Zocor and statins

Started taking the Zocor generic Simvistatin just 2 days ago. My legs hurt so bad that I can not sleep. My right knee is swollen to the point I have very limited range of motion and can barely walk up stairs. It is after midnight and I can't sleep. Also having some angina and my little toe on my right foot is somewhat numb. I will be contacting my physician about this tomorrow. My cholesterol was 105 and this doesn't seem to be worth it to me!

I just read about a side effect from another member
He talks of pain in his inner elbows. Oh my I have that too, and I thought
it was because I strained that muscle when doing work. But it was so long ago. I still have the pain and find it hard to pick up things. Now I read about someone taking the same medication as me and having the same symptoms. I actually only take a half of a pill a day, but now i will discontinue it until I see my doctor (also my sleep pattern has been affected)
I did not have this problem when I took Lipitor.
I am hoping I can go back to Lipitor but maybe I will increase my exercise and not eat anymore junk food and then not have to take any of this silly medication.

itching of scalp, face.

wow- glad I found you guys! I'm female, 54, thin, healthy, have always exercised and watched my diet. cholesterol went up to 280 a couple of yrs ago- tried more diet/exercise but it only came down to 250, so since then have tried 4 low-dose (40 mg) statins (crestor, lipitor, zocor, and now pravastatin), all of which after 2-6 months made me feel like I was jumping out of my skin and caused chest pain and palpitations that stopped almost immediately when I discontinued them. Also, I've always fallen asleep quickly and now take an hour or more, and recently my fingers have started falling asleep/tingling. I'm stopping the pravastatin today! Maybe 250 isn't so bad, if this is the alternative. Does anyone have any remedies to suggest besides low fat/low sugar diet? I just read that we should avoid reduced-fat milks (I drink 1%) because they contain oxydized cholesterol, which irritates the artery wall.

48 year old male - Hello all, I started with 10mg zocor (Simvastatin) off and on for about 2 months. No real symptoms other than it made me very nauseous. My cholesterol sky rocked and my doctor informed me that I needed to take it regularly and also increased my dosage to 40mg. I have been taking it religiously for about 3-4 months now and my cholesterol has improved very much, but about 2 weeks ago I started feeling pain in both my inner elbows, at the joints and along the sides. Its hard for me to lift things at times. Sometimes it’s a burning sensation and sometimes its sharp pain. My Doctor informed that it was the simvastacin and now wants me to change my meds to Lovaza (900mg omega-3 ethyl esters). I am going to stop using the zocor, but what do you guys think? Is there something better for me too use?

Oh my this page has made me feel like I am not going crazy. I have been on Zocor for almost a month the leg cramps started one morning with a cramp in my leg I couldn't walk the hole day. Then I couldn't walk up a flight of stairs without stopping to try and relive the cramping I am a flight attendant and I thought it might have been the pressure of the plane but it continued when I wasn't working.It is a God send that I started to search this drug since this was the only thing that I could think of. There must be a kick back from the drug companies.

severe GERD, respiratory problems, blurred vision,tingling sensation, abdominal pain, abdominal spasms, nerve and muscle damage,chest pain,headache,

I am a 58 year old female Who has been taking Simvaststin for 16 months .
I have been increasingly bothered with mainly night leg pain ( bilateral) that radites to my hips and back. It's like a tooth ache. I too have had to resort to taking pain medication at night to sleep. During the day when I sit for long periods my legs ( especially the thigh area) aches and standing up , walking etc does not alleviate the ache. It is not constant at this point but very frustrating.
After reading the posted notes I am contemplating going off the Simvastatin for a while to see if my symptoms improve.
Any thought?

Thanks!

I took Zocor for 9 months after I had a heart attack. After about 8 months I began having sever muscle spasm in my legs. I had a couple of episodes where when walking I couldn't pick up my feet and thought I was having a stroke and had to sit down and rest before walking on. I had to do this several times to get where I was going. I told my cardiologist and he had me stop the Zocor. The spasms stopped but I never regained the strength in my legs. Today I have had to put ramps in at home cannot climb steps. The ramp is difficult because of the incline but it is better than crawling up my steps to get in the house. I can only walk about 50 steps before my legs give out on me. I cannot walk on uneven ground without holding on to something or someone. I have now had 2 back surgeries because I have been told over and over it is my back with no relief for the legs. This last surgery my left foot drags and my big toe hangs down and I cannot pull it up. Now I fall a lot because of that and have to wear an AFO to keep my foot and toe up so it doesn't drag and trip me. The back doctor thinks it another pinched nerve and wants to open back up again. I am so tired of them trying to convenience me it is my back when I know it was the Zocor and the damage apparently is irreversible but no one wants to agree with me. I am sick of it and just wish they would say yes it was the Zocor and get you a scooter and live the best you can. I know I am headed for that road I use a walker and cane when I don't have someone with me to hold on to. Because I am so unstable on my legs.

Except for having high cholesterol (310), I'm a 29 yr old healthy active female, very petite and weigh 98lbs. My mother has had a quadruple bypass and 4 stents at the age of 54, high cholesterol is just hereditary in my family. My doctor put me on 40 mg of zocor. The first week taking zocor I started feeling strange, a little soar here and there and very tired at times, also I have become very forgetful. It's been almost 2 months now and I have severe pain in my legs. First it was the right leg and now both legs, the pain starts at my lower back all the way down to my cav. I have a burning painful feeling sometimes numbing feeling, its driving me crazy!!!! I can't stand for too long cause I feel tons of pressure on my lower back pushing down my legs, It feels like my sciatic nerve. I went to my doctor and he said he is 95% sure that this is from the zocor medication, he told me to stop it right away. This is my first day without it, I know I need to do something to prevent what happen to my mother, I'm on a strict healthy diet, staying away from all fatty cholesterol filled foods, but there has to be a better way then taking statin drugs! If anyone has some ideas of what kind of alternative meds I can take, please help.

