Warfarin Sodium and dizziness

I too am on warfarin for life. I was diagnoised with lupus anti coagulant after they found a clot in my right leg. I was having no symptoms in my leg ,went to the er for hurting in my chest and left arm. was started on lovenox shots 2 times a day and coumadin. I too am experiencing joint and muscle aches and dizziness and feel extremely tired all the time. But I thank God every day they found my clot before it moved. And that they found the clotting disorder. I hope you all get better soon .. God bless you all. P.S. This medicine scares me very much, But so does the alternative!!!!!

I started coumadin 2 weeks ago, for a clot in my leg. I'm dizzy and lightheaded. I guess I'll be on it for at least 3 months. I've had abdominal surgery and a wrist fracture repaired surgically in the last 6 months and have had breast cancer (surgery, chemo, radiation) 4 years ago. I'm on Arimidex now. All of this is to explain possible underlying causes which I am investigating.

Dizziness seems to occur within an hour of my taking it - in the morning, but subsides by the afternoon. I'm thinking of switching the time I take it to the night - before I go to bed - maybe I can be dizzy in my sleep then and wake up with some sense of normalcy. Any comments?

I recently delivered a healthy baby girl (Feb 9th) in which 1 week later I developed a blood clot on my brain and was hospitalized for 1 week after experiencing 4 seizures. They told me it was pregnancy related and I would be on warfarin for 6-9 months until the clot dissolved. I too am experiencing: fatigue, extreme dizziness, light headedness, I am seeing spots all of the time, I am getting leg cramps and foot cramps a lot, I feel really weak, and just plain old. I will be 37 years old this July, and I feel way too young to be feeling this way all of the time. I can not handle going to the lab 2-3 times every week for blood work, my veins are collapsing and bruising really bad. I cry every time I leave, my husband must think I'm such a loser. It has been almost 3 months now and I just got my first period since my daughter was born. I thought I was going to bleed to death. My husband had to watch me around the clock to make sure I didn't have to be rushed into emergency. This sucks....I'm trying to remain strong, and doing lots of praying these days....Thanks for letting me share my story.....

Im 23 years old. One of the youngest people that is on coumadin I got sick when I was 22. I developed blood clots on my liver and stomach. Due to blood deficiency. I was told by the doctor it was inherited by one of my parents. My side affects are very fatigue, tired for no reason, skin blotches, slow memory, I get tired after 10 minutes of running like Im ready to collapse. Im always dizzy. =( I feel very fragile. I do get depressed sometimes because I feel like im very young at my age for this to happen. I found out I have to be on coumadin for the rest of my life. But we all move on....

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Hopefully someone can share there idea's or another source of help.

I am a 43 year old female, I got a couple of clots in my left leg, caused by taking birth control. I was taking the bc to control my menstrual cycle, I took it against my better judgment, even though my dr. said it was not a high risk since I didn't smoke. Well that wasn't true.
The side effects are extreme dizziness, I went to walk down a set of stairs recently and almost fell down them, That would have been tragic, Thank god my friend grabbed my arm. I know for a fact that it is a side effect from the coumadin because prior to this dvt I had no dizziness, as a matter of fact I was very healthy, I exercised 4 times a week, boxing, weight lifting ect. I was "NORMAL" I can't wait until the doctor says ok, stop taking the blood thinner. I want my life back. I just want to get back to the way I was before my dvt.

Wow - I'm so glad I found this site. I am 43 years old and had a PE last August in both lungs - every test imaginable has been done and still no idea why I got the PE. I should be on Warfarin for the rest of my life but I can't stand it much longer. I have headaches every day, cold sweats, dizziness, can't remember things, can't concentrate at work and the WEIGHT GAIN! My doctor just tells me to eat healthier but watch those leafy greens! I get no support at all from her. She also put me on Cipralex for depression and I'm now considering going off both medications and seeing a Naturopath. I'm sick of feeling like I'm 80.
L.

