Welchol and ibs

Have been on Welchol for IBS for many years. It stopped my IBS symptoms but does cause constipation. I try to eat healthier in order to help with that. About 3 months ago, I began having pain in my fingers. I thought it was probably due to carpal tunnel syndrome. In the last two weeks, the pain intensified and spread to all the knuckles on my hand; I also had swelling and redness. The pain then spread to my toes, the rest of the bones in my feet, wrists, elbows, shoulders, knees, and ankles. Next came stinging and burning and then sporadic numbness. By late afternoon, the fatigue was incredible, and I would become dizzy. I went to the doctor, and he ran every blood test available. Everything came back normal, which was great, but my doctor couldn't pinpoint what was causing my problems. He said none of my medicines would cause such symptoms.

My boss asked me if I was taking any cholesterol medication, and I told her I took Welchol for IBS. She said she had read article upon article connecting cholesterol medication to joint paint and encouraged me to check online to see if I could find any answers. This site was one of the many I found where other people mentioned symptoms very similar to my own. My boss suggested I mention this to my doctor. I was thrilled at the prospect of finding such an "easy" solution since my other medications are not easily replaced.

My doctor instantly said that there was "no way" that Welchol could cause these symptoms since -- as so many of your doctors have told you -- that it is not absorbed into the bloodstream. However, he approved my stopping Welchol as an "experiment". I noticed that many of you mentioned it took a few weeks or more for the symptoms to reduce. My doctor warned me again that this was not the solution and that in a couple days, he wants me to consider taking Neurontin or going on a sedative for stress. He thinks, since all the tests have come back negative, that stress is the real culprit.

I know that stress can cause many health problems, but it just seems too coincidental that so many of you have experienced the same symptoms I'm facing. Do you think I'm making the right decision? My symptoms are difficult to cope with at times, but they are not incapacitating. I would really like to try staying off of Welchol and see if it helps in the weeks to come instead of adding yet another medication to my list.

I would appreciate your advice and thoughts. Thank you for your posts -- they have given me real hope for a solution.

I have been on Welchol for 5 months and it has changed my life. It was prescribed for IBS and I have tried many different medications, acupuncture, naturopathy, yoga, and anything else that the doctors hinted would help. This is the first thing that seems to be working. Since August, I have had four "flare-ups," which is a significant difference. I have been experiencing more headaches and some gas and heartburn. In my case, I am willing to accept these side effects because my quality of life has improved SO much in the past five months. I know that everyone experiences different side effects and results, but if you've tried everything and feel burnt out and like you want to give up, I recommend just trying Welchol to see if it can help you.

Going into my second week and experiencing irratic sleeping, lower back pain, occasional nausea and a lot of gas. I'm taking it for IBS and to lower cholesterol. I have also been taking a probiotic and something called chlorella, which is supposed to be one of the healthiest, natural supplement on the planet. So I was thinking the combination of all of the above was causing this. After reading all of the side effects, I'm thinking strongly of quiting the Welchol. Will give it one more week.

All this talk of HAIR LOSS, POSSIBLE GALL STONES, ANEMIA etc. is really scaring me as my doctor (gastro-i) has prescribed it for extreme IBS. Am interested to know if anyone else has experienced hair loss. I HAVE been experiencing gas and feeling tired. Don't know if the tiredness is due to the Walchol. Am very uncomfortable about taking this drug after reading all these comments.