November 18th
2008
3:25 PM
60 year old male on zocor for approximately 10 years. taking 80 mg daily.
only recently (within the last 18 months) i noticed some changes going on.
first i had joint pain in my feet, both feet, same areas. the foot pain went away but then the pain traveled up to the back of my legs, behind the knee,
when the muscle or tendons attach. every time i sat for awhile, then got up, the pain was brutal. that lasted about 3 months. later the pain shot up to the joints in my hands. both hands, same place on both hands. when i rotate my thumb or move it, the knuckle area of the thumbs, same place,
hurt bad. i will confront my health care provided at the va on these issues.
she disregarded my previous remarks and said arthritis, hands and feet and perhaps i overextended something at the gym on my behind the knee issue.
i think she is wrong. recently i had a severe cold and did not take the zocor for two days. the thumb pain subsided substantially. i resumed and the pain came back. now it feels as if the pain will travel back down to behind my knees again as i am beginning to feel a pull. any others out there with these issues???
November 13th
2008
2:04 AM
I'am 45 year old female and I have been on simvastatin 40mg for at least 6 months. Here in the past 3 weeks I have had very weak legs and arms,they felt like they were wet noodles. I also was getting these week spells where it felt like I couldn't lift my arms or legs cause they was so weak.I had pain in my ear and big bad headaches that wouldn't leave. My heart feels like it skips a beat and I get very bad anxiety attacks. I have been to the ER several times and they can not find anything wrong. I even got very dizzy. The ER doctor told me that the dizziness and headaches was from a inter ear disturbance,well I think the inter ear disturbance might have come from the simvastatin after running across this web site. I'm going off the simvastatin tomorrow! Oh yeah and forgot to mention the weight gain and the tiredness and how I feel like a couch zombie. I think I'll stick to my salmon oil.
-- By nanashouse60 | Reply | (2) replies | Private Message me
November 4th
2008
10:41 PM
PLEASE HELP! My father, age 74, was on lipitor for a year or so and then was switched to zocor a few weeks ago to help control his cholestorol. In the past week, the tightening he experienced in his leg, while on lipitor, has become debilitating leg pain now while he is on Zocor. Ultrasounds have ruled out a blood clot. He has no pain when he sits, but he describes the pain has his calf wanting to explode when he stands and he cannot walk with out the help of a cain. The pain radiates from his leg up to his hip.
His cardiologist has taken him off the zocor for a few weeks to see if there is an improvement. It has been 3 days and he feels a bit of relief. SO here is the million dollar question: His labs indicate his cholestorol is normal now, most likely thanks to the statins.....can anyone suggest another form of meds that will help regulate his cholestorol....say COeq10 and fish oil? Any help is SO appreciated!!! Thanks to each of you for your posts. It is so comforting for my dad to know he isn't developing a new issue and that it can be resolved with the removal of zocor!
-- By reneedejager | Reply | (6) replies | Private Message me
October 1th
2008
3:25 PM
I am a 58-year-old woman that changed from zetia to zocor about 6 months ago because of the price of zetia AND I had tolerated the zetia ok but my chol was still elevated. My initial dose of zocor was just 10 mg, even though I had a lot of aches and pains from the slighest exertion I really did not connect this to zocor. After my last checkup, the doctor wanted to up my dose to 20 mg daily because my chol was 228 (liver functions were all ok). I have been doing that for 6 days and my legs have become very achy, my left knee has swollen above my kneecap (which is very painful), and my lower back hurts. I have been having a lot of trouble sleeping and feel draggy all the time. I got on the net to research these symptoms when I found this site. I am going to go off this med and see if my condition improves! I will post an update as to the results.
-- By mom2alex | Reply | (2) replies | Private Message me
September 28th
2008
5:06 PM
I'm a 54y/o female prescribed zocor for slightly elevated cholesterol. Too it for 7 months before I clued in to the cause of my many symptoms. The muscle and joint pain, head fog, blurry vision, weight gain, stomach upset, fatigue, etc... The muscle and joint pain were excruciating at times --especially in my left hip...which had gotten so bad I needed a walking stick for support. Felt like I was 95--and never going to feel normal again!
After reading many postings I decided to stop my zocor 6 weeks ago and am very happy to report an improvement in many of my complaints...although far from where I want to be.
I am curious as to the withdrawal effects others may have experienced. The first week coming off I had stomach aches and I had awful headaches which thankfully did stop. The stomach aches and touchy digestive system still plague me though. Am I the only one experiencing this?....
September 24th
2008
1:47 PM
I was prescribed Zocor for high cholesterol. Almost immediately I began to experience body aches -- some days more severe than others. I would take ibuprofen and it would help. Then, I started getting a pretty strong pain on my hip which radiated down my leg onto my foot. The pain was so severe, even the Motrin 800 mg. pills didn't help it. I am 53 years old, but I felt like a 90 year old. I had problems walking, especially after sitting for an hour or so. I had problems with stairs. Even laying down was painful. I tried heating pads, ointments, etc. When I told my doctor about it, she said that this was a typical side effect of statins, and that because I am diabetic, I need to continue taking Zocor to keep my cholesterol down. Just the other day, I stopped taking Zocor for 3 glorious days and guess what? NO pain!!! I resumed it because my doctor insists that I stay on it, but I wish there was something else I could take that wouldn't cause pain.
-- By michellerodriguez2392 | Reply | (12) replies | Private Message me
August 27th
2008
4:38 AM
Hello Everyone,
I am 33, male, I have been doing sport actively for at least 10 years (swimming and running) and I have been leading a health-conscious diet. I have a hereditary high-cholesterol condition, a type which appears in adulthood (so they say). Since 2004 my blood tests have showed roughly the following results: HDL 1.1, CHL 6.2, LDL 4.1, TRI 4.38 (mmol/L).
I have been taking Zocor 40mg for about less than a month and recently I have been experiencing cramps in my left lower arm, fatigue, itching (this morning for example I was woken by the cramp in my left arm, not nice). I have just read all your posts and have decided to abort my Zocor treatment at once. I have bought Q10 capsules and vitamins and started to drink 4 liters (herb tea) a day. I hope the pain will soon abate because now I have a totally dysfunctional left arm (I can't grasp because of the pain).
I am going to write in a week's time about the de-Zocoring of my body. In the meantime, I wish a speedy recovery to everyone.
Peter
-- By peterpan | Reply | (2) replies | Private Message me
August 16th
2008
12:58 AM
I have been on zocor for over a year, about 8 months ago I began to have pain in my left arm, got and injection and it was better it started again in my left arm , this time there was pain , tingling, numbness, swelling , it got better but it moved to the right arm which is twice as bad, I am often brought to tears from the pain..I sometime describe the pain like shutting your hand in a car door. My Dr keep giving me the same meds.
-- By justjean | Reply | (2) replies | Private Message me
July 29th
2008
11:38 AM
I have experienced burning in my arms, legs and feet. If you have how long did it take to stop after stopping Zocor? I have been off for 3 weeks and no relief.
-- By burnbabyburn | Reply | (3) replies | Private Message me
July 24th
2008
2:31 PM
I was prescribed Zocor approximately 1 month ago. I began taking the Zocor and immediately on the first night I had slurred speech. It went away after two nights...but I continued to have horrible headaches for about a week. