before but Doctor (my previous doc. I changed docs) said he didn't recommend it I think it was a whole lot of BS seeing that I felt no need to be on pill as I only had one episode 1 year ago. My opinion is if you feel your ready to get off pill be assertive and let you doctor know this is what YOU want. I will post again after my 2 weeks are up. I am confident that I will be just fine :) God is with me and he will protect me as he will you.
-- By dasani1 | Reply | Private Message me
June 19th
2009
5:54 PM
I started off taking Tenormin 50 mg 1 x a day and Lanoxin 25 mg 1 x a day about 21 years ago. I continued to have constant palps and skipped beats even though I was on these meds. I wound up developing vertigo after about 5 years that got so bad I had it daily. I ended up with severe sinus problems and was given a cortisone packet of pills (the kind that decrease each day you take them) to take. The vertigo left for 6 months, coming back again with a vengeance. I begged the docs to put me back on cortisone pills again, once more helping to stop the vertigo. However, at the same time I also stopped the Lanoxin. ??? I totally believe that Lanoxin was part of the problem causing the vertigo. I now only have it from time to time, maybe only a few times a year. I still blame the Toprol that I now take for the left-over vertigo. I was taken off of the Tenormin after about 10 years of taking it and put on the Toprol at that time and have been on the Toprol xl for the last 11 years. The docs said that I needed to be on Toprol XL, as it was an extended release and would help me much more around the clock. I did not notice much difference throughout the switch, but looking back I do believe that a lot of the things that I have been dealing with through the years are side-effects of the medicines. I have had irritable bowel syndrome, told I have fybromyalgia, then told I did not have fybromyalgia, hip and back pain, skin problems on one of my hands that started with the Toprol, headaches, tiredness, horrible weight-gain (without overeating!! Honestly.), I have averaged 5 lbs. a year and the docs never even listen to me when I voice my concerns, I have been diagnosed with anxiety, joints ache, ankels, feet, face and hands swell, stomach bloats something terrible, acid reflux, hiatial hernia, and I had a tumor removed that could have been a problem off my rectum (who knows what caused it), I have had CTs and MRIs of my head, twice, for the vertigo and what I was told was probably psuedo-tumor cerbri (because of months of severe headaches), told by my eye doctor that he wonders if I have beginning MS, everything came back fine and things seem to resolve and go into something else. I have been passed from my general physician, to a cardiologist, to a ENT, and a neurologist. No one can ever find anything physically wrong, but they did conclude that I definitely had benign positional vertigo. LOL, that means they could not tell me why I had it. I put a stop to testing when they wanted to do the spinal taps.
Now I am experiencing tightness around my lower rib-cage and feel as though I am sucking for breath, I have a terrible time falling asleep at night, I wake up gasping and swearing that I am dying. My rib-cage is numb around my right side, not so much the left side when I lay down to go to sleep at night. After a few bouts of this I finally fall asleep and sleep all night most times. My blood pressure is now on the rise 150/99 at the highest. I have been working out lately with a few positive effects, more energy, more endurance, less aches and pains, muscles are starting to tone up, however, no weight loss. I thought my bp was starting to lower, but found out it was actually up. I went to my family doc and she listened to me really good, realized at last that I was not shedding the weight despite the efforts I was making. She cut my toprol to 25 mg 1 x a day and put me on lisinopril, I did not tolerate the lisinopril so she switched me to dyazide, lowest dose 1 x a day. I have great positives ...no more swelling, weight loss, lower bp, HOWEVER, I am now having jitters, anxiety (somewhat), no appetite at all, a few muscle spasms in my arms and legs, nothing painful or severe, dizziness, slight headache that comes and goes especially through my eyes. I am also experiencing coughing, and raspiness...but I am also coming out of a bout of bronchitis, which got really bad with the lisinopril. I believe it is partly due to the meds.
I called my doc today to tell her about the twitching and buzzing feeling and to ask about the dyazide. My feelings are that I am experiencing a lot of different things, first the bronchitis, and all the meds I was taking for that...albuterol, musinex, tylenol w/codeine, and biaxin, then the decrease of my toprol xl, the bad effects of lisinopril (coughing and raspiness), and now starting the new drug dyazide (generic form). I really want this to all settle down and work out for the best, but it is getting to me now (after 2 weeks). Last Saturday I would up in the ER with shooting pains through my chest that left me very pale and lightheaded when it happened as well as very tight throug my chest and sucking for air. The ER did chest xray, chest CT w/contrast, bloodtests, urine test, bp's sitting, standing and lying down (it is highest while sitting), everything came back good. No heart attacks, no blood clots, no bronchitis anymore, nothing. Blood work was good, urine was good. I am beginning to think that perhaps my body is reacting to cutting the Toprol xl in half. Sort of a withdrawal. There is really nothing else it can be and I really don't think that the dyazide is that bad of a drug and probably not causing all of my problems now, maybe just a part. Which are the tingling, dizziness, anxiety, twitching, and coughing. I have only had 3 of the dyazide medication. But have read that withdrawal symptoms of Toprol can cause these problems for a while. I am also thinking that the shooting chest pains last week were also withdrawal of the Toprol as it had been 1 week at that point that it had been cut in half.
Any opinions, if anyone can make heads or tails of anything that I have wrote. Sorry for the length and if it is confusing.
-- By kalisa | Reply | (1) replies | Private Message me
June 6th
2009
12:17 PM
Over the 5 years of 50mg Toprol starting out to 200 mg Metoprolol.Over the years I have had the weight gain,losing weight is difficult,tiredness, muscle aches,anger,anxiety, weeping, feeling not in control, bad dreams, spiders on the wall. Which it totally out of character for me. Doctor upped it to 200 mg a day which has totally intensified all the above, I thought it was my age,hormones etc... never thought of these meds.
I am so glad that I came on this web sight and realized people are going through the same horrible side effects that I am going through and feeling alone and I am not going out of my mind.