I am a male, 61. and have a history of switching around cholesterol meds, most recently because of cost due to my high number of medical conditions and large number of medications for, but not limited to: CAD. CHF, diabetes, hypertension, renal impairment, and herniated disks. I have barely been on zocor a month and have experienced extreme weakness, pain in neck, shoulder, hands, legs & feet. Because I have both cervical & lumbar herniations, I was somewhat uncertain until I began reading these posts. I took myself off zocor yesterday and emailed my doctor's nurse. It also occurred to me that after any length of sitting, my legs hurt upon standing while i was on Lipitor, but don't really recall other symptoms. Sometimes, when you have a number of health issues, you come to believe this is "as good as it gets," but now I believe differently, otherwise why bother with the meds at all.

Hi and please feel free to email me. I was on Lipitor for quite a while (20mg)without any issues. Due to insurance etc I was switched to 40mg of simvastatin-(Zocor-generic)--with in a short time i noticed i was waking nearly every morning with a mouth full of junk requiring a deep throat clearing. Then a low level sore throat that persisted for more than two weeks. I went to my doctor who agreed that it may be related (though I think she doubted it) and had me stop. Now i have been off for 5 days and still my throat is sore (though not sore to swallow) and mouth generally feels "messed up".

If any of you have had any sore throat experiences etc please let me know. Also how long did your side effects last once you came off the drug?

have been taking 20mg for about two weeks. a couple days after i started taking the stuff i started experiencing chest pains at night that would wake me up, coupled with leg pain. it's getting worse; now, after two weeks i am having severe lower back pain that radiates down both legs, similar to sciatica, happens at night but continues throughout the day. also leg spasms at night. i am stopping zocor today. can't face this pain anymore. i have bad knees, and recently had to have a cortisone injection, but this new pain is worse than the knees. owing to the chest pains, i had a stress test today at the heart group, and had such difficulty walking that i could barely make it down the hall with my cane. three of the nurses there said they hear this all the time about the statins, and that the doctors don't want to listen to the complaints but the nurses all agreed that the statins are the culprits. results on stress test were fine.

having bad night sweats and racing heart

I am 71 years old, I have been taking 80mg of ZOCOR ( Simvastatin ) for the past 16 years. five months ago I started to hurt in my lower back, hips,Knees,thighs, for two months then it traveled to my shoulders, wrist, hands, fingers. the Dr. gave me a round of prednisone (one shot and 11 pills) the pain stopped and everything was wonderful for two weeks,the Dr. stated that I had avused my body in the years gone by now the pain has started back in my shoulders, wrist, hands the pain is very strong,and my legs are starting to get weak again, I am taking Naproxen 500 mg two times a day and also taking Hydrocodne10mg every four hours also have Oxycodone 10mg to take every four to six hours, I have mentioned the results that I have read about the Statins in this forum but the doctor, does not act like it has any significance. does anyone have any suggestions??? if so please let me know, this pain is killing me, if you have any info. please email me at. ******

My mother took Zocor and has the similar side effects. But has anyone
had shaking hands or been told they might have ALS (lou Geric's disease)?

Please contact me if this has happend to you. My mother thinks she has less than 3 years to live.

Contact me at ****** Please! Thank you.

60 year old male on zocor for approximately 10 years. taking 80 mg daily.
only recently (within the last 18 months) i noticed some changes going on.
first i had joint pain in my feet, both feet, same areas. the foot pain went away but then the pain traveled up to the back of my legs, behind the knee,
when the muscle or tendons attach. every time i sat for awhile, then got up, the pain was brutal. that lasted about 3 months. later the pain shot up to the joints in my hands. both hands, same place on both hands. when i rotate my thumb or move it, the knuckle area of the thumbs, same place,
hurt bad. i will confront my health care provided at the va on these issues.
she disregarded my previous remarks and said arthritis, hands and feet and perhaps i overextended something at the gym on my behind the knee issue.
i think she is wrong. recently i had a severe cold and did not take the zocor for two days. the thumb pain subsided substantially. i resumed and the pain came back. now it feels as if the pain will travel back down to behind my knees again as i am beginning to feel a pull. any others out there with these issues???

PLEASE HELP! My father, age 74, was on lipitor for a year or so and then was switched to zocor a few weeks ago to help control his cholestorol. In the past week, the tightening he experienced in his leg, while on lipitor, has become debilitating leg pain now while he is on Zocor. Ultrasounds have ruled out a blood clot. He has no pain when he sits, but he describes the pain has his calf wanting to explode when he stands and he cannot walk with out the help of a cain. The pain radiates from his leg up to his hip.

His cardiologist has taken him off the zocor for a few weeks to see if there is an improvement. It has been 3 days and he feels a bit of relief. SO here is the million dollar question: His labs indicate his cholestorol is normal now, most likely thanks to the statins.....can anyone suggest another form of meds that will help regulate his cholestorol....say COeq10 and fish oil? Any help is SO appreciated!!! Thanks to each of you for your posts. It is so comforting for my dad to know he isn't developing a new issue and that it can be resolved with the removal of zocor!

I stumbled onto this website just today looking for information on another drug. Little did I know what I was going to find and so happy I did. I have been taking Zocor for nearly 5 yrs. now. My health has taken a spiral downhill. I too, have been experiencing almost every symptom that has been mentioned. Rt. shoulder pain, hand pain, pain and tingling in hands and feet, leg cramps, muscle weakness, numbness, memory loss, itching, fuzzy headed at time, can't concentrate, and trouble breathing. My doctor has told me my cholesterol is just fine the last two times I've had my checkup, but has never suggested I come off it. I guess I will be calling him tomorrow.

I was prescribed Zocor for high cholesterol. Almost immediately I began to experience body aches -- some days more severe than others. I would take ibuprofen and it would help. Then, I started getting a pretty strong pain on my hip which radiated down my leg onto my foot. The pain was so severe, even the Motrin 800 mg. pills didn't help it. I am 53 years old, but I felt like a 90 year old. I had problems walking, especially after sitting for an hour or so. I had problems with stairs. Even laying down was painful. I tried heating pads, ointments, etc. When I told my doctor about it, she said that this was a typical side effect of statins, and that because I am diabetic, I need to continue taking Zocor to keep my cholesterol down. Just the other day, I stopped taking Zocor for 3 glorious days and guess what? NO pain!!! I resumed it because my doctor insists that I stay on it, but I wish there was something else I could take that wouldn't cause pain.

