August 4th
2009
5:47 AM
Hi All, Hope everyone is holding up well. I've been on warfarin for year and a half now and like most of you i find it has changed my life a lot. I'm only 22 and i hate taken warfarin. I have gained weight and feel depressed. The thing that scares me the most is that i was sick at the weekend and i found there was blood in my sick!!! Has this ever happened to anyone before as it scared me a little.
-- By kelly2009 | Reply | (1) replies | Private Message me
May 18th
2009
12:12 AM
I am 72 years old and in 1995 I had an artery blockage and had angioplasty.Upon my release from the hospital I was put on several prescriptions, beta blockers, cholesterol, Aspirin, Vitamins, etc. which I had been taking regularly for 13 years without any problems. In 2008 after having chest pain and going to the hospital my heart doctor advised me I had Atrial Defibrillation and put me on Warfarin and also told me to stop taking all the vitamins I was using along with my daily aspirin dose and one of my prescriptions. Since then I have had constant shoulder and muscle pain in my arm and leg. I have had several treatments by a chiropractor and several physical therapy treatments and the pain has not subsided. My memory has gotten worse also however I thought that was due to my age until I read some of the above side effects of Warfarin. I definitely have a lack of energy and also changed my diet due to the Warfarin. I have informed my heart doctor about the problems and he advised it is not due to the Warfarin. I don't agree with him after reading all the posts, but I am not a doctor. I will continue my prescribed dosage and Pt/Inr tests as schedule for a while, but if my pain etc doesn't get better I will probably do like the lady's posting and stop the warfarin on my own.
-- By xnjcop | Reply | (4) replies | Private Message me
May 4th
2009
4:23 AM
I'm 21 years old and I had a PE December 2008 (a week after my birthday) and spent the Christmas holiday in the hospital. They don't know what caused it. I started out doing lovenox shots (which was horrible) and then switched to Warfarin. I have not been able to stabilize my INR and I've had to go to get it checked at least every other week for 5 months. It's so draining. At first I did everything by the book as far as eating right, not drinking alcohol, not shaving my legs but honestly I'm getting fed up. I'm tired of having to restrict my diet so much and be tired and depressed ALL the time. I started shaving with a razor again a few months ago bc the electric one does nothing. I also go out to the bars with my friends a lot more but it's so hard to be a new 21 year old in a college town. I want to be like all my friends and go out and have fun without having to think about the consequences.
Supposedly, I'm finding out on June 17 whether or not I'll be on warfarin for life. Sometimes I think that if that is what the doctor says, I will tell him no! I just don't think I can do this forever. It doesn't get easier and none of my friends understand. They don't know how bad I wanna cry every time they say "At least you are alive." Give me a break...
May 1th
2009
3:06 AM
I'm 52 and I've been on Warfarin for a year and a half after having a mechanical aortic valve replacement performed in China, with an American titanium valve. I went through some serious episodes of blood thinness, then moved from northern China to SE Asia. 10 months after being here, I continue to work long days, but my energy is all over the place. When thunderstorms come in (daily) I have migraines, but this may be due to head injuries years ago. The main problems for me are up and down episodes of energy, and when the energy is low, I go pale. Pain in my knees and feet when I don't walk enough (maybe an hour sitting), or walk too much (maybe an hour walking) and very rarely what I think is something like aphasia -- the right words don't seem to come out on rare occasions -- maybe too many languages crawing in my head :). I used to walk an hour and a half per day -- not any more. Blood is on the thick side -- surprising because the diet her is very low fat. I want to get back into walking, get my strength back. I also have heard of socks that help in blood circulation. If I had a name or a brand, I could probably find the product in Thailand. Any idea, thoughts? I'm very frustrated.
-- By laowai | Reply | Private Message me
March 14th
2009
2:16 AM
I am 37, and developed a DVT in my left calf possibly due to birth control pills. I was tested for Factor 5 Leiden and since I was positive that may have been a contributing factor as well. Waking up in the middle of the night and first thing in the morning with excruciating pain was a daily occurrence and finally after 2 weeks of Lovenox injections and warfarin the pain subsided. I still experience post thrombotic pain in the back of my leg three months after starting the medication. My INRs are inconsistent and my doctor keeps changing my dosage. I have been avoiding all food that that can interact with the meds, it is extremely irritating. I have been doing an hour of low impact exercise daily and am looking forward to when I can finally go jogging and increase my cardio workouts. I can't wait till I can finally be off the medication it affects everything I do.