I need to get off this ,plus I am on benicar/hcz. My Blood Pressure is very difficult to bring it down. Dr's just prescribe and practice its like a spit in the ocean-some meds work and some do not. It is finding the right combo meanwhile we all suffer...
March 23th
2009
10:19 AM
I have been on Toprol-XL (BRAND) for 3 months. I took the generic for 2 months with no change in BP so I requested the brand name. I found your website by surfing the web looking for answers to my complaints. I have weight gain, vivid violent dreams, extreme fatigue, my breathing is slow and I am just dragging around in a fog. I felt better when my BP was high and I didn't take all this medication. Currently, I am taking first, Lisinopril, then added Toprol XL AND then added Clonidine. My BP is still not properly controlled. I am going to the doctor today to have my medication changed. Thank you for sharing your comments.
-- By glawrence1 | Reply | (1) replies | Private Message me
March 14th
2009
3:57 PM
I think I have been on this the longest of anyone who has posted....18 years. Never really have had problems ( some of the following once in a blue moon; never all at once!) but I have 'em all now! Weight gain, depression, outlandish dreams (exhausting) and/or sleeplessness, diarrhea..almost daily and incapacitating, joint pain, ad infinitum. I am miserable. Have no insurance so I can't undergo anymore testing. I have persistent tachycardia of atrial origin....that's all I know. Having headaches and bet my BP is above normal. I hate this medicine but I know it's dangerous to just stop. Tried weaning off a couple of times but the tachycardia returns full steam, 160+ bpm, pretty fast. I am not much fun anymore that's for certain.
-- By snappyturtle | Reply | Private Message me
February 24th
2009
11:36 PM
I have been on Toprol -XL Metoprolol ER 100 MG, I have been on for about 2 mos. Not quite sure have to check dr records. I have had Weight gain about 20 lbs, headaches, swelling of ankles and feet,shortness of Breath, a horrible feeling of not being able to catch or take my breath, fear anxiety, stomach pains, depression, vivid dreams, waking up and not being able to sleep, tossng and turning until 4am. could feel heart beating fast but subtle. numbing in my hands and fingers lack of motivation. I have been going to a nurse practioner who is helping me to wean off of this drug. It has changed me I ave never been ill in my life except for the common cold. and having babies. There is really nothing wrong with my heart according to tests they have run, My Blood pressure was high and they were trying to get it under control, tried other meds and then went to this. It has been a horrible experience especially when you just learned you have HBP and then you get all these terrible side effects from the medicine that is suppose to be saving your life or help save it. I do not know how I will do with weaning But i will sure try and keep you posted. I am a little nervous about being weaned off, but hopefully I can find something natural to help me out. This is literally been poison to my Body ******
-- By pancha59 | Reply | Private Message me
September 30th
2008
6:54 PM
Graves Disease patient going in remission.
I have experienced all the same symptoms as every one else
leg cramps, exhaustion, loss of sex drive, anxiety/panic attacks,weight gain, hair loss, horrible terrible rash on feet and palms of hands I could go on.
My concern is my doctor taking me off PTU and has not mentioned the Toprol. I understand that stopping increases your risk of a heart attack so what's next?
September 7th
2008
3:16 AM
I HAVE BEEN ON TOPROL-XL FOR 2 YEARS. 25 MG. IN AM AND BLOOD PRESSURE WOULD FLUCTUATE UP TO 170/116 AND GO BACK DOWN TO 140/85. THEN WAS ALSO PUT ON NORVASC 25MG. IN PM. I ALSO AM HYPOTHYROID WITH HASHIMOTOS. MY SIDE AFFECTS HAVE BEEN EXTREME. SWEATING, HAVE TO CARRY A PAPER TOWEL OR SCARF TO WIPE SWEAT OFF, SPACED OUT, TIRED, FORGETFULNESS, RACING HEART, LEGS ANKLES SWOLLEN, THEY FEEL SO HEAVY, WEIGHT GAIN, EYES WATER, NOSE WILL HAVE NASAL DRIP, CONSTIPATED, SORE NECK, HEADACHES, THE LIST GOES ON. THIS SUMMER I WENT TO THERAPY FOR MY NECK, HAD ECHO AND WORE 24 HR. HEART HALTER, WHICH I HAVE FOUR EXTRA BEATS, WENT TO ENDRICONE DOCTOR WHO RAN TESTS FOR EVERYTHING, 24 HR. URINE, TESTS CAME BACK WITH TSH HIGH, EVERYTHING ELSE WAS NORMAL BUT FOR MY HEART EXTRA BEATS ENDR. AND FAMILY DOCTOR TOOK ME OFF NORVASC AND PUT ME ON TOPROL-XL 25MG IN PM ALSO AM. WELL FEELING LIKE I WAS READY TO GIVE IT ALL UP, LIKE I WAS DYING, I QUIT TAKING IT LAST NIGHT AND HAVE THOUGHT ABOUT THIS ALL YEAR, TRYING PEPTACE AND CELERY SEED EXTRACT. I FELT SO BAD THAT I KNOW IT COULD BE DANGEROUS TO QUIT THE TOPROL-XL LIKE THAT BUT I FELT LIKE MY HEART WAS GONNA BURST AND IT WAS GANNA TAKE ME OUT ANYWAY, AND DOCS. WOULDN'T LISTEN AND I HAVE BEEN IN TO THEM A LOT WITH ALL MY ISSUES. I AM 56 AND HAVE ALWAYS BEEN ACTIVE, OUTDOORS TYPE PERSON. I WALK 2 MILES ON TREADMILL EVERYDAY AND 30 MIN. OF TAE-BO EXERCISE. I WORK 5 DAYS A WEEK AND HAVE LOTS TO DO AT HOME. THEY TRIED TO PUT ME ON CYMBALTA, LEXAPRO, ELIVOIR FOR THEY SAID WHEN YOU FEEL THAT BAD YOU CAN GET DEPRESSED, I TOLD THEM NO, I AM NOT ADDING ANY MEDS. KNOWING I WOULD GET WORSE. PEOPLE AT WORK, MY FAMILY WILL SAY YOU DON'T LOOK LIKE YOU FEEL GOOD OR IS SOMETHING WRONG, HOW COMPLICATED IT WOULD BE TO EXPLAIN. SO I AM LISTENING TO MY BODY CAUSE FEELING THAT BAD ISN'T RIGHT SO I HOPE THIS WORKS. I COULN'T FEEL ANY WORSE ANYWAY. SO GOOD LUCK TO YOU ALL AND ALL OF US ARE UNIQUE TO FIND WHAT MIGHT WORK FOR US, AND MOST THOSE PRESCRIPTIONS ARE FOR ONE THING AND THEN TRIGGER OFF OTHER THINGS THEN YOU GOTTA TAKE ANOTHER MED. FOR THAT. I AM GLAD TO FIND THIS SITE.
-- By debbie56 | Reply | (2) replies | Private Message me
August 24th
2008
6:54 PM
I had taken Toprol XL for years and thought I was doing fairly well. The side effects began to get worse with the absolute worse being that I woke a few times in the middle of the night with the room spinning out of control and sweating. The usual side effects I've now read such as weight gain, dizziness, dreams, shortness of breath, digestion not quite right, etc. had always been there, but I didn't quite recognize them realize until I came across this web site. Thank goodness I did. I have now been completely off Toprol XL for over a month and truly feel so much better (and normal). Even though for years I've watched my diet carefully and exercised faithfully, I would gain weight extremely easily and when I did go on a "diet", I would have to practically eat nothing in order to lose a few pounds. I'm so hoping now my metabolism will return to normal, and I can lose these extra pounds I want to lose. I realize everyone can't get off the medication, but if at all possible, P L E A S E consider doing so. This stuff is scary!!
-- By susan705 | Reply | (1) replies | Private Message me
August 22th
2008
10:48 PM
I suddenly had high blood pressure. I was put on a heart monitor for 21 days because I was experiencing frequent palpitations. I was given 25 mg Metoprolol ER the genic for Toprol XL on June 6, 2008. I had the usual symptoms extreme fatigue, headache, constipation,swelling, weight gain for the first month. I am 59 yrs. old.
The second month I started to have horrible nightmares, and headaches that would not go away. On Aug.12 while driving home I started to hear voices, had blurred vision and hallucinations. I was driving fast and screaming to make the voices stop.. I ended up in a parking lot. I was crying and for a minute I had a bit of reality. I called the cardiologist office and told the nurse what was going on. She said to immediately stop the meds because I was having a rare serious side effect. I sat crying for awhile and was able to call a friend to pick me up. I stayed at home for 4 days. The entire time my hands shook and my headache was horrible. It was one week before I was able to function properly.
I called my pharmacist and she told me that this drug affects the central nervous system. 2 % of 100,000 people have this side effect. I told her that it was not written on my paper with the prescription. She said that because it is so rare they do not have put it on. She printed out the side effects for me from her web site. A site that is only accessible to pharmacists or Dr.'s. My Dr. wants me to try Cardizeim now and I do not want to because I am afraid. I told him that the BP was down to normal but he still wanted to because of the palpitations. I was given the option of the Cardiziem or seeing and Electrical Man at the Cardiology office. As of yet I have not taken the Cardiziem. This is the first time I have read this web site and I hope that this information may help someone. I finally feel good again except for the rapid heart beat and glad to be alive.
August 1th
2008
9:32 AM
I am a 37 year old female that went to the ER 3 days ago for chest tightness & extremely high blood sugar. I have had high blood pressure in the past years but as of a year ago when I was diagnosed as being diabetic my blood pressure has been normal about 117/75 so I go to the ER and they give me 2 EKG's and a heart monitor for 24hrs and put me through a stress test,they also give me this little pill and say it will help me, well not feeling well and wanting to feel good again I take the pill no questions asked. I have never felt so tired in my life. I thought well chest pains will do that to you so I dismissed it. I know they were making sure I do not have a heart attack but, my blood pressure seems to be going lower and lower and I am more tired by the minute, they released me from the hospital and gave me a million RX's including toprol and lisinopril both of whch lower blod pressure ??? do they want me to pass out? so yesterday I took the toprol only and felt like I was sinking , my thinking seemed foggy and my legs felt rubbery. I am sooooo glad I found this site because I will not take this drug ever again I already suffer weight issues being diabetic I don't need anything else. I would prefer to be interested in sex and be able too function this drug seems like it is more negative than it is worth. I think I will stick with the lisinopril, and why would they give me two blood pressure meds when my blood pressure is already normal??? If anyone has a comment please let me know I am very scared about this whole thing
-- By kahmere6 | Reply | (3) replies | Private Message me
August 1th
2008
3:14 AM
i am a 43 yr old male.........i was put on 100mg a day of metoprolol and it did the job of lowering my blood pressure and heart rate. however after about a year of taking the meto my orgasms would take anywhere from 1.5 to 2.5 hours to achieve. at first it was nice to go longer tham usual, but it has became a problem for myself and my wife. i sometimes think i will have a heart attack trying to release, we go thru bottles of lube to keep her from hurting, and my mood became very bad, i was looking for things to complain about, threatening people at work and so on. i started weening myself off meto 2 weeks ago my dividing the pills in half, and went to see my doctor this week. he prescribed lisinopril 10mg and had me divide my metoprolol in half again for another week. already my moods are 100% better, but i still have trouble achieving climax with sex in timely fashion. i hope that problem goes away soon. i am curious, am i the only male here having problems climaxing?
-- By fredro | Reply | (3) replies | Private Message me
July 26th
2008
9:50 AM
I am a 39 year old white male that had aortic valve replacement surgery five years ago. About three months after the surgery (which went off without a hitch) I had a tremendous spike in my BP that went on for a few days (200/100 - enough so I could see my heartbeat in my eyes!). My Dr started me on Toprol XL 75 and while it brought my BP down some, it didn't bring it down a lot. He moved me to 200 mg a day and now my BP is around 105/55 with a resting pulse around 50.