Taking high dose of statin (generic zocor 80mg/day), I was short of breath, severe fatigue and couldn't get out of bead for long. The following information saved me. The article was published in 2002 by a Board Cerified Cardiologist:

"July 8, 2002
STATIN-INDUCED CARDIOMYOPATHY
INTRODUCTION TO THE CITIZEN’S PETITION ON STATINS
By Peter H. Langsjoen, MD
The medical profession has, after more than 30 years of excellent propaganda, successfully created the wholly iatrogenic - "pseudo-disease" dubbed "hypercholesterolemia" and the associated malady "cholesterol neurosis". After decades of dismal failure to cure this "disease" of numbers with low fat diets and a host of cholesterol lowering drugs, the medical profession stumbled upon the magic bullet, the cure for this dreaded artificial disease - statins (HMG-CoA reductase inhibitors). First released on the US market in 1987, statins have rapidly grown into one of the most widely prescribed class of drugs in history. Statins do three things:
1. They block the body's ability to make cholesterol, thus lowering the blood level of cholesterol, thereby curing cholesterol neurosis. Doctors and patients equally neurotic have immediate gratification. The "evil" high cholesterol has been dramatically lowered and the future is bright and promising. So far...so good.
2. Unrelated to their cholesterol lowering, statins have been found to have anti-inflammatory, plaque-stabilizing properties which have a slight benefit in coronary heart disease.
3. Statins kill people - lots of people - and they wound many, many more. All patients taking statins become depleted in Coenzyme Q10 (CoQ10), eventually - those patients who start with a relatively low CoQ10 levels (the elderly and patients with heart failure) begin to manifest signs/symptoms of CoQ10 deficiency relatively rapidly - in 6 to 12 months. Younger, healthier people who's only "illness" is the non-illness "hypercholesterolemia" can tolerate statins for several years before getting into trouble with fatigue, muscle weakness and soreness (usually with normal muscle enzyme CPK tests) and most ominously - heart failure.
In my practice of 17 years in Tyler, Texas, I have seen a frightening increase in heart failure secondary to statin usage, "statin cardiomyopathy". Over the past five years, statins have become more potent, are being prescribed in higher doses, and are being used with reckless abandon in the elderly and in patients with "normal" cholesterol levels. We are in the midst of a CHF epidemic in the US with a dramatic increase over the past decade. Are we causing this epidemic through our zealous use of statins? In large part I think the answer is yes. We are now in a position to witness the unfolding of the greatest medical tragedy of all time - never before in history has the medical establishment knowingly (Merck & Co., Inc. has two 1990 patents combining CoQ10 with statins to prevent CoQ10 depletion and attendant side effects) created a life threatening nutrient deficiency in millions of otherwise healthy people, only to then sit back with arrogance and horrific irresponsibility and watch to see what happens - as I see two to three new statin cardiomyopathies per week in my practice, I cannot help but view my once great profession with a mixture of sorrow and contempt.
Statin-induced CoQ10 depletion is the topic of a recent petition to the FDA requesting that this drug/nutrient interaction be identified in a black box warning as part of statin package insert information. A comprehensive review of animal and human trials addressing this issue has been submitted to the FDA as a supporting document. We, of course, do not expect any response from the FDA, but 10 years from now when the full extent of statin toxicity becomes painfully evident, at least we can, in good conscience, know that we tried and who knows, sometimes small sparks may spread in dry grass.

See Also:
Cholesterol Drugs And The Depletion Of Coenzyme Q10: A Review Of Human And Animal Data.
By Peter H. Langsjoen, MD
Citizen Petition: Needed - A Change In The Labeling Of All Statin Drugs"

I have experienced burning in my arms, legs and feet. If you have how long did it take to stop after stopping Zocor? I have been off for 3 weeks and no relief.

I was prescribed Zocor approximately 1 month ago. I began taking the Zocor and immediately on the first night I had slurred speech. It went away after two nights...but I continued to have horrible headaches for about a week. Finally, I thought I was in the clear. After about 3 weeks, I had a little spasms in my left leg...from the foot to the hip. It went away...and a few days later it showed up in my right leg...from my foot to my hip. My right knee is currently on fire...and I can't walk really well. I have a tendency to dray my right leg behind me. It gets better after a period of rest, but as soon as I try to walk...it's back again. I stopped taking Zocor a few days ago, and I see the doctor tomorrow.

Over 6 years ago, the following Petition was submitted to the FDA, I would encourage every patient being treated with statins to read it and bring it to the immediate attention of their physician:

CITIZEN PETITION TO CHANGE THE LABELING FOR
ALL STATIN DRUGS (MEVACOR, LESCOL, PRAVACHOL, ZOCOR, LIPITOR, AND ADVICOR) RECOMMENDING USE OF
100-200mg PER DAY OF SUPPLEMENTAL CO-ENZYME Q10 TO REDUCE THE RISK OF STATIN-INDUCED MYOPATHIES (INCLUDING
CARDIOMYOPATHY AND CONGESTIVE HEART FAILURE). http://www.fda.gov/OHRMS/DOCKETS/dailys/02/May02/052902/02p-0244-cp00001-01-vol1.pdf
May 24, 2002
Petitioner:
Dr. Julian M. Whitaker, M.D.

This Petition is based in part on the clinical findings of Dr Peter H. Langsjoen, MD, which he also reported to the FDA:

Statins kill people - lots of people - and they wound many, many more. All patients taking statins become depleted in Coenzyme Q10 (CoQ10), eventually - those patients who start with a relatively low CoQ10 levels (the elderly and patients with heart failure) begin to manifest signs/symptoms of CoQ10 deficiency relatively rapidly - in 6 to 12 months. Younger, healthier people who's only "illness" is the non-illness "hypercholesterolemia" can tolerate statins for several years before getting into trouble with fatigue, muscle weakness and soreness (usually with normal muscle enzyme CPK tests) and most ominously - heart failure. In my practice of 17 years in Tyler, Texas, I have seen a frightening increase in heart failure secondary to statin usage, "statin cardiomyopathy". Over the past five years, statins have become more potent, are being prescribed in higher doses, and are being used with reckless abandon in the elderly and in patients with "normal" cholesterol levels. We are in the midst of a CHF epidemic in the US with a dramatic increase over the past decade. Are we causing this epidemic through our zealous use of statins? In large part I think the answer is yes. We are now in a position to witness the unfolding of the greatest medical tragedy of all time - never before in history has the medical establishment knowingly (Merck & Co., Inc. has two 1990 patents combining CoQ10 with statins to prevent CoQ10 depletion and attendant side effects) created a life threatening nutrient deficiency in millions of otherwise healthy people, only to then sit back with arrogance and horrific irresponsibility and watch to see what happens - as I see two to three new statin cardiomyopathies per week in my practice, I cannot help but view my once great profession with a mixture of sorrow and contempt.

I'm a 52 year old female and have been taking Zocor for about a year. During the past few months, I've noticed increased muscle pains in my upper legs. It's to the point that I actually hurt when walking, even for short distances. I have also gained about 15 pounds in the past year. It could just be "middle age spread" but I can't help but wonder if this drug is the cause of it. I've also had some visual disturbances in the past month or two, like something that just won't clear out of my eye.....like a film across my eye. Anyone else with similar symptoms? I go back for a physical in a few weeks and am going to ask my MD about another medication. I have genetically elevated cholesterol and low cholesterol diet has not helped previously.

I have been on Zocor for one year. I am a former athlete used to dealing with pain associated with playing and training at a high level. Since using Zocor, my energy level has decreased significantly, very tired, before, during and after workouts. Muscle pain specifically in my neck, back and legs has significantly increased without cause. I have a constant feeling of a stabbing pain in my abdomen, accompanied with nausea, bloating and abdominal gas. After seeing some of the posts on this site, has there been a lot of reporting of abdominal pain? Bloating? Gas?
I too, have had trouble sleeping, accompanied by unexplained itching, and now after seeing these posts probably some mild depression. I believe I've had some short term memory loss - but then I can't really remember - LOL. Is the drug worth it? Physicians all seem to downplay the side effects, justifying the desired lower cholesterol, as more important than the side effects.........is it?
At 46 years old and formerly a competitive athlete at an elite level, I'm wondering if feeling better by NOT taking the drug is better than feeling worse and taking it. My training regimen was very intense prior to starting Zocor - NOW - it seems as if I can't keep up any longer. Any response to these problems would be greatly appreciated.

i was a healthy 35 year old male but had high cholesterol, so the doctor prescribed lovastatin (mevacor) and tried it for a month but developed muscle weakness. months later, i'm still experiencing severe muscle spasms and my neurologist is stumped -- mri's, spinal tap, emg -- all normal. I just want to feel normal again. can anyone help? please email me!

To Kevin II and others

It doesn`t matter if you are on Zocor or Lipitor or any of the ot her statins.

They all have similar side effects. They can all can cause permanent damage to your body.

The side effects can come right away (lucky you) or after years.

Therefore, when you are reading messages, please also read those for other statins - including for Lipitor.

But the most important of all is to educate yourself when it comes to the cholesterol issue.

Are you sure that it`s the high cholesterol that will cause heart problems?

Please visit ****** and read some of the books that I have suggested in an earlier message.

Now I ask for some help.

Drugs can have many different names in different countries.

Please tell me (us) if Zocor (substance Simvastatin) also has other names.

It will make it easier to find more information.

In Sweden it`s called Zocord and Simvastatin.

How is it in the US and other countries?

This is my second post on this subject. The short story is I had a stroke at 43 years old, doctor prescribed Zocor to me, 90 percent of side affects posted here.

I went back to the doctors afraid I was going to get the treatment from mmy doctor that most others got "your crazy, and it's psycholog". To my surprise the doctor knew exactly what I was going through with the only information that I was on Zocor.

The doctor was aware of the undocumented side affects and told me stop taking it immediately. She prescribed Lipitor and so far so good.

Most of the side affects have gone, the foggy head totally gone. The doctor said I was lucky to be recovering so quickly as most take months and some times years from the damage of Zocor. The longer you take it the longer the recovery time which makes sense. The doctor said that Zocor is cheap and highly dangerous.

I urge anyone coming across this website to see your doctor for a medication change ASAP.

I will post again in six months and give an update.

This is a message that I wrote earlier on, but I think it´s good to repeat it because I want to encourage people to read and make up their own mind about the cholesterol issue.
_________________________

It`s very disturbing to read all these stories. I really feel for you.

My experience comes from seeing what happened to 3 people close to me. They all took statins.

I started to look for information on statins, and other medications in 2004 , and it continues to this day although two of my relatives are dead.

I have nothing to do with the health or pharmaceutical industry.

I saw the suffering and it made me very angry.

I am an ordinary lady in her sixties who live in Sweden.

The situation is almost the same here as in the U.S.

There is very little discussion about risks/benefits with this kind of medicatications - or others.

I think it`s a good idea to turn to the Internet and books to get other views about the cholesterol issue.

Is it really true that it`s the cholesterol that is causing heart disease?

Are you sure?

Please visit:

www.thincs.org

www.ravnskov.nu

www.spacedoc.net

www.statinalert.org

Also search for "Stopped our statins" on Google.

You will find a lot of information.

Under "print articles" you will find a very informative article from The Weston Price Foundation.

Also search on the names of the different authors below.

Here are som books:

The Cholesterol Myths (Uffe Ravnskov)

The Great Cholesterol Con (Antony Colpo)

Book with the same title (Malcolm Kendrick)

Overdosed America (John Abramson)

The Truth about the Drug Companies (Marcia Agnell)

There are many more.

