Warfarin Sodium and extreme fatigue

24 yr female diagnosed with PE and DVT. I have been on Warfarin since may of 08 and it has turned my world upside down. Weight gain (20lbs in 3 months), major hair loss, very bad acne, and memory loss. Not to mention i can't shave my legs or anything else for that matter with out getting major in grown hairs. I NEVER had any of these problems before. I am loosing muscle mass and feel as if I am a 70 year old woman. I don't know what to do but cry. The doctors keep telling me its not the medicine but I feel it is, my body is telling me it is. things are not easy, and it is affecting me I feel for the rest of my life.

I stumbled onto this site while trying to find a reason for these headaches I get sometimes for no" apparent" reason. Imagine my surprise to find your testimonies about your lives on warfarin sodium.At 38, I had surgery to repair a congenital defect of the aortic valve and had to have a hema-shield graph to repair an aneurysm of the aorta. That was in Oct.2002. Warfarin has been a part of my life since then. I was also put on anti-depressants because my family Dr. thought I was depressed since I repeatedly complained of not feeling well.(I took myself off the anti-depressants a couple of years ago.) Extreme fatigue , serious memory issues, thinning hair,dizzy spells and numerous other ailments continue to plague me.Add to that a large weight gain ...and, well, you get the picture. If anyone knows of an alternative to taking this "poison", PLEASE, PLEASE let me know. I just WANT MY LIFE BACK!!! I actually cried after reading this blog. As I explained to my husband, I suppose it was from the sheer relief of knowing I was not going insane!!!

I have been on Warfarin since Sept 2004 when I had multiple blood clots in both lungs. Since then I have had two more PE's (one with a therapeutic INR) and a blood clot in my left arm (INR was also therapeutic). Genetic tests show nothing.

Since starting Warfarin I have had
- dizziness issues,
- eternal extreme fatigue
- hair loss
- short term memory and cognitive issues,
- joint pain and
- head aches all the time. I think the headaches are the worse since I can't take any NSAID's for them.

I have lost weight and push myself to exercise because it is supposed to make you feel better, right? Well not yet. I keep waiting.

I have not been able to return to work and worry about the long term implications of this.

Many times I have wondered about my sanity and if I was imagining all of this, so finding this forum at least lets me know that there is a possibility that it is not all in my mind.

I have been seeing a psychiatrist to help me work through the almost dying 3 times thing, but it is hard to accept since no one knows why I throw the clots. My INR is not stable in spite of close monitoring of Vit K and other drugs, and my INR must be taken twice a week.

I, too have been losing my hair. I always said to myself, "I may not have much going for me but I do have good hair and good teeth." Now my scalp is showing, and I'm pretty bummed out about it. I'm also having nausea during the morning hours, and then headaches that wake me up from my sleep.

I am a 47 year old female. I had superficial blood clots in my left leg in Dec 05 and Nov 06. Developed a DVT in left leg and a superficial clot in right leg in June 07. Now taking 9 mg of warfarin (coumadin) a day. Suffering from extreme fatigue, heavy periods and I just discovered the hard way that warfarin makes you sensitive to the sun (got a severe sunburn on my face, forearms, hands and the top of my head, all places that I do not normally burn). Called the pharmacist and she said sun sensitivity is not a side effect. Went to several websites before I finally it upon one that did say that sun sensitivity is a side effect. My doctor did not tell me this and it is not a warning on the prescription label. Please be careful in the sun. Also, if you are a cranberry lover, I found several websites that said no cranberries in any form, juice, dried, herbal supplements, etc.

Symptoms which were not in existence prior to staring on warfarin although my doctors say they don't think it's warfarin I'm sure it is. I usually need to take around 9.5 to 10mg but my INR is never stable.
Side effects are extreme fatigue, fuzzy thinking, forgetfulness, hot rosy cheeks.

Thank God I'm not the only one! I was actually relieved when I found this site. I was an active 60 yr. old female until hit with blood clots in lt. leg that went to lungs. I've been on Warifin for almost four months these are my side effects: extreme fatigue, back and leg pain, over-all weakness,decrease in flexability of limbs, dizziness, vision changes even from day to day, memory loss( I've always been known for my great memory). I did mention these to my hemotologist last month and he sent me to ER. Cat scans of head, chest and abdomen all were normal. Every doctor I have seen says Warifin is not to blame but all this has developed since I began taking it.

Extreme fatigue, joint swelling/pain, esp. in hands, hips, knees., headache, forgetful, nausea, lightheaded/dizzy.
Also, food seems to have a sight different taste, anyone notice this?

I have been taking warfarin for 3 months and I am also experiencing headaches (every day) extreme fatigue, extreme pain in my legs and am finding it difficult to think clearly as well. Slurred speech too...