While I experienced many of the side effects listed here (feeling groggy, confused, etc) they only lasted a few months. I must admit that I did pack on about 20 lbs over six months. However, unlike so many who choose to blame drugs (or lack thereof) for their problems, I took it upon myself to start exercising and guess what?!? The weight comes off! I now weigh less than when I graduated high school, I am in better shape than any time in my life and I believe that exercise helps me sleep better at night. All of this even though I still take 200mg a day. Given that some of you say that you're practically dead at taking 25, I should be 6 feet under or weigh 400 lbs.
I guess what I want to say is that perhaps instead of jumping on the bandwagon here that Toprol causes all of your problems, perhaps you want to take your own health into your hands and begin to eat a little better and exercise (and don't give me "but my ankles are swollen!" excuse - there is something called water aerobics). I don't deny that it can cause some side effects, but it can work wonders with your BP. You just have to DO SOMETHING to help keep the weight off (which then help with the sleep problems, mental clarity, etc).
-- By thom228 | Reply | (4) replies | Private Message me
July 20th
2008
4:49 PM
I am a 45 year old black female. After the death of my father, I started experiencing blood pressure problems and headaches. I was diagnosed with obstructive sleep apnea 2 years ago. Not having bought a CPAP yet has contributed to a lot of the blood pressure and headache problems. But, my GP put me on Toprol in June '08. I am having difficulty sleeping.Every time I eat, I have severe gas and my chest is hurting off and on. There has got to be a better solution. I started exercising and using Isagenix (******). It is simply wonderful - I have lost weight and toxins. When I go to my doctor on tomorrow, I am going to ask him if I can get off of Toprol. I do not like the way this medication makes me feel.
-- By lejoyce80 | Reply | (2) replies | Private Message me
July 8th
2008
1:53 PM
I am 46 years old and have been on Toprol XL 25mg for almost 3 years. I have been tired, but have not been sleeping well at night, I have had anxiety attacks and episodes where my heart was racing. The worst part is that I gained 22 pounds in 2 1/2 years and I was the type of person who never had a weight problem. It wasn't until the other day that I decided to go on line to see if Toprol could cause weight gain. I was shocked to see that so many people have had the same complaints as I. I have a Dr.'s appointment this week and I plan on telling him that I don't want to be on toprol any longer. My question is, what is an alternative to taking toprol?
-- By lizk | Reply | (1) replies | Private Message me
July 7th
2008
5:41 PM
My doctor took me off metopolol (genericToprol), and my last dosage was a week ago. I suffered weight gain, tiredness, and muscle fatigue during my 18 months on the drug.
I have 2 questions - how long will the drug remain in my system, and has anyone who experienced weight gain while on Toprol or the generic, lost any weight after stopping it?
Thanks, Tony
-- By tonypicc | Reply | (6) replies | Private Message me
July 5th
2008
11:22 AM
Weight gain, swollen middle,ankles,and feet. Tired and eat every little and exercise by walking most days. Can't walk too fast because I experience shortness of breath. I take 150 mg a day.
-- By forgot | Reply | (2) replies | Private Message me
June 10th
2008
6:44 PM
I have taken toprol for seven years. I never had any bad side effects and it controlled my blood pressure most of the time. However, I suffer from anxiety and depression and was recently put on Lexapro. My heart rate dropped into the 40's and I was exhausted all the time. Turns out Lexapro interacts with Toprol in that the drug (Toprol) does not break down in your system and keeps building up! Because the Lexapro was helping my anxiety I decided to lower the Toprol dosage. Down to 12.5 mg and still extremely low heart rate and fatigue. Decided to go off the Toprol and monitor my blood pressure, which has been amazingly good so far. Went off completely six days ago and it has been rough. Anxiety, insomnia, pounding heart, heart palpitations. This stuff is a real B*tch to get off from. Have talked to both the pharmacist and my doctor and both said to NOT start taking it again. There are plenty of newer medications out there. I also experienced weight gain when I first started taking it...I think because it slows your metabolism down. So now I am on xanax to counteract the Toprol until the Lexapro kicks in more. It it isn't one thing, it's another.
-- By jddupee | Reply | Private Message me
June 7th
2008
11:10 AM
WEIGHT GAIN, NUMBNESS IN FINGERS AND FEET. LET PAIN. I ALREADY HAVE RHEUMATOID ARTHRITIS, MIXED CONNECTIVE TISSUE DISEASE, THYROID DISEASE AND AM MISERABLE ON THIS.
I GAINED 12 POUNDS IN TWO MONTHS. I'M IN A FOG AND CAN'T REMEMBER ANYTHING. HAVE REALLY BAD LEG PAIN TRYING TO EXERCISE.
I THINK THIS DRUG SLOWED MY METABOLISM.
-- By suzyq52 | Reply | (1) replies | Private Message me
May 16th
2008
3:03 PM
I have been on generic Toprol since 2005 to control my high blood pressure. I have many of the symptoms you all experience, tiredness, occasional dizziness, some weight gain. However, the most debilitating side effect I am suffering is neck flushing and anxiety attacks, my chest and neck turn bright red practically whenever people talk to me and I've never had this problem prior to taking this drug, I am shy but not that shy. Now I feel like I have to wear turtlenecks all the time or people will ask me what is wrong with you, are you allergic, etc... I can't even have a regular conversation with my co-workers without my neck turning red and breathing hard. It's ridiculous and I want to know if anyone else has this problem or if I'm just mental.
Thanks.
-- By cindy36 | Reply | (1) replies | Private Message me
April 16th
2008
9:43 AM
Weight gain,muscle pain/tiredness especially in the lower legs. Fatigue/lack of energy, moodiness. Also intestinal bloating/gas.