For more information about these books turn to the Internet.

It´s good to have some other information than the one given by doctors because most of them have been "educated" by the pharmaceutical companies themselves - and why should they talk about risks, side effects etc. They are interested in profits.

Finally - here are some side effects that I have seen:

pains in legs, hands, elbows, shoulders, knees, hips, cracking noise in ribs, muscle weakness, loss of hair, head ache, burning, tingling sensations in hands and feet, numbness, difficulties to swallow, loss of taste, ringing noise in ears, cramps, insomnia, irritation, depression, difficulty with short-term memory and then advancing into more serious problems.

These side effects - i 3 different people - all over 65 - did not come at once.

All of them had taken statins for years (Zocor)

It doesn´t matter which product -all statins have similar side effects.

My relatives also had some other medications which makes it even easier for doctors (and patients) to say that it`s just old age.

I am happy for those who get problems right away because then there maybe a chance for the patient and the doctor to see that there is a connection.

You really have to look out for yourself and the people around you!

Good Luck.

l

I can't really say I have anything new to report. I had been taking Lovastatin for maybe a couple of years, first 20 mgs, then 40. I don't remember having any problem with that. Then about 4 months ago my Dr. switched me to Zocor, 80 mgs because my cholesterol was 240. First I started having numbness in my feet and legs, cramps in my feet and Charlie horses at night in my legs. I mentioned it to my Dr. but he just seemed to feel it's part of the aging process and not to worry. Then my knee started hurting so bad I couldn't bend it and could hardly get up and down the stairs. I went in and they said I had arthritis and gave me Nabumetone and Vicodin which I didn't want to take because of the side effects. I finally gave in because the pain was getting worse. I was supposed to take two pills bit I only took one and I only took the Vicodin if I just couldn't stand it any longer. I took the drug for about 3 weeks and I wasn't getting any better. In fact my other leg started hurting, and my elbow and two or three times my lower jaw felt numb and I thought, Oh my God, I'm having a stroke. Anyway by some miracle I found this web site and see that many others are suffering the same symptoms that I'm having. What is wrong with the doctors? I am trusting my Dr. with my life. I'm sure he's heard similar complaints before about these drugs, but he acts like it's no big deal. I told him I don't want to take this anymore and he said well sometimes people do get some muscle pain but you can take a over the counter medication, not sure of the name, CO-2, something like that.
I'm wondering what's happened to the Dr's integrity? Why do they keep pushing these drugs when they know they are harmful? I guess I have to look for another Dr. My Dr. is with Kaiser. I guess they all pedal the same poison. So sad that we are controlled by the drug companies for profit. They are killing us. Look what happened with the HRT drugs. Meanwhile I'm afraid to quit this drug cold turkey since I was on such a high dose so I'm cutting the pills in half, 40 mgs, and then in about 2 weeks I will go to 20 and hopefully by then I will have selected something natural and safe. I am 67 years old. Before this I was active and I used to walk my dog a mile everyday. I can no longer do that. Right now my leg hurts so bad I don't want to take another pill but I'm scared if I quit cold turkey something terrible will happen. It's a holiday...

Have been on some form of statins since 2000 when I had a heart attack, Baycol until they recalled it then Zocor. Have had three stents since 2000, one in 2005 and one in 2006, a year apart all most to the day. Things got really bad after the last stent, was put on 40 mg. Then the Dr. was not happy with the cholesterol test after the 6 week checkup after the last stent, put me on 80mg, thats when things really went down hill , fatigue,eyes twitching,foot pain,joint pain, finally ended up in the e.r. with sever lower back pain. After morphine and muscle relaxer was sent home, when entering our house right leg gave out and fell, since then legs have been weak and can't stand to be on them for long periods of time. Have been recently told I have polyneuropathy. The Dr. don't think the statins have anything to do with all these ailments.Have since stopped using the statins and most ailments have been gradually getting better. I am getting to understand why they call it a wonder drug so many unexplainable side effects so many more $$$$.

I am male 37 years old. In June 2007, my blood test shows 249 total cholesterol. After that, I was taking super B-complex, fish and flax seeds pills. It went down to 213 total cholesterol (40 HDL, 136 LDL and TRI 176). And I asked my family doctor to give prescription for Zocor(I asked particular drug because I will get good discount rate at my employer's place). he gave me Zocor 20 mg. After taking 1-month medication I felt some inconvenience during sex . You don’t feel it normal. I can’t do much exercise and some times feel depressed. I usually do 1-hour exercise or any form of exercise (Yoga). After Two months I tested my blood cholesterol level. It shows now total cholesterol 181(LDL 93, HDL 42 and TRI 223). And also showed ALT and urine protein little elevated. Now I stopped medication for past two days, feeling better at day time but night I am having weird dreams and indigestion problem. I guess these are withdrawal symptoms. I would go for natural medication like regular exercise, diet (oat meal, high fiber content, less sugar, less white rice). No more Statin drugs. Any one have same problem?

Has anyone had severe headaches, loss of TASTE for food? My husband is taking 20mgs of Zocor and he has a terrible pain in his back in the center of his shoulders, knees crackle when getting up from a sitting position or bending to pick up something. His vision is getting very blurry, to a point he finds it hard to read, bouts of depression, cannot sleep, but, always tired, no ambition, thumbs lock-up like a Charlie horse, cannot lift anything heavy anymore. He started taking Zocor 40 days ago, and never been on any other cholesterol medication before this. 40 days ago he did not have any of these symptoms! I have a question for the people that have stopped taking Zocor and all other statins, what are you taking to keep your cholesterol and triglycerides down? Has anyone tried flaxseed; fish oil; cholesterol off and/or omega 3? I too, have many of these side effects, especially my left knee (my doctor says I will need a hip operation!!!!) sometimes I need a cane to walk, my eyes are also very blurry at times. We need help or suggestions, cannot get from doctors, they believe medication can do no harm. Would like to hear from those who stopped Zocor and all statins, thanks for reading, Helene