I was taking warfarin for about 2 months 8 mg daily due to a blood clot in my left arm, i also have witnessed headaches, dizziness, always tired and fatigue. I also told the doctor about all this and he said it's not the medicine, I don't know what else it could of been because i wasn't taking any other medication. my life remained the same as previous with the exception of the warfarin. Anyway, i discontinued taking the medication because it was killing me to take it. I will now have to take my chances.

I had open heart surgery August 23rd 2006 for a conginital heart defeat (Aortic Valve replaced with mechanical St Jude valve). I wanted a bio valve but Drs insisted I should have the mechanical valve because of my age (45 at the time).

Prior to my heart surgery I was a performer, singer/songwriter/actress/comedianne and I loved what I did. It was my life. Now, after 2+ years post-op and on Warfarin (7.5 mg daily for life) I feel like life has ended and I'm just a walking dead person. The effects I feel daily are as follows...

Dizziness
Severe Headaches
Blurred vision
Memory Loss
Fatigue
Weight Gain
Trouble concentating
Fluttering effect in my head/ears- Hard to explain
Hair loss
Unexplained pains in chest & left side of my body
Unable to sleep well
Tiredness- even when I've done nothing to be tired for
Nausea
Gas & Diarrhea off and on
teeth pain- Like I've drank something very cold
feeling in my head similar to a brain freeze- like you ate ice cream too fast
Night bleeds in my month- wake up with a mouth full of blood daily
What do think, is that enough??

I'm going in tomorrow for a cat scan because the headaches have been so bad they feel I need to be checked for brain tumor and/or internal bleeding. When I tell the Drs I think this is due to Wafarin they pratically laugh in my face as if to say, "Silly silly woman, don't be foolish! We know whats best for you. Remember, we saved your life!" Really? Did you?!

I want nothing more than to get off this rat poison and regain my life, but to do so could mean a stroke or heart attack. I would go under the knife again to have the mechanical valve removed and replaced with a biological valve, but do you think my insurance company (Kieser) would pay for a "silly" thing like that? Right!

Welcome to the greatest country in the world!

I'm going to start a website to help people like us. I want your stories, please send me your info, together we might make a change, what can it hurt to try? Email me ******

B.

Ive been on Warfarin for 4 months after being diagnosed with a blood clot in my leg. Cause of clot is really unknown. I was on 13m and last week was told I no longer had to take it because my levels have been high. I stopped taking the warfarin and my side affects since starting it has been the following. Joint pain in my hip and arms, swelling and retaining fluid, sharp pains that jolt thru the leg randomly, experienced some nausea and dizziness the first few days after not taking the drug. since Ive stopped the warfarin 5 days ago it feels like the clot is returning in my leg. Is this possible?

I suffered a Pulmonary Embolism December of 2005. Following, I found out that I have Factor 5 (later we found out that all my siblings have it as well as my father). I have been on Warfarin since. I have been told by a few doctors that I will be on it for life. I have also been told by other doctors that I should have had filters put in my lungs so that I don't need the Warfarin anymore. Prolonged use of Warfarin is terrible for you, they say. At the time I started taking Warfarin, I was 39 years old. After 6 months of use I began to loose my hair as well as the curls diminished. I also developed discoloration on my upper lip, face and forehead. 8 months later I was told that I was pre-menopausal...my hormones were changing....night sweats, dizziness, nausea, severe abdominal pain, digestive problems, bowel problems, severe weight gain. They then told me that I had Vertigo and that they were not sure why it began. I am now suffering severe memory problems. When watching a movie, if a commercial comes on I forget what I am watching. I can't read without nausea and dizziness. I get headaches, terrible leg and arm pain. My concentration is very poor. I can't remember what happened the previous day or who my customers are. I don't know what to do. If I stop taking it I will run the risk of another horrible embolism (20% survival rate). My children, 12 and 15, have already lost their father to cancer. They are very concerned of loosing their mother.