Getting adequate exercise is problematic given I can't get my heart rate into my target area, and the almost constant pain and dead feeling in my lower legs. It gets to the point that I have to stop walking and wait for the blood flow to reach my lower extremities. I am assuming this is a large contribting factor to my weight gain.
-- By jmheffay7216 | Reply | Private Message me
March 9th
2008
6:25 PM
I was given Metoprolol, a generic for Toprol-XL several months ago, for high blood pressure. It was prescribed after I was determined to be allergic to Lisinopril. ( It caused a cough that lasted 3 months; I sounded like a TB patient.) Anyway, I have been taking Effexor for years, for anxiety attacks. Now that I take Metoprolol along with the Effexor, I am so tired and drained all the time, that I am contemplating quiting work. I go to the grocery, come home and lie down. I can't seem to have energy to breath correctly. My Dr. won't believe that this has anything to do with meds. I have now developed blood and mucous in my stools, diarrhea, and very urgent BMs. This all started after taking these two meds in combination for about 4 months.
-- By taterwood1 | Reply | (4) replies | Private Message me
February 29th
2008
8:42 PM
Wow. Thank god for this Bulletin! I was diagnosed with hypertension at age 28
and tried a variety of drugs with no control over the BP. So, about 2 1/2 - 3 years ago, I was prescribed 100MG of Toprol XL which seemed to control it well, but with debilitating long term illness. I had no idea until today that Toprol XL was causing similar grief to others. The horrible symptoms that I have been experiencing now for several years are Extreme Chronic Fatigue, Profuse Cold Clammy Sweating, Dizzy spells, weight gain, seeing specs of light and thousands of eye floaters, severe depression, muscle aches, headaches.
After reading about others with similar side effects, I am confident that it's from this medication. I have had all kinds of testing done including T3 & T4 Throid levels and a full array of blood work with NO LUCK! Regardless of the consequences, I am going to quit this damn medicine today because it appears to take 5 weeks or so to get it out of the body to notice a difference. I am so desperate for change. It is ruining my life because I can
't wake up, I'm always tired even though I get 10-14 hours of sleep. My wife and kids are bummed because I have no energy to do anything, EVER!
If you have any other suggestions or would like to comment about this.
Sincerely,
Sean
-- By seand777 | Reply | (6) replies | Private Message me
February 26th
2008
3:01 PM
I have been on Toprol for over 5 years. I have finally (after numerous attempts) - been able to wean off of it. I am on my 10th day (7 day step down and now 3 days with NO Toprol). Can anyone that has successfully gotten off of Toprol please tell me how long it took to start feeling better?
It has caused be severe GERD/Acid reflux, SEVERE breathing problems, and has stopped controlling my HBP - in fact my B/P is HIGHER on Toprol than it ever used to be. It also caused my heart to race from time to time.
I want to get excited about feeling better - just waiting for that to happen. Anyone know what I can expect? Thank you so much.
-- By vanessa74 | Reply | (2) replies | Private Message me
February 13th
2008
9:14 PM
I started taking Toprol XL after being diagnosed with SVT back in May of 2003. I was only in my late 20's & was very trusting, at the time. I was recently sent to a cardiologist because I was having horrible chest pain & the Toprol XL 50 MG wasn't working at keeping the heart rate down. The GP put me on a double dose as well as Cardizem to help with the chest pain & rapid heart rate. I was already on Lanoxin 0.5MG, the highest dose allowed. The cardiologist took me off of the Cardizem right away because he said that is was too stressful for the heart to be on that much heart medicine. I went though several tests & was told by the cardiologist that I didn't have SVT & that this was actually Postural Tachycardia (POTS) & Neurocardiogenic Syncope. I was taken off of Lanoxin, but kept on Toprol XL 100 MG. He put me on lots of salt & water to increase my blood volume which would help my blood pressure when standing. That was in June of 2007. All went pretty good, I thought, until January 18, 2008 when I was working. My heart rate went up to 136 just standing or walking across a room. I called the doctor & talked to a nurse who suggested that I take another 1/2 of a Toprol. I did that & felt better for awhile, but it was short lived. I had been having chest pain, rapid heart rate, fatigue, muscle pain, joint pain, headaches, nausea, vomiting, short term memory problems, rapid weight gain, hair loss, cold extremities, & other things I can't think of right now for what seemed like forever. My gynecologist & my cardiologist first thought that I had thyroid problems, but all tests have come back negative. They then thought that maybe it was from the birth control pills that I had been on for the ovarian cysts. I was changed from one medicine to another & at first I thought that was what was wrong. I am now certain that all of the problems that I have been having were & are a result of the Toprol XL. I was even told that all the problems were "psychiatric in nature". I know that that isn't it at all! I have never had anxiety problems & the GP now thinks that's all that is wrong with me & wants me to go on Zoloft. I tried it, but became so ill that after one pill, I quit. I now plan on weaning myself off of the Toprol XL without the GP's knowledge or consent. The cardiologist was planning on weaning me off at some time in the future, but I am starting without him knowing it at the time. I'll just tell him when I see him next month. Thanks everyone for alerting me to the facts about this medicine. If I had known then what I do now, I'd have never consented to starting it in the first place. My only question is, are some of the "side effects" going to be a permanent thing for me or will they eventually go away? Any advice would be welcome! Thanks again!
-- By micheledelp | Reply | (7) replies | Private Message me
January 12th
2008
10:45 PM
Shortness of breath, foggy headed, joint pain, weight gain, stiff neck, clicking sounds, loss or flexibility of joints, tired. Felt old! Went on Toprol-xl for maintenance only. Never had high b/p. Talked with a friend, then found this web sight. Guess I'm not alone. Guess it's not me! Changed doctor now, one that will listen. She urged me to go off it and monitor my b/p. Took about 2 weeks, been off for a total of 3 weeks now. Feel great. Most symptoms are gone. No more inhaler and feel better. Clear headed again. Blood pressure is now high though. Don't know if it's me or the drug. Don't know if drug has done any damage. Had an ekg done. Dr. said heart is working to hard now. Wants to do a complete stress test. My wife and I are worried if its the Toprol-xl wearing off, or not. Anyone else had an ekg done. Does Toprol-xl damage your heart? Need answers. Looking for feed back. I'm only 53. Never had health problems before. Thought I was just growing old!
