February 3th
2008
5:16 PM
I have been on Warfarin since Sept 2004 when I had multiple blood clots in both lungs. Since then I have had two more PE's (one with a therapeutic INR) and a blood clot in my left arm (INR was also therapeutic). Genetic tests show nothing.
Since starting Warfarin I have had
- dizziness issues,
- eternal extreme fatigue
- hair loss
- short term memory and cognitive issues,
- joint pain and
- head aches all the time. I think the headaches are the worse since I can't take any NSAID's for them.
I have lost weight and push myself to exercise because it is supposed to make you feel better, right? Well not yet. I keep waiting.
I have not been able to return to work and worry about the long term implications of this.
Many times I have wondered about my sanity and if I was imagining all of this, so finding this forum at least lets me know that there is a possibility that it is not all in my mind.
I have been seeing a psychiatrist to help me work through the almost dying 3 times thing, but it is hard to accept since no one knows why I throw the clots. My INR is not stable in spite of close monitoring of Vit K and other drugs, and my INR must be taken twice a week.
-- By fiona | Reply | (6) replies | Private Message me
August 23th
2007
5:14 AM
I have been on Coumadin for about 2 months now after surviving a cerebral sinus venous thrombosis (blood clot on my brain - akin to a stroke). I am s 34 yo female who races triathlons and leads a very active healthy lifestyle. My side effects seem to be mild compared to what I read of others. I am on 5mg/day, except 1 day a week I take 10mg. My INR has been pretty stable. The side effects I notice are mild forgetfulness which I am hoping goes away as I start my 3rd year of law school next week! I also had some weird skin peeling on my hands, but that has subsided. I seem to urinate more often than normal and soda pop tastes weird to me now. Anyone else experience the frequent urination and/or taste issues?
Thanks!
Dana :)
June 25th
2007
1:52 PM
May 11th
2007
12:48 PM
My second run in with a blood clot resulted in passing out on my way to pick up my 8 yr old daughter and being rushed to the ER because of a PE (near death), I'm thankful to be alive however (no reason for PE and being on coumadin for the rest of my life) I feel so tired now, I don't want to go to work, I can't concentrate, I suffer from dizzy spells, I'm always hungry (weight gain), nausea sometimes. before passing out I was working out, doing Taebo, the balance ball thing, walking. Now I feel like I'm and old woman. I'm 32 yrs old and taking #5 coumadin and I feel so bad the majority of the time and yes the doctors say "it's shouldn't be the coumadin" but I think it is my whole world has changed and I'm just trying to get back to being the fun, outgoing, active me. I miss myself so much, its like I'm depressed. I MISS MYSELF.
-- By lisha | Reply | (3) replies | Private Message me
May 5th
2007
8:57 AM
SINCE BEING ON WARFARIN , I HAVE EXPERIENCED MUSCLE CRAMPS , REALLY BAD JOINT PAIN , AND DRY COUGH . YES , IT COULD BE MY AGE ( 79) - - AND THEN AGAIN IT COULD BE WARFARIN . IF I DISCONTINUE THE WARFARIN , IS MY CHOICE BETWEEN A HEART ATTACK , OR THE REST OF MY LIFE AS A CHRONIC INVALID ?? IS THERE A THIRD OPTION ?
-- By janelen | Reply | (1) replies | Private Message me
April 23th
2007
12:23 AM
My 79 YO father began taking Warfarin following a TIA 2 years ago. It has caused him some fatigue but lately he has been experiencing quite bad swelling of the feet and ankles and also a lot of joint pain not present before the medication. Are there any alternatives to this medication?
-- By phendriks | Reply | Private Message me
June 29th
2008
12:39 AM
Dealing leg pain and swelling fpr over 6 months - having 2 DVT test and 3 MRI's they finally found that I did have a DVT in my left leg and now I am taking Warfarin as of May 30th 2008. I now have severe joint pain, sore skin/sensitivity, my vision is going I can hardly read anything all of a sudden, so exhausted, sleeplessness - even after taking an ambien and getting some sleep, I can take a shower dry my hair and I am ready to go back and lay down because I am so tired. the doctor says thin blood does not carry oxygen as well so this is why I am tired. I am not anemic as I just had that checked. I can feel my muscles getting weaker. From reading what everyone else says it must be this drug, but I don't think I could live without it since my clot is so massive. I feel like my life will end soon I am getting weaker by the day...is this just my imagination? I know I am depressed but I do think all of the symptoms I am having is from the warfarin(besides the pain from the DVT which is still very painful)
-- By jjatl | Reply | (2) replies | Private Message me