I have been on Warfarin since Sept 2004 when I had multiple blood clots in both lungs. Since then I have had two more PE's (one with a therapeutic INR) and a blood clot in my left arm (INR was also therapeutic). Genetic tests show nothing.

Since starting Warfarin I have had
- dizziness issues,
- eternal extreme fatigue
- hair loss
- short term memory and cognitive issues,
- joint pain and
- head aches all the time. I think the headaches are the worse since I can't take any NSAID's for them.

I have lost weight and push myself to exercise because it is supposed to make you feel better, right? Well not yet. I keep waiting.

I have not been able to return to work and worry about the long term implications of this.

Many times I have wondered about my sanity and if I was imagining all of this, so finding this forum at least lets me know that there is a possibility that it is not all in my mind.

I have been seeing a psychiatrist to help me work through the almost dying 3 times thing, but it is hard to accept since no one knows why I throw the clots. My INR is not stable in spite of close monitoring of Vit K and other drugs, and my INR must be taken twice a week.

I had a Vertebral Artery Dissection and was put on 5mg of Warfarin a day. Since then I have felt a constant dizziness/lightheadedness that wont go away. It's not so bad that I can't deal with my day, but more of an annoyance. It kind of feels like I just drank a beer really fast and now I'm buzzed.

I had a PE 2 weeks ago,ended with cloths in both lungs,had injections for first week,now just on warafin 10mg daily.Only yesterday I thought I was going to black out,like a huge rush thru my body,and always feel light headed,like most the doctor said these are not side effects of warafin,but prior to taking warafin I never had dizzy spells.Just like to thank all you people for sharing your thoughts,as I feel now that at 42 I have to live like an 80yr old,and its comforting to know im not the only one.

I take 7.5 mg. of warfarin daily, and have been for about 5 years. The biggest problem I have is dizziness, the inabilty to concentrate, vision, and waking up at night, everynight. I am a healthy 54 year old male, and have regular test run twice yearly.

lightheadedness, dizzyness and headaches

and painful toes

Thank God I'm not the only one! I was actually relieved when I found this site. I was an active 60 yr. old female until hit with blood clots in lt. leg that went to lungs. I've been on Warifin for almost four months these are my side effects: extreme fatigue, back and leg pain, over-all weakness,decrease in flexability of limbs, dizziness, vision changes even from day to day, memory loss( I've always been known for my great memory). I did mention these to my hemotologist last month and he sent me to ER. Cat scans of head, chest and abdomen all were normal. Every doctor I have seen says Warifin is not to blame but all this has developed since I began taking it.

Dizziness and Headaches

Extreme lethargy, exhaustion, difficulty concentrating, occasional dizziness, anguish, headaches after taking Warfarin for 4 months, average dose 7.5 to 8.0mg daily.

Doctor and nurse said problems might be due to Tramadol I was taking at same time (for arthritic pain), but when I stopped the Tramadol for two weeks, there was no change. Doctor and nurse said NOT a side effect of Warfarin, but when I stopped taking Warfarin for a week, the symtoms went away and my family saw right away that I was "back to normal".

I am very upset that these very distressing side effects of Warfarin are not stated on packaging or by medical profession. I know of two other cases similar to mine in the UK.

Extreme lethargy, exhaustion, difficulty concentrating, occasional dizziness, headaches after taking Warfarin for 4 months, average dose 7.5 to 8.0mg daily; doctor and nurse said NOT a side effect of Warfarin, but when I stopped taking it for a week, the symtoms went away and my wife saw right away that I was "back to normal".

Doctor and nurse said problems might be due to Tramadol I was taking at same time, but when I stopped the Tramadol for two weeks, there was no change.

I am very upset that these very upsetting and distressing side effects of Warfarin are not stated. I know of two other cases similar to mine in the UK.

Could Warfarin effect memory or the ability to think clearly?

extreme light-headedness/dizziness