-- By pdumont | Reply | (2) replies | Private Message me
January 10th
2008
9:43 PM
I am a 41 yo woman in good health. I started Toprol xl about 3 years ago for a heart palp that would happen maybe once a day, and occasional racing heart beat. I did great for a long time on 25mg once a day. Then about 6 months back I was switched to generic due to insurance issues - they only want to pay for generic.
It took me a while to figure out what was happening, but several problems started happening over the last few months that I am sure were from this generic drug. Suddenly I was having vivid dreams - fish swimming on the ceiling, cats with heads 5x too big! Worse yet, over about 3 months I gained 20 pounds with no difference in diet. And I was getting more and more tired. I started looking into what could be causing these crazy effects - I was only on Toprol and birth control pills.... well, it was not the birth control!
So, I decided to wean myself from the Toprol. I decided I prefer a heart palp and occasional racing heart to this!! I gave myself a couple of weeks of lesser doses, then 5 days ago I stopped it altogether. I am having some horrid "rebound" or withdrawal effects! Numb/tingling hands and feet, headache and - surprise! High blood pressure! I never, ever took this med for HBP, and I have never had HBP! I always had a nice, low blood pressure, even when 9 months pregnant! Now it's running around 135/93 - I work in a medical office, so I got one of the nurses to check it on Tuesday...she sort of freaked! She said she has seen much higher, but mine is not normal. So we have been checking daily, and it's staying up there. I am so mad to think Toprol could have damaged my body in some way so that my blood pressure may not stay messed up for life. I have read online that the rebound effects can last up to a month, even with a fairly low dose like I was taking. Does anyone know if a month is about right? If my blood pressure keeps this high, I suppose I will have to seek treatment at some point. Ugh!
On the plus side, I don't feel so tired. No vivid dreams since I stopped the Toprol, and much better sleep! I feel "clearer" mentally. I just wish the tingling hands and feet would stop - and the high blood pressure!
-- By ree | Reply | (10) replies | Private Message me
December 30th
2007
7:35 PM
I have been taking Toprol XL for over two years and my depression is worsening by the month. I am diabetic.
-- By maryone | Reply | (1) replies | Private Message me
November 30th
2007
10:59 PM
45 y/o female, nurse, prescribed Toprol XL 50mg daily. Could not take drug at bedtime as suggested by MD. Was not able to sleep. After a few months experienced visual problems, joint and muscle pain, anxiety, gi upset, weight gain as well as sleeplessness and heavy sensation of chest along with shortness of breath. Complained to MD to no avail. Called cardiologist, he suggested brand use as opposed to generic. Apparently, generic drug does not provide continuous steady release. Also, he lowered dose to 25mg daily. Will report subsequent effects but hope to be weaned off the drug entirely. I appreciate all the information that has been posted on this site, especially the beta blocker info. Hope this helps somebody else!
-- By regt | Reply | Private Message me
November 29th
2007
1:48 PM
I am a 45 year old female & am on the Toprol-XL 50 mg & take 1 twice a day...I have noticed I have blurred vision & problems with my eyes & also suffer with my legs hurting a lot & also have joint stiffness & cramps in my feet & legs & have trouble sleeping & some memory problems at times along with feeling tired all the time & some depression & shortness of breath & no matter how little I eat I seem to put on weight & look & feel bloated...don't know if it's the Toprol-XL or not but have only had these problems since I been on that & Crestor.
-- By rebel_babe820 | Reply | (2) replies | Private Message me
November 14th
2007
9:46 PM
I am a nurse of 20 years and was placed on Toprol XL for super ventricular tachycardia (SVT) over a year ago. I was place on 25 mg dose after a stress test, ekg, echocaridogram and 24 hour halter monitor. I was not feeling any better and I was having periods of weakness, profuse sweating and being clammy. The cardiologist had me wear a 30 day event monitor and it showed frequent PVCs and runs of SVT. So he increased the dose to 50 mg. I continued to have the weakness, tachycardia, PVCs, extreme weakness, poor concentration and extreme periods of sweating with becoming clammy and some chest pain. Oh and I started having severe left leg pain that I had not had since my back surgery, so I went back to my pain specialist for treatment. I became so depressed, thoughts of life not worth living, poor endurance, not able to sleep in bed due to severe leg pain and increasing bouts of tachycardia, irregular heart rate, weakness, and sweating this is while at rest or working the symptoms remained. I forgot to mention that my blood sugar was increasing during this time to the point of in danger of being a diabetic.
I decided to stop the Toprol XL after reading some of the side effects that are less common. I was able to sleep in bed for the first time in 6 months, no leg pain. I called my cardiologist and he told me my symptoms were not consistent with Toprol XL side effects or reaction and to double the dose of Toprol XL. I refused and changed cardiologist, one who listened to me.
The result is I stayed off Toprol XL, after 5 weeks it is getting out of my system. No more sweating spells, cold clammy spells, extreme weakness, I feel part of life again and ready to go back into the world not hide from it, my blood sugar is getting back to normal. I am getting my strength and endurance back but have to rest some still, oh and I am losing the 25 pounds that I gained while on Toprol.
I still have irregular heart rate and that is okay but I am on a new medication that really seems to work. Oh, and the spinal implant that I was to have has been cancelled because the leg pain is almost gone and I sleep in a bed not a chair.