I had Hodgkin’s Disease in 1981 at which time they removed my spleen.
I was given a supply of Erythromycin antibiotics as a prophylactic, as a result of my Splenectomy to counteract any ongoing infections etc. and I have used this now for years, on an as necessary basis rather than continual, with good results.
In 1994 I suffered a Heart Attack and they found my Cholesterol level to be 9.6. I had Angioplasty and a Stent was inserted to hold the artery open.
Following that, I was prescribed Zocor (Simvastatin) to reduce my Cholesterol level.
My eyesight, which has always been very poor as I have Cone Dystrophy, deteriorated over the next three years to a point where I was registered as blind in 1998. The form indicated “Primary loss of central field”.
I suffered various side-effects from the Statin including General Weakness, Panic Attacks and Palpitations. My Cholesterol during this period averaged around 7.
The Doctor changed my Statin to Lipitor (Atorvastatin) in 1998.
In 2000 I complained to the doctor that I had severe muscular problems, to a point where I had to wear knee supports just to climb the stairs. He referred me to the Physiotherapist who manipulated my legs and gave me exercises to help strengthen the muscles. I was unable to walk after that for about 2 weeks!
By sheer fluke, I went on holiday in 2001 and forgot to take my Statins with me. I did not start taking them again straightaway when I returned and I noticed my muscles improving. As I had an appointment with the doctor, I started taking Lipitor again and found that my muscles again deteriorated.
Apart from the muscle issues I experienced lethargy and some digestive problems.
I suspended taking the Statins in October 2001 and my muscles gradually returned.
My Cholesterol crept up to 9.2 and I was referred to the Lipid Clinic at St. Bartholemews Hospital in March 2002.
The specialist there put me on Lescol (Fluvastatin), together with a diet of fruit, beans and chicken.
My muscles continued to return but I suffered from sleeplessness, nightmares and headaches and generally felt unwell. My Cholesterol did, however, reduce to 6.1 and my Triglycerides fell from 14 to 2.3.
In July 02, I stopped taking Lescol (due to erectile dysfunction) and my general well being improved immediately.
I was not prescribed any other Statins at that time and by February 2003 my muscles had returned to almost normal but my Cholesterol had crept up to 8.7.
In February 2003 the Lipid specialist at Barts tried me on Supalip 180 Fenofibrate together with Ezetimibe, due to my intolerance to Statins
On this combination I suffered from fatigue, impotency and again, muscle wastage so I stopped taking any Cholesterol reducing medication for a few months and my Cholesterol rose again to 8.3.
Between May and August 2004 the Clinic tried me on Pravastatin and Ezetimibe but I still suffered from fatigue and impotency and stopped taking any Statins, with my Cholesterol at 7.3 and Triglycerides at around 7. Lipid clinic suggested trying Rosuvastatin (Crestor) but I had had enough by then and thank my good judgment for not taking it, as the side effects are reportedly worse than other Statins.
For the next 3 years, I felt fit and strong with no problems with my muscles nor any sleeplessness, panic attacks etc. In July 2007 my GP took a blood test. My Cholesterol level was 7.4 with Triglycerides at 7.
Over the last few months, I have been taking my glasses off more and more to be able to see more clearly. In the last few weeks the clarity of my vision has improved considerably and I can now see people’s faces and generally much more detail. Red things, like buses and traffic lights are now considerably brighter and I am now able to watch TV from a distance again rather than sitting a foot from the screen. I find I no longer need to wear glasses with a special red tint to improve my vision.
My vision appears to have almost returned to the level it was in 1994 before I had my heart attack and Statin therapy.
I have recently found that one of the side-effects of some Statins is blurring of vision, particulary the statin Zocor, and that this is also a symptom of Rhabdomyolysis which is caused by the taking of Erythromycin with Statins. I do not know what the nature of the blurring is, but nobody has ever mentioned that Statins could affect my eyesight.
Looking back at the timings, I had been on Zocor for 3 years when I was declared blind, and it could be only now that I have been off Statins for 3 years, that my eyes are recovering.
Whilst researching the side-effects of Statins which include, in particular, muscle breakdown and blurred vision, I have found that they should not be taken with Erythromycin!
I believe I suffered blindness, resulting and much discomfort for years as a result of misdiagnosis of the side-effects of the Statins and the prescribing of Statins whilst being prescribed Erythromycin.
I believe that Cholesterol levels in people who have had a Splenectomy are abnormally high and people who have a Splenectomy should be warned to immediately go onto a low fat diet and not have toasted bacon sandwiches on the way to work every morning as I did!
The Lipid Clinic also suggested that my complaints about various side effects were psychosomatic and even told me not to look at the side effects leaflet with the pills, just to give them a try for 6 months..
I recently visited my GP and suggested that the combination of Erythromycin and Statins was the cause of my severe muscle breakdown and eyesight deterioration and questioned whether the Statins should have been prescribed when I was on Erythromycin. He advised that he would not do so, would suspend one or the other, but that they probably knew more now than they did a few years ago.
I just wonder how many other people have been suffering for years, just thinking their health and vision is deteriorating with age, when it is probably the medication they are on!

I have no experience of statins - or hardly of any other medication either, but I have seen the consequenses in some relatives/friends. That´s what made me do some "research".

This is what I think everyone should do before they embark on taking medications.

There are so many interesting - and eye opening books and information on the Internet.

Don´t think that Zocor is the only statin with these kind of side effects.

Most of the statins have similar side effects so therefore please also go to the pages that deals with Lipitor etc.

I have made some suggestions there in November 2007 (swedish) and also "Pasted in" a very interesting text with many links.

Good Luck to all of you.

Your stories are heartbreaking.

Most people, where I live (Sweden) has no idea, but I try my best to spread the "news".

