August 13th
2008
1:16 PM
I stumbled onto this site while trying to find a reason for these headaches I get sometimes for no" apparent" reason. Imagine my surprise to find your testimonies about your lives on warfarin sodium.At 38, I had surgery to repair a congenital defect of the aortic valve and had to have a hema-shield graph to repair an aneurysm of the aorta. That was in Oct.2002. Warfarin has been a part of my life since then. I was also put on anti-depressants because my family Dr. thought I was depressed since I repeatedly complained of not feeling well.(I took myself off the anti-depressants a couple of years ago.) Extreme fatigue , serious memory issues, thinning hair,dizzy spells and numerous other ailments continue to plague me.Add to that a large weight gain ...and, well, you get the picture. If anyone knows of an alternative to taking this "poison", PLEASE, PLEASE let me know. I just WANT MY LIFE BACK!!! I actually cried after reading this blog. As I explained to my husband, I suppose it was from the sheer relief of knowing I was not going insane!!!
-- By ndg | Reply | (6) replies | Private Message me
April 12th
2008
10:52 PM
I am 31 years old. I was first on warfarin when I was 15. I was on the BCP and a smoker as well. just 2 months of being on the pill I developed a DVT in my left leg. I was on the warfarin for about 2 years then came off. I reember being tired alot but that was it. Then again when I was 22 I developed yet again another DVT in my L leg.. as well as 3 PE in my lungs. I was prescribed warfarin and I was on that for 2 years .. was taken off due to dizzy spells. Now again I am on warfarin .. for the rest of my life. I have a genetic disorder for clots and had a mini stroke. By the grace of GOD I only have a limp in my right foot... the side effects I experiance now are dizzy spells, headaches, blurred vision, and muscle aches and spasms. If your docot is denieying these side effect they really just dont think its serious enough to take you off. All my doctors over the last 16 years have all told me of these side effects. What you eat and drink has alot to do with it and other meds you may be takeing. I am also on chantex and beleive the two together are to be the cuas se of my syptoms. I also experiance tingling for shor periods. I have been on it now for one week. My doctor told me once it is regulated to a point where I dont have to up my dosage or lower my dosage and I am pretty much at a steady dosage the side effect will cease, until then I think if you dont like your docotor and dont beleive hes looking out for you in your best interrest yo ushould find another one.... Thats important... you must have a docotor you can trrust and one whom will listen to you.
-- By pacheco31 | Reply | Private Message me
October 3th
2007
11:11 AM
I had a PE 2 weeks ago,ended with cloths in both lungs,had injections for first week,now just on warafin 10mg daily.Only yesterday I thought I was going to black out,like a huge rush thru my body,and always feel light headed,like most the doctor said these are not side effects of warafin,but prior to taking warafin I never had dizzy spells.Just like to thank all you people for sharing your thoughts,as I feel now that at 42 I have to live like an 80yr old,and its comforting to know im not the only one.
-- By shakeshaft | Reply | (3) replies | Private Message me
May 11th
2007
12:48 PM
My second run in with a blood clot resulted in passing out on my way to pick up my 8 yr old daughter and being rushed to the ER because of a PE (near death), I'm thankful to be alive however (no reason for PE and being on coumadin for the rest of my life) I feel so tired now, I don't want to go to work, I can't concentrate, I suffer from dizzy spells, I'm always hungry (weight gain), nausea sometimes. before passing out I was working out, doing Taebo, the balance ball thing, walking. Now I feel like I'm and old woman. I'm 32 yrs old and taking #5 coumadin and I feel so bad the majority of the time and yes the doctors say "it's shouldn't be the coumadin" but I think it is my whole world has changed and I'm just trying to get back to being the fun, outgoing, active me. I miss myself so much, its like I'm depressed. I MISS MYSELF.
-- By lisha | Reply | (3) replies | Private Message me
March 4th
2007
1:53 AM
Been on warfarin for little over a month. I have had occasional dizzy spells that seem to come out of nowhere, also fuzzy vision and erectile disfunction. Haven't read the latter from anyone else.
-- By h_brent_reese | Reply | Private Message me
November 2th
2006
9:49 AM
I am a 39 year old and have been on warfarin, 15mg a day, for four months. I feel slugish, have dizzy spells, and just can't focus. I also have memory issues and sometimes can't even remember family cell phone numbers. I had a PE while on vacation and also an infarction in my lower right lung(due to Birth Control Pill). I will be on blood thinners until next July. It is nice to know that others suffer some of the same side effects. I also expereince indigestion since I started taking the warfarin and was told by my doctor it is the food I am eating? Wasn't like this before the PE.
-- By mary.stapleton | Reply | (1) replies | Private Message me
September 9th
2006
6:51 AM
MY HUSBAND HAS BEEN ON WARIFIN FOR EIGHT YEARS AND HAS EXPERIENCED ALL OF THE FOLLOWING
COLD SWEATS
(SHORT TERM) MEMORY LOSS - A BIG DIFFERENCE LATELY
DOUBLE VISION
BLURRED VISION
SHADED VISION
EXTREME SUDDEN HEAD ACHES
NAUSEA
FATIGUE
DIZZY SPELLS
LOSS OF BALANCE
POSSIBLE TIA'S
AND MOST RECENTLY A BIG ONE -- LIVER DAMAGE
(SIGNS OF WHICH ARE ENLARGED LIVER, YELLOW SKIN AND EYES, JANDICE, THROWING UP, -- BASICALLY THE SAME SYMPTOMS OF HEPATITUS -- BUT THE HEPITITUS TEST WILL COME BACK NEGATIVE.
ALTHOUGH NO eR OR DOCTOR WILL SAY THAT ANY OF THESE ARE RELATED TO BEING ON WARFIN
HOWEVER, LIVER DAMAGE AND JANDICE ARE LISTED AS SIDE EFFECTS
-- By candicelarsen | Reply | (2) replies | Private Message me
March 26th
2009
11:19 AM
Thank you so much for this site... I thought I was alone and loosing my mind. I started on Coumadin in Dec 2008... after 3 months I am falling apart... I can't seem to get anyone to listen... I am tired and cranky, gaining weight faster than I can keep up... I have dizzy spells and headaches, nose bleeds and just an overall feeling of not being me... like said above me... I miss me. The symptoms are so similar to being depressed its hard to pull yourself out... its hard to explain to other people how you are feeling because your doctor continues to tell you it is all in your head... I am a mess.
-- By esqueishness | Reply | Private Message me