-- By clwrn54 | Reply | (3) replies | Private Message me
November 3th
2007
6:07 AM
well i'm not one to NOT TRUST my doctor... but he prescribed me toprol yesterday for hypertension HBP..30 yr old male/chef.. cant believe the comments on this site... couldn't be able to deal with one of these side effects never mind all of them...!!! i appreciate everyone honesty and hope weaning off wasn't an issue for you all. anxiety has never been a problem in my life.. nor weight gain.. deep breathes it is!!!!!!! peace out
-- By krichdry | Reply | (3) replies | Private Message me
November 1th
2007
6:55 PM
I'm weaning myself off of toprol, I've been having enhanced allergy problems since on it and palipitations almost constantly and swelling with weight gain and hair thinning. This drug is worse than the fast heartbeat I had.
-- By monkeydo | Reply | Private Message me
September 20th
2007
6:38 AM
I constantly have loose bowels, hair is thinning, shortness of breath. does'nt have any energy at all to even do little minor things. depression. some of u say that u have gained weight with this medication. I am experiencing weight lost. i've been on this medication now for 7 months along with bp med enalipril.
-- By layshaun2004 | Reply | Private Message me
September 15th
2007
8:14 PM
I have been on Toprol-XL 25mg for 3 months. Shortly after I started this medication I developed hip/upper thigh pain which feels better when I walk. It seems the muscles are very sore in my legs. Never had this prior to taking this medication. It just gives you a sick feeling. I am going to start weaning myself off of this med by cutting it down to 1/2 a tab. I will say one thing it has regulated the PAC's but perhaps the flutter in my chest that will not hurt me, is better than the side effects of this drug. Of course the doctors deny that this drug has these side effects.
-- By aab31 | Reply | (2) replies | Private Message me
September 15th
2007
10:47 AM
September 15, I first started taking Toprol XL 50 mg for an irregular heart
2007 beat. That was about 2.5 years ago. It didn't help me at
1:27 PM first so my Dr. upped it to 100mg. It helped for about a
year and a half before I began having diarrhea and loose bowels for over a year now. My doctor didn't seem too concerned about
that. At the same time I was taking 1500mg of Niacin a day. I thought
the loose bowels came from too much Niacin, so I asked the Dr. to take
me off that. That did not help me at all. I am seeiing my Dr. next week
I do hope I can get off of Toprol. I have other side effects as well, enlarged thyroid, dizziness, short term memory, depressed,sleepy. But I do mow the lawn without any fatigue. I am tired of the diarrhea every day 2 to 3 times a day. Thanks to everyone who has posted their side effects/ It helps to know others are having the same side effects I am with Toprol.
September 13th
2007
7:10 PM
PEOPLE, PLEASE DO NOT DISCONTINUE THIS MEDICATION SUDDENLY, IT CAN BE DANGEROUS!!!
I have been reading about this medication here for some time, and I feel concerned when I read about someone deciding to just quit taking it suddenly. I personally intend to quit as soon as I find a doctor with enough knowledge to help me wean off of it in a safe manner. I've been on it for two years, and the side effects have grown worse than my original health problem, so I understand wanting to just up and quit taking it, but after learning the hard way, I've found out it's not so easy.
Do your homework, read and learn about the potential 'rebound effect' and by all means, talk to your doctor before doing something that may cause you to be in danger ( as in having a heart attack)...if you don't believe me, learn for yourself, the information is easily researched.
Blessings, and good luck...
-- By harmonytx | Reply | (3) replies | Private Message me
September 11th
2007
5:33 AM
My question is: Does anyone knows if Propranolol is a good substitute for Toprol-XL?
I read that there isn't any weight gain reported with Propranolol.
I'd love to hear your experiences with it.
September 8th
2007
10:04 AM
Hi, I was switced from Atenolol to Toprol-XL 50 mg about 1 year ago for palpatations and it seemed to work very little papations now. However, I am currently experiencing right upper quadrant pain and my triglycerides are over 500. I am told I it is drug induced fatty liver disease? I am slowly weaning myself off this medication because you can not just quit per/pharmacist. I also have gained weight which I can not lose, hair thinning, hard to concentrate, elevated triglycerides, calf pain after walking or excercising, fluid retention, feet swelling etc..... for those of you who are on it I would suggest having your triglycerides and liver enzymes checked.
-- By glendab | Reply | (1) replies | Private Message me
September 4th
2007
7:24 AM
I am 29 and i have been taking Toprol XL for 3 yrs. now and i was amazed when i seen what everybody had to say about this med. I had been on other meds for Anxiety, Panic Disorder. I was on Paxil CR and also Klonopin. I had gain 70 pds in 5 yrs and thought this is from the Paxil so i decided to come off of that and the Klonopin. Well, I'm still taking the Toprol XL and i am still haveing problems and it's just like alot of the same things i have read from other people on here. I am concerned about this med. And i hope everyone can find something that works great. If any one has any good luck with a different med please post it. I'm looking for a different way to deal with the rapid heart rate without all the nasty side effects of Toprol.
-- By plumcrazy0527 | Reply | (2) replies | Private Message me
September 3th
2007
5:43 PM
i so happy to have found this forum. i'm 47 was given 25mg of Toprol XL by doc for high blood pressure approx 9 weeks ago. also have history of panic attacks and rapid pulse rate and have been under alot of stress. first week on med, found my B.P. dropping too low 90's/50's, feeling dizzy and extremely tired in the middle of the day. called doc and was instructed to keep taking it, i'll get used to it, and don't make sudden movements!!! i didn't take his advice and cut pill in 1/2 to 12.5mg. then got extreme muscle and joint aches (a feeling very much like lyme disease) this was accompanied with profuse sweating upon minimal exertion and just no energy and shortness of breath even during an easy moderate walk. i think my heart beat has become more irregular. 2nd month into this low dose noticed chest pains so i tried the pill every other day. this weekend got the scare of a lifetime, however, got out of bed and entire left side (arm leg and foot) were numb. i had a major panic attack. this stuff is poison. i haven't taken a pill since. i'm going to find a different doctor this week (a D.O./MD) and hopefully devise a hollistic approach before i try another drug. ps also weight gain, but that's seems to be the least of the bad side effects.