I have been on Vytorin for about 2 years. Before the drug, I had not aches or pains. My cholesterol levels are good now but the quality of my life is not. I feel as if my joints have aged 30 years over the past two. Lower back pain has caused me to see chiropractors, physical therapists, and surgeons. Now, my feet are hurting so badly that I can hardly walk. I don't know if it's related, but since I've been taking vytorin, my 2nd toe on both of my feet has become crooked and it almost on top of my big toe. I've spoken to my doctor today once again with all these concerns and will be discontinuing the drug for a week to see if these horrible symptoms disappear.

on zocor since dec 2006, i have alot of other medical problems, arthritis, fused foot, very bad lower back and some osteoporesis, but i believe more so, than not; that my symptoms increased after a change in dosage. now i'm very tired, extreme muscle weakness, knee pain, having trouble walking, weight gain (10 lbs in last 2 months) and unbelievable swelling in ankles and top of foot, very painful
It's hard to blame zocor on this, but i don't just want to wear compression socks and so forth, because that could be masking the cause, and maybe just a change in lipid medication will change things around. it's a vicious circle, cant work out or walk, to tired to do anything, but work 14 hours a day, it's such an effort to walk (I keep blaming the weight gain) but maybe its really the swelling and joint pain along with the muscle weakness that's to fault.

When I started taking Zocor a few months ago I also had added aqua jogging to my exercise routine and I thought that the tiredness, fatique, muscle aches and the swelling in my knee were from exercising. I thought it was strange the my body never adjusted to it because it should have become easier with practice. At that time I was also walking 3 miles a day. About two months ago the doctor increased my dosage. The pain in my legs became unbearable. I tried walking and it was difficult when starting out and became increasingly harder until I started feeling light headed and just couldn't go any further. I have also been experiencing blurred vision and pain in my shoulders and I thought that was from aqua jogging. I called my pharmacist to see if I was taking anything that could be causing those symtoms. Immediately he said it was the Zocor. My doctor doesn't agree. He has since diagnosed me with diabetes but my meter has never shown and readings that would indicate high blood sugar and he has ordered ultra sounds on my legs that showed nothing. Where does one go to get help with this problem? I have missed so much time from work that I have gotten a "warning". Also, I am registered to go back to school in the fall and I am afraid I may not make it if I am not feeling better by then.

After by-pass heart surgery in 2002, my cardilogist put me on 40mg of zocor.
I was in good health with no physical limitations. I had no heart damage. The restriction of heart arteries were found due to my stress test that was performed each year as a part of my annual Physical. After surgery I was on zocor for three years, during that time I experienced a little tiredness, little weakness, a little muscle aches. some tingling in my right arm and shoulder. I went to my heart doctor Jan. 2006 and he changed me to vytorin (10mg zetia and 40mg zocor). about 6 months all of the about symptoms got worse.
By Jan. 2007, my muscles became so stiff, I could not walk, had balance problems, severe muscle aches and cramps, numbness and tingling in both arms and hands, also stifness and pain in my hands, stiffness and pain in both feet, stifness and pain in my back and weird nerve sensations over my entire body. During Jan. and Feb 2007, I was seen by my family doctor, a neurologist, and a muscle doctor. Thanks to the internet, I found info on zocor and zetia, which is the drug vytorin. Warnings described the same symptoms I am experiencing. I stopped vytorin, I am not taking any statins drugs now. My doctor order a blood test to check for muscle damage, It indicated severe damage, a Creatine level of 770. This level should not be over 200. After being off the drugs for 30 days the creatine level dropped to 645. My condition has improved by 25%. I am walking a little better, but I still having muscle problems, there is improvement. I think there will be a very long recovery. There seems to be some evidence that these Statins affect people of age much more than the young. I am 70 years old. PLEASE PEOPLE, IF YOU ARE TAKING STATINS DRUGS, STOPPED NOW! SLOVE YOUR CHOLESTROL PROBLEMS BY OTHER MEANS. Since I stopped my cholestrol has gone from 157 to 280, but I am not going back taking these drugs. I am trying the natural way now. I have read post after post on many web-sites of people with the same symptoms that were using these drugs. The drug companies and the FDA are responsible for the the degradation of people's health taking these statin drugs.

i have a family member on zocor. he has been dx, and rx for anemia without a known cause. can statins cause bleeding disorders.(anemia)

I had been taking Zocor for about five years when I developed a tingling in my feet & toes. I went to my Doctor
and he said I probably had a pinched nerve that was causing the problem. So I went t a chiropractor for about a month, but the problem got worse. Went back to my doctor and he immediately said that I had neuropathy. I went to a neurogolist had tests taken and sure enough I had nerve damage to my feet & legs with severe shooting pains and tight
muscles. I asked the neurologist what caused the problem, he said it was the statins in the Zocor I was taking. I stopped
the Zocor the immediately but the damage was done. The neurologist told me the statin break down the fatty tissue covering the nerves and could take months even years to heal. Now I was a very active 70 year ald man went to the ymca three times a week walked 3-4 miles a day, worked the weights even played golf 2-3 days a week. Well, all that has stopped. walking has become a chore. because the pads of my feet feel like they have big knots in them. But the good news is I wont give up and let this rule my life. I still work the weights and still struggle thru the pain of walking that 1 mile a day. oh yes I have started taking vitamin C for my cholesterol

i thought my life was over. not even fourty years old and ask my doctor to write an order for a toilet lift. thats how bad my muscle hurt. getting in and out of cars, as though i were a 90 y/o. horriable! and we didn't know why. doctor did not make any refference to 'statins" . In addition to muscle death, restles leg syndrome found me as well. really thought i was dying from an unyet diagnosed disease. and where did that come from? all of a sudden everyone has it.
this was nonexistant not that long ago. similiar to the " bi -polor. every other person seems to have it or someone they know. I'm still mad. iwill never be the way I was prior to all this. I want to sue the shorts of the maker;'s and or the F.D.A.
don't they approve these drugs first? all comes back up the drain pipe . Does it not?. the cost alone from ill considered passage of such drugs does more harm than good. not only suffering but death. millions of dollars from the side effects. all these costs are passed on to the state and or one pocket book.
my cholesterol is o.k. now but with each blood test and blood donation i give mentions enzymes.. now i willl also check reports for(cpk) lookin to sue you ZOCOR..

