September 28th
2008
6:10 PM
Hello! After a 3 1/2 day stay in the hospital for atrial Fibb. which has since gone away and was likely cuased by extreme low blood potassium and sodium which has since been brought to all but normal levels.. I was taken off of Plavix a blood thinner which I had been taking since a heart attack in 2003, and put on the Warfarin, that was on June 22nd that I began taking Warfarin/Coumadin!. About 2 weeks ago I began having neck and shoulder pain, then slowly side and back pains deep down in the muscles. It is much worse in laying down position, have a hard time to sleep well, and if I trun or move while lying down the pain is very intense. I am going to assk the Dr. to take me off of the Warfarin and put me back on Plavix so I can see it it is the reason for the pains. I am quite sure it is! Please reply if you have the same symptoms as I do! Thanks, B.E.
-- By myself | Reply | (1) replies | Send Private Mail
May 26th
2008
2:42 AM
I have been on Warfarin for two years now and on it for life, i had a blood clot in my left leg. While i was reading everyone's side effects, it was like i was writing it myself...I experience the same symptoms........Foggy mind, short term memory loss (i even have a notebook now wherever i go now), fatigue, thirsty all the time, headaches, strange sore sensations in my legs/body especially when its cold.....all of which i am told Warfarin has no such side effects and that im imagining it.........i have been told this over and over and over. Im soooo glad im not crazy lol and that there are also people out there that are experiencing the exact same stuff that i am.
-- By lisssa | Reply | (2) replies | Send Private Mail
March 2th
2008
5:00 PM
I have been on Warfarin for 6 months, and have had a lot of the side effects that I have been reading here since I found it. I thought I would chime in now. I was on Prednisone for Colitis when I was rushed to ER with a clot in between my eyes. I was started on Warfarin when I left the hospital and within a couple of days my legs swelled up really bad. I had to go buy slipper 2 1/2 sizes bigger than normal just so I could walk around. I have lived with them since. My Doctor says it is the Prednisone, but I was on that about a year before the swelling started.
I have a lot of weakness, and feel I cant get anything done home or work due to no energy. I have gained a lot of weight. The thing that bothers me the most is the pain in my legs and arms. I cant take anything for the pain due to the Colitis.
I have to say I went in for extreme headache and that is when they found the clot. I am a long time Migraine sufferer, and when I told my Headache Doctor that I was having headaches again they up my meds for that. I have not even had a Migraine since I started the Warfarin. My Wife is even surprised. I usually have at least one a month.
I was told to stop the Warfarin on Friday and am wanting to know more about if the side effects are going to go way. I would like to get my weight down, and the pain to go away. Guess time will tell.
-- By dryeriii | Reply | Send Private Mail
February 24th
2008
12:00 PM
My father has been taking Warfarin for 13 years now 2.5mg a day. He's been complaining of headaches, heavy feeling in his head, dizzy spells, extreme fatigue,swelling of his legs, spontaneous numbness of his fingers, blurred vision, cold hands and feet, loss of balance and memory loss. I have spoken to his Doctors and no one believes him that the Warfarin is doing this to him. By the way, he was diagnosed with AF 13 years ago.
Does any one experience the same symptoms? what can he do? he is 77 years old.
-- By 121956 | Reply | (1) replies | Send Private Mail
February 3th
2008
5:16 PM
I have been on Warfarin since Sept 2004 when I had multiple blood clots in both lungs. Since then I have had two more PE's (one with a therapeutic INR) and a blood clot in my left arm (INR was also therapeutic). Genetic tests show nothing.
Since starting Warfarin I have had
- dizziness issues,
- eternal extreme fatigue
- hair loss
- short term memory and cognitive issues,
- joint pain and
- head aches all the time. I think the headaches are the worse since I can't take any NSAID's for them.
I have lost weight and push myself to exercise because it is supposed to make you feel better, right? Well not yet. I keep waiting.
I have not been able to return to work and worry about the long term implications of this.
Many times I have wondered about my sanity and if I was imagining all of this, so finding this forum at least lets me know that there is a possibility that it is not all in my mind.
I have been seeing a psychiatrist to help me work through the almost dying 3 times thing, but it is hard to accept since no one knows why I throw the clots. My INR is not stable in spite of close monitoring of Vit K and other drugs, and my INR must be taken twice a week.