-- By anita72 | Reply | (1) replies | Private Message me
August 14th
2008
12:00 PM
Last week I had an issue with my INR - it has always been unstable, but this time was weird. My INR had been 6 and so I stopped the warfarin for 4 days, and went back on my regular 2 mg dose. Then we went on holiday to Washington DC for a week. 3 days in, my pee was the colour of cherry kool aid. Went to the local hospital (thank god for travel insurance). My INR was 7.89 - In the US this is considered critical and I was admitted, and treated with Vitamin K and 2 units of plasma. Within 8 hours my INR had dropped to 1.8 - now too low. The next day down to 1.25, and a week later I am still 1. I am taking fragmin now until I can get my INR theraputic again but Fragmin shots are even worse than warfarin.
An ultrasound showed now issues with my bladder or kidneys, but I do not understand why I was bleeding.
Guess that this just shows the importance of regular checking of INR levels while on warfarin.
-- By fiona | Reply | (1) replies | Private Message me
May 11th
2007
12:48 PM
My second run in with a blood clot resulted in passing out on my way to pick up my 8 yr old daughter and being rushed to the ER because of a PE (near death), I'm thankful to be alive however (no reason for PE and being on coumadin for the rest of my life) I feel so tired now, I don't want to go to work, I can't concentrate, I suffer from dizzy spells, I'm always hungry (weight gain), nausea sometimes. before passing out I was working out, doing Taebo, the balance ball thing, walking. Now I feel like I'm and old woman. I'm 32 yrs old and taking #5 coumadin and I feel so bad the majority of the time and yes the doctors say "it's shouldn't be the coumadin" but I think it is my whole world has changed and I'm just trying to get back to being the fun, outgoing, active me. I miss myself so much, its like I'm depressed. I MISS MYSELF.
-- By lisha | Reply | (3) replies | Private Message me
September 9th
2006
6:51 AM
MY HUSBAND HAS BEEN ON WARIFIN FOR EIGHT YEARS AND HAS EXPERIENCED ALL OF THE FOLLOWING
COLD SWEATS
(SHORT TERM) MEMORY LOSS - A BIG DIFFERENCE LATELY
DOUBLE VISION
BLURRED VISION
SHADED VISION
EXTREME SUDDEN HEAD ACHES
NAUSEA
FATIGUE
DIZZY SPELLS
LOSS OF BALANCE
POSSIBLE TIA'S
AND MOST RECENTLY A BIG ONE -- LIVER DAMAGE
(SIGNS OF WHICH ARE ENLARGED LIVER, YELLOW SKIN AND EYES, JANDICE, THROWING UP, -- BASICALLY THE SAME SYMPTOMS OF HEPATITUS -- BUT THE HEPITITUS TEST WILL COME BACK NEGATIVE.
ALTHOUGH NO eR OR DOCTOR WILL SAY THAT ANY OF THESE ARE RELATED TO BEING ON WARFIN
HOWEVER, LIVER DAMAGE AND JANDICE ARE LISTED AS SIDE EFFECTS
-- By candicelarsen | Reply | (2) replies | Private Message me
October 31th
2009
1:58 PM
I am a 48 year old female with a-fib. I am not overweight...just started falling apart since now I am menopausal. I've been on Warfarin for 6 weeks. My INR has hardly moved. I'm now on 8 mg and have my INR test on Monday. I started at a 0.9. Now I'm at 1.20 and have been there for three weeks in spite of upping the warfarin. I've not changed my diet except to exclude greens and green tea when I began the therapy. Everything else is consistent.
I just started exercising again a week ago. Something I haven't done in five years since I lost my sister. I bought a Total Gym and enjoy it. It has helped me get some energy back, has helped alleviate some of the mental fog, and has lowered the incidence of anxiety attacks. (I've been getting anxiety lately...since the mental fog and memory lapses...that bothers me since I love to read and write and the mental fog seems to be taking the joy out of it now.) The reason I decided to start strength training again is because of the joint pain I have been experiencing lately. I didn't have it before warfarin. I do now. Only one joint, though. The strength training does help, but every once in awhile, that sharp pain comes back to visit. It's just a little less now.
I plan to tell the doctor that I have begun strength training again. Not just because it's good for me and my heart, but it seems to help with the side effects of menopause and warfarin...without adding another drug like an antidepressant.
Warfarin...I believe is a life saving drug. BUT, I have to do my part too.
BTW, if I didn't have triple thick hair, I would complain about hair loss. Right now, it's a non issue for me. Just saves money at the hair dresser.
-- By karenwest1961 | Reply | (1) replies | Private Message me