-- By ginny100 | Reply | (1) replies | Private Message me
August 20th
2007
11:09 AM
HI IM A 3O YEAR OLD MALE IVE BEEN ON TOPROL 50MG FOR2 1/2 YRS.I WAS PUT ON IT BECAUSE OF A BUNCH ON PANIC ATTACKS I HAD IN A WEEKS TIME WHICH GAME ME A RAPID HEART RATE AND ALSO THEY TOOK ME OFF MY NORMAL BP MED AND SAID TOPROL WOULD HELP.WELL MY HEART RATE IS FINE AND BP IS GOOD BUT I HAVE CHANGED SO MUCH DURING THIS TIME IVE GAINED LIKE 30 LBS I DNNT FEEL DOING ANYTHING CONSTANTLY TIRED,I HURT IN MY BACK,HAVE HEADACHES,I JUST WANT TO BE MYSELF AGAIN...IF TOPROL IS DOING THIS I WANT OUT!HOW CAN ISTOP IT ON MY OWNWITHOUT HURTING MYSELF
-- By mikegrewmz | Reply | (1) replies | Private Message me
August 19th
2007
8:06 PM
I'm a 56 year old woman. 5'4" 116. Very fit .Have hypothyroidism and take Synthroid.. Was diagnosed with high blood pressure (which I beleive is due to a too high dose of Synthroid) Was prescribed toprol, just 25 Mgs. Wow!! Was that a bad experience. With the first few days of taking it, began the Foggy brain, dizziness, no ability to concentrate.. no energy.. Head aches, joint pains. Complete lack of interest in doing much of any thing including sex!. Have became almost reclusive because I didn't feel confident interacting with people (I'm a VP of Sales.. not good for my job)! I was bumping into things.. Felt like I was on another planet.. Thought I was nuts... Great to have found this site Also.. Have gain 5 pounds that are not falling off since I stopped this med on my own after only 10 days.. YIKES! Who does this stuff work well for?
-- By tgamble | Reply | (2) replies | Private Message me
August 15th
2007
8:57 PM
I am a 38 year old female and was put on Toprol XL for anxiety/rapid heart beat/stress. I have experienced weight gain, hair loss/thinning, tiredness, walking up/down a flight of stairs takes all the energy I've got and I need to sit and catch my breath, memory loss, loss of sex drive, gas/bloating problems, lack of activity due to fatigue. After I began reading these comments I can't believe that all the symptoms I'm having is due to this medication. As I was reading everything was coming back to me and I kept saying to myself, "That's exactly how I feel!" Just like most of these people! I'm not alone! Thank God for these posts! I'm going to stop taking this medication, gradually of course. I'll have to deal w/my anxiety/stress in other ways.....Prayer!
-- By jls0169 | Reply | (2) replies | Private Message me
August 8th
2007
11:06 AM
I've been on TOPROL-XL( 50 mg) for about 18 months now. Gained 25 lbs. Lack of interest (consistently) in getting much done. I had an aortic valve replacement 12 years ago and they were recently concerned about an enlargement of the aorta-so they wanted the Toprol to reduce the blood pressure further. Its keeping the pressure steady but not a huge decrease. When I discuss the side effects- they smile beningly. I'm having difficulty with digestive tract issues, also, which seem to be connected with weight gain. Other than fluuid retention- anybody know WHY this cuases weight gain? Anybody had any luck switching to other medications??
-- By hilltool | Reply | (1) replies | Private Message me
July 23th
2007
11:44 AM
I have been taking toprol xl for approximately 9 mos. It was givien to me for rapid heart beat. My dosage has been doubled twice so that I am on 50 mg. I hate this medicine. I still have some rapid heart beat, I wake up every two hours at night, my legs hurt, and I have gained 20 lbs. I also wonder if it is this medicine that makes me sweat profusely. When I am doing yard work, or anything else in the summer heat, the water just pours off of me. I have never been a heavy sweater and I am out of doors all of the time. I want to get off of this stuff. Can I wean myself off by lowering the dosage a week at a time?
-- By ranqueen | Reply | (4) replies | Private Message me
July 19th
2007
7:08 PM
I have been on toprol-XL for aprox. 1 + years. I chose to take this medication at night because of massive headache's. I also have most of the symptoms that everyone on this site has. I am going to stop this medication immediately. Have no clue how I am going to feel or what the concenquences are going to be. Hopefully no more massive headache's, and rapid weight loss. those are my two complaints regarding this medication. Thank you for this space to speak my peace. Patricia age 61
-- By ralloctap | Reply | (2) replies | Private Message me
July 16th
2007
11:43 AM
My wife, Cathy a 52 year old beauty just started taking Topro-XL and what a major difference in her mood. She is currently complaining of being overly tired, lack of concentration, memory loss or attention to detail has slipped. She has also experienced an increase in weight gain or water retention. In either case, it has been extremely hard for her to loose this weight. She has always been extremely fit and athletic, but lately she has a lack of interest in most activities. Since she has been taking this drug, I have encouraged her to spend more time meditating (with me), exercising deep breathing excercises, which seem to reduce her stress level. Since we have been doing this type of excercise, she has cut her perscription of Toprol in half. Soon we hope to be completely off this drug. More to come!!
-- By jandcgarner | Reply | Private Message me
August 31th
2009
11:26 AM
I am taking the Metoprolol generic and have mixed reviews, although I don't think that any of my side effects are life treating. My greatest complaint is insomnia. Most nights I get 4-5 hours of sleep. I also have the itching(hives), and sometimes numbness in my arms. I do feel much better since starting on this med in May, and my blood pressure is normal after being sky high. I can live with the hives, the insomnia is irritating, and my menstrual cycle was horrid before, and is now worse, 8 days out of every 27. Hopefully menopause is coming soon. I am taking 1 25mg tablet twice daily. My BP was out of control before starting any meds, so I will live with the side effects. I haven't noticed any weight gain, actually lost 14 pounds since starting it, but that could be the results of a low fat, low cholesterol diet too.
-- By jadegreen | Reply | Private Message me