Warfarin Sodium and sleep

Hello! After a 3 1/2 day stay in the hospital for atrial Fibb. which has since gone away and was likely cuased by extreme low blood potassium and sodium which has since been brought to all but normal levels.. I was taken off of Plavix a blood thinner which I had been taking since a heart attack in 2003, and put on the Warfarin, that was on June 22nd that I began taking Warfarin/Coumadin!. About 2 weeks ago I began having neck and shoulder pain, then slowly side and back pains deep down in the muscles. It is much worse in laying down position, have a hard time to sleep well, and if I trun or move while lying down the pain is very intense. I am going to assk the Dr. to take me off of the Warfarin and put me back on Plavix so I can see it it is the reason for the pains. I am quite sure it is! Please reply if you have the same symptoms as I do! Thanks, B.E.

i have been on warfarin since April 2008 when i had a clot in my left leg. since, i haven`t really had much going on until last week. i was rushed to the hospital by ambulance. i got dizzy and had a very cold wave rush up my body twice. when it was over, i couldn`t hear anything and my temples were tingling and my heart rate was elevated along with my bp. the er drs didn`t seem concerned with any thing that had to do with the dvt or the warfarin. their response???????? you drink too much coffee. WELL. i haven`t had a cup of coffee for almost a week, and have also quit smoking. i am still dizzy. my head feels heavy. i get little cool rushes that almost take my breath away, i don`t feel like ME. i feel like someone has taken over the me i knew. my family doctor has done liver, mono, hepatitis, b12, folic acid profiles, all negative. had a ct scan yesterday, normal. having an echocardiogram next week and having a holter monitor put on for 24 hrs to monitor my heart. i have done nothing but sleep since this episode. my husband is scared to death i`m gonna die during the night, he wakes up just to check on me. i haven`t been sleeping very well, as i`m afraid i`m not gonna wake up. i am only 40. i am not ready to let my life go to pot because of a drug that all the doctors insist is "safe". well i don`t know. call me stupid, but if its so safe, why do they kill rats with it????????????

Dealing leg pain and swelling fpr over 6 months - having 2 DVT test and 3 MRI's they finally found that I did have a DVT in my left leg and now I am taking Warfarin as of May 30th 2008. I now have severe joint pain, sore skin/sensitivity, my vision is going I can hardly read anything all of a sudden, so exhausted, sleeplessness - even after taking an ambien and getting some sleep, I can take a shower dry my hair and I am ready to go back and lay down because I am so tired. the doctor says thin blood does not carry oxygen as well so this is why I am tired. I am not anemic as I just had that checked. I can feel my muscles getting weaker. From reading what everyone else says it must be this drug, but I don't think I could live without it since my clot is so massive. I feel like my life will end soon I am getting weaker by the day...is this just my imagination? I know I am depressed but I do think all of the symptoms I am having is from the warfarin(besides the pain from the DVT which is still very painful)

I'm 46, female.. developed blood clots on my lungs for apparently no reason, found them when going to ER and complaining of bad headache, nausea and left shoulder and back pain. I haven't had a recent surgery, nor was on birth control.

I'm dealing with anxiety, depression, unusual headache, horrible back and upper shoulder pain, itching of head, hair falling out during shampooing, , tightness in chest, trouble swallowing, really bad pain in hips, legs and feel like feet swell. I don't sleep well, even on Ambien.. doesn't keep me asleep. I awake in the mornings around 4:30 with diarrhea, nausea, headache and feel awful. Never get a good nights sleep. My hips hurt as well as dealing with parathesias down right arm and into hand.. feels like needles sticking in my hand. Most days I feel wiped out in the afternoon.. as I try and drag myself out of bed to get some excersise.

Does anyone deal with parathesia's down their arms or hands.. what feels like nerve pain?

Has anyone ever tried Aggrenox, also known as Dipyridamole instead?

Or actually tried the real Coumadin, instead of the generic Warfarin?

Has any other woman out there been told not to use a tampon when on her cycle, as this will cause more menstrual bleeding?

I'm so tired of Dr.'s not having personal experience of their own with this drug.. and telling the patient that they are crazy and need to be on anxiety meds or anti-depressants. I just found out that Warfarin is the main ingredient in RAT POISON..

Has anyone EVER gone the totally nutrition route, juiced and gone radical, telling their Dr.'s that they were getting off of all meds?

Does anyone suffer from feeling like their ears are full, or hearing loss?

I'm so tired of feeling afraid.. and tossed around by Dr.'s who really don't want to do the research, nor listen to their patients.

I'd love to hear from anyone who has some insight..on any or all of the questions..

Im 21 and this is the 2nd time ive had DVT-
4 years ago when i was 17 i had 3 extensive clots in my right calf, thigh and abdomen. I was put on warfarin for 6 months.
Last month I had the same pain and swelling in my right abdomen and leg and was again diagnosed with 3 more clots. now im on warfarin for life.
I am tired and weak all the time, aching and sore, itchy, hot&cold, bloating-stomach cramps and diarrhea most days, i am getting NO sleep as well as having depression.
And no doctor seems to want to listen. Its ruined my social life and education as Im too ill to walk etc. Im also an insulin dependant diabetic.

I have been on Warfarin since Sept 2004 when I had multiple blood clots in both lungs. Since then I have had two more PE's (one with a therapeutic INR) and a blood clot in my left arm (INR was also therapeutic). Genetic tests show nothing.

Since starting Warfarin I have had
- dizziness issues,
- eternal extreme fatigue
- hair loss
- short term memory and cognitive issues,
- joint pain and
- head aches all the time. I think the headaches are the worse since I can't take any NSAID's for them.

I have lost weight and push myself to exercise because it is supposed to make you feel better, right? Well not yet. I keep waiting.

I have not been able to return to work and worry about the long term implications of this.

Many times I have wondered about my sanity and if I was imagining all of this, so finding this forum at least lets me know that there is a possibility that it is not all in my mind.

I have been seeing a psychiatrist to help me work through the almost dying 3 times thing, but it is hard to accept since no one knows why I throw the clots. My INR is not stable in spite of close monitoring of Vit K and other drugs, and my INR must be taken twice a week.