-- By fiona | Reply | (6) replies | Send Private Mail
January 15th
2008
8:22 PM
The hair loss is the worse thing. I have also noticed a change in my skin in additional to extremely soft toe nails. At this time I am off Warfarin - (developed mysterious blood clots) so was recommended to take it for six months. The hair loss occurred after 3 months of treatment. However, I have a friend who has taken it for years with no side effects. As long as I stayed the course with my dosage (10mg) my INR was on mark. Not sure what to expect now that I am off of it but I will say I am extremely paranoid about every feeling I have in my legs.
-- By jjl13 | Reply | Send Private Mail
September 4th
2007
8:40 PM
58 years old male with atrial fibrillation. 2 years taking 7mg of warfarin and several months ago began getting an itchy purplish rash on my lower legs. Very annoying and I often scratch my skin until bloody. Seems to be getting worse.... wife says it's better than a stroke.... I guess so, maybe.
-- By xtopher50 | Reply | (1) replies | Send Private Mail
August 16th
2007
11:45 AM
I've been on Warfarin since Feb/04. I had 2 blood clots form in my leg and traveled in my lung and was dignosed with APS. At first I was on 12mg a day for about a year, now I am regulated at 10mg a day. For the last 2 months my INR count has been high (blood too thin) and was on 5 mg for 2 days in July/07 and then back to 10mg. This month Aug/07 my dr took me off my meds for 2 days, then back on reg 10mg. I will go back and check my INR in a few weeks.
I haven't experienced hair loss, but I have experienced migraines, weight gain (a lot!), blurred vision, black out with vision, and slight memory loss. And I am only 40 yrs old. Just wondering if you or anyone else has experienced any of these side effects.
June 5th
2007
9:24 AM
I've been on Warfarin since June, 2004 after having a Pulmonary Embolism. At first no side effects. It took 2 years to regulate INR. I take 6mg per day. In the last year though, severe hair loss, bleeding in my lower legs (skin) when my legs swell. I am not able to store iron according to dermatologist that I saw for hair loss. I've just been diagnosed with APS, anti-phospholipid syndrome.
-- By teachermom1984 | Reply | (1) replies | Send Private Mail
May 1th
2007
4:29 PM
I have been on warfarin for about two weeks as blood clots were found in my lung. I would like to hear from others who have developed rash ( non itching) on arms and now legs. My doctor does not seem to think it is linked to the medication, but really there is no other explaination.
-- By msf284 | Reply | (2) replies | Send Private Mail
March 17th
2005
6:23 PM
Has anyone ever experienced upper back pain with warfarin?
This is what bothers me. No headaches for me. Discolor in the feet and lower legs. I have been on this drug for over 2 years. Doctors say the back pain is not related, but I did not have this before I took this medication.
Am also on blood pressure medications. Coreg, avapro and take 2 different fluid pills.
September 17th
2003
5:57 AM
the skin color of my legs changed into dark brown after I had taken Warfarin for 4 months
-- By wadenz2001 | Reply | Send Private Mail
April 21th
2003
5:05 AM
I have been taking warfarin for 3 months and I am also experiencing headaches (every day) extreme fatigue, extreme pain in my legs and am finding it difficult to think clearly as well. Slurred speech too...
-- By shazzagirl70 | Reply | (1) replies | Send Private Mail
This registry is a place to share positive or negative side effects of using Warfarin Sodium. If you directly experienced a side effect while using Warfarin Sodium, then we encourage you to enter it here. Please note that entries here are the experiences of individual users, and in no way means that you or anyone else will experience the same side effect, since the same medication affects people in different ways. Please always contact your physician.
-- Please see our disclaimer
October 6th
2008
11:14 PM
24 yr female diagnosed with PE and DVT. I have been on Warfarin since may of 08 and it has turned my world upside down. Weight gain (20lbs in 3 months), major hair loss, very bad acne, and memory loss. Not to mention i can't shave my legs or anything else for that matter with out getting major in grown hairs. I NEVER had any of these problems before. I am loosing muscle mass and feel as if I am a 70 year old woman. I don't know what to do but cry. The doctors keep telling me its not the medicine but I feel it is, my body is telling me it is. things are not easy, and it is affecting me I feel for the rest of my life.
-- By maggie14 | Reply | Send Private Mail