This is in response to guest #36367. I am also wanting to know about any class action lawsuits. I have been off of Zocor now for four months. I am still left with my problems such as muscle twitching (I would say it is about 75% better), sore legs and shaking. My doctor told me she has another patient who has the same symptoms as I do, and after a year she still has problems when she is stressed, sick or tired. I don't think this problem will ever go away. My neurologist couldn't find anything wrong with me and said he thinks I had a neuromuscular reaction to statins. I have always been in good health and felt good, but not anymore. I hope someday I am 100% better, I was shooting first for one month, then was hoping maybe at two months, now I am hoping at six months I am back to me. Good luck.

I'm a 28yo male. I have already shared my experiences as guest #31827. This is an update of my condition.

It has been over four months now since I've stopped taking Zocor(which I only was on for one week at 10mg), and there has been little change in my condition. My neurologist said that I have drug induced myopathy and It can take six months to recover from, with 100% recovery, and there is nothing they can do as far as treatment for it right now. I found out that my muscle enzymes were up to almost 6000 when I was on the Zocor. I'm still very fatigued, weak, muscle tightness, bad tension headache, neck stiffness/pain, vivid dreams every night, very out of it mentally(brain dead). I'm a firefighter/paramedic for a living, and have been unable to work because of this. I'm really hoping and praying that I recover very soon and get my life and job back.

Does anyone out there know about any class action lawsutes going on? Has any of you been in my condition and fully recovered, and how long did it take you? I'm young and healthy otherwise. This shows you how powerful and dangerous statins are! If you have any insight for me and others about recovery write back.

I'm a 28yo male. my over all cholesterol was elevated at 248. I am a very healthy person otherwise, and active. My HDL chol is very good. My Dr. had me try to lower my chol by diet and excersise at first for a little over a year, but didn't work. About two months ago he decided to put me on Zocor 10mg. The day i started taking it I felt very tired, weak, very dazed. I told my Dr. and he said it was a likely side effect and to keep taking it. After a week I was still feeling bad to the point where I had to call in sick to work. My Dr. finally told me to stop taking the Zocor and come in to the lab to get my blood drawn. A few days later my results showed that my liver and muscle enzymes were way elevated. My Dr. called me and said to drink copious amounts of water to flush out my system. After about a week of still feeling terrible my liver and muscle enzymes were back down to normal range. That was almost two months ago and still feel terrible. I've been very fatigued,muscle weakness,muscle spasms all over my body,dizziness,very sharp headches, stiff neck,but mostly pressure in my head and in my ears which cause them to pop and ring. My back even got really stiff and sore for a couple of weeks. I've been in such a daze. After 8 hours of sleep when I wake up in the morning, I feel like I've only had about two hours. I've been back and forth to my Dr. many times over the past couple months, and he's started telling me that because of taking a low dose of Zocor for only a week, he doesn't think it was the statin that is making me feel like this and said it could be a virus, and has been drawing blood for lyme disease and mono etc., which have all came back normal. I believe this is ALL from the Zocor!! I think I have drug induced myositis. I am scheduled next week to see a Neurologist. Hopefully he can give me some answers. I hope my experiences can help one of you out there. Alot of Dr.'s out there aren't aware of how dangerous these statins really are!.

90 days on Zocor and began having severe pain in left quads. At about 10 weeks, I noticed slightly darkened urine after exercise. I was on vacation and the pain was intense and my urine got very dark. My husband is a physician and was working out of town when I began having these problems. He did not make the connection to Zocor until he returned home and realized I had lost nearly all my muscle mass. My physician was shocked when he saw me a couple weeks later in clinic. It is 3 months later and I am still fatigued and have severe pain with exercise. I am now taking COQ10 and have stopped exercising until I feel better. My husband believed that the potential side effects of statins were far outweighed by the results. He is now very concerned about their side effects and plans to prescribe them far less often.

43 yr. woman on second try with Zocor. The first time was 6 years ago, and I thought the muscle and hip pain was a side effect from another medication that I was taking. Recently, I've been taking Zocor for 6 weeks and the muscle pain and deep bone aches along with the severe fatigue have been unrelenting. It's not worth such a change in my quality of life and I'll be researching for other alternatives. PS. When I first told my doctor about the symptoms, he said it wasn't the Zocor and that is was in my head. I found that depression is also a side effect of statins. Hmm, my research has consistently directed me to information that tells me it's not in my head. Needless to say, I'm frustrated.

I am so glad I found this site. I have only been on Zocor for three weeks and have pain in every muscle from head to toe. It burns at times and at other times even my skin hurts. My vision has gotten hazy. I can't even open a bottle of water without help. I am only 42. I was put on 40mg every evening - because of being diabetic and the dr wanted my level to be at 100 or lower. I am in a lot of pain. The dr told me to stop taking the Zocar and sent me to the urgent care for lab work. Now we just have to wait for results. After what I have read here tonite, I am going to avoid statins and work on the diet and excersize aspect. It worked with using cinnamon for my diabetes.

This post is about my mom she was put on Vytorin which is a combination of Zorcor and Zetia. Her cholesterol was not all that high but her Dr wanted her to try it to see if it would come down. She was on it for one month and her cholesterol droped from 195 to 86 BUT she was having really bad headaches and her neck would be stiff her legs hurt and she had blurred vision in her left eye only and shooting pain in the left side temple. Before taking Vytorin she was in pretty good shape for a 71 year old but not she is so tired all the time, I am really worried about her overall health. Yesterday when I took her back to her Dr to find out why she was still having these problems he said the medician should already be out of her system since she quit taking it on Nov 17. I requested that he send her to the hospital for blood test since Vyortin had been known to make blood test abnormal. I also requested a CoQ10 Blood Test which should show any damage to the muscle tissue which can be a side effect of the Vytorin it breaks down muscle tissue in some cases. I really think MD's need training on these drugs before giving to patients. Also do anyone know how long it takes these meds to get out of the systems. Has anyone else had these problems. Thanks for any response and help. Sharon