Warfarin Sodium and god

24 yr female diagnosed with PE and DVT. I have been on Warfarin since may of 08 and it has turned my world upside down. Weight gain (20lbs in 3 months), major hair loss, very bad acne, and memory loss. Not to mention i can't shave my legs or anything else for that matter with out getting major in grown hairs. I NEVER had any of these problems before. I am loosing muscle mass and feel as if I am a 70 year old woman. I don't know what to do but cry. The doctors keep telling me its not the medicine but I feel it is, my body is telling me it is. things are not easy, and it is affecting me I feel for the rest of my life.

Last week I had an issue with my INR - it has always been unstable, but this time was weird. My INR had been 6 and so I stopped the warfarin for 4 days, and went back on my regular 2 mg dose. Then we went on holiday to Washington DC for a week. 3 days in, my pee was the colour of cherry kool aid. Went to the local hospital (thank god for travel insurance). My INR was 7.89 - In the US this is considered critical and I was admitted, and treated with Vitamin K and 2 units of plasma. Within 8 hours my INR had dropped to 1.8 - now too low. The next day down to 1.25, and a week later I am still 1. I am taking fragmin now until I can get my INR theraputic again but Fragmin shots are even worse than warfarin.

An ultrasound showed now issues with my bladder or kidneys, but I do not understand why I was bleeding.

Guess that this just shows the importance of regular checking of INR levels while on warfarin.

i have been on warfarin since April 2008 when i had a clot in my left leg. since, i haven`t really had much going on until last week. i was rushed to the hospital by ambulance. i got dizzy and had a very cold wave rush up my body twice. when it was over, i couldn`t hear anything and my temples were tingling and my heart rate was elevated along with my bp. the er drs didn`t seem concerned with any thing that had to do with the dvt or the warfarin. their response???????? you drink too much coffee. WELL. i haven`t had a cup of coffee for almost a week, and have also quit smoking. i am still dizzy. my head feels heavy. i get little cool rushes that almost take my breath away, i don`t feel like ME. i feel like someone has taken over the me i knew. my family doctor has done liver, mono, hepatitis, b12, folic acid profiles, all negative. had a ct scan yesterday, normal. having an echocardiogram next week and having a holter monitor put on for 24 hrs to monitor my heart. i have done nothing but sleep since this episode. my husband is scared to death i`m gonna die during the night, he wakes up just to check on me. i haven`t been sleeping very well, as i`m afraid i`m not gonna wake up. i am only 40. i am not ready to let my life go to pot because of a drug that all the doctors insist is "safe". well i don`t know. call me stupid, but if its so safe, why do they kill rats with it????????????

Dealing leg pain and swelling fpr over 6 months - having 2 DVT test and 3 MRI's they finally found that I did have a DVT in my left leg and now I am taking Warfarin as of May 30th 2008. I now have severe joint pain, sore skin/sensitivity, my vision is going I can hardly read anything all of a sudden, so exhausted, sleeplessness - even after taking an ambien and getting some sleep, I can take a shower dry my hair and I am ready to go back and lay down because I am so tired. the doctor says thin blood does not carry oxygen as well so this is why I am tired. I am not anemic as I just had that checked. I can feel my muscles getting weaker. From reading what everyone else says it must be this drug, but I don't think I could live without it since my clot is so massive. I feel like my life will end soon I am getting weaker by the day...is this just my imagination? I know I am depressed but I do think all of the symptoms I am having is from the warfarin(besides the pain from the DVT which is still very painful)

I am a 33-year-old female. I was taking YAZ birth control. I woke up on a Friday morning with a bad cramping feeling in my left calf. By the end of the day, I was limping. By the middle of that night into Saturday morning, I woke up in such excruciating pain. I could not walk without help. I went to the ER. They ran an ultrasound and found nothing. They said I had a "pulled muscle" and sent me home. Went to my PCP on Monday. He said it was "phlebitis" and sent me home. He told me to return in 3 days. Did that. This whole time I told them my left foot was cold, the leg was discolored, and that I could not walk! Hello! I went back in 3 days, but this time he was finally alarmed when he couldn't find a pulse in my left foot (never checked that in the first place) and sent me back to the ER. The same jerk ran another ultrasound, and there was the clot. I've been on warfarin since February. In the beginning, I had TERRIBLE HEADACHES (which have since subsided). Now I am dealing with this: CONSTANT BODY PAINS (especially my back and ribs), OVERALL BODY SORENESS (kind of like when you have the flu), FATIGUE, DEPRESSION, ANXIETY, BLOATING AND GAS (I wake up with a huge painful puffy stomach every morning), CRAMPS (like having a period without one), sometimes DIARRHEA, STOMACH ACHES. When I reported the initial body pains to both the specialist and my PCP upon my follow-up visits after being discharged, both looked at me like I was crazy or making it up or something. I came home in tears after seeing the specialist. I thought he would be the one to know about this stuff! Instead, he made me feel like an idiot or crazy person. I was totally insulted and cried on the way home. I am so annoyed and have lost all faith in doctors. They should all have to retake their Anatomy and Physiology courses so they can be reminded what their ears are for. Why don't they listen to their patients? This is insane! I am so disgusted with this whole mess. I just want to give up.

Been on 5mg Warfarin for past 2 months. Developed severe headaches, resulted in MRI brain scan. Thank God all clear. Severe hair loss and dry coarse hair, sour smelling stools, weight gain.Fatigue. But Doctors and specialists reassure you, none are from the Warfarin!!! DON'T THINK SO!

I have been on Warfarin since Sept 2004 when I had multiple blood clots in both lungs. Since then I have had two more PE's (one with a therapeutic INR) and a blood clot in my left arm (INR was also therapeutic). Genetic tests show nothing.

Since starting Warfarin I have had
- dizziness issues,
- eternal extreme fatigue
- hair loss
- short term memory and cognitive issues,
- joint pain and
- head aches all the time. I think the headaches are the worse since I can't take any NSAID's for them.

I have lost weight and push myself to exercise because it is supposed to make you feel better, right? Well not yet. I keep waiting.

I have not been able to return to work and worry about the long term implications of this.

Many times I have wondered about my sanity and if I was imagining all of this, so finding this forum at least lets me know that there is a possibility that it is not all in my mind.

I have been seeing a psychiatrist to help me work through the almost dying 3 times thing, but it is hard to accept since no one knows why I throw the clots. My INR is not stable in spite of close monitoring of Vit K and other drugs, and my INR must be taken twice a week.

Had a PE in both lungs 10.07 on warfarin 5mg a day, very sore ,aching joints, tried, HOT FLASHES day and night , just tried hard to find excitement. I'm 46yrs was very active, had lots of engery. Can't drink alchol. Feeling very old. Carpal tunnel worse in elbows feels likes the needal goes right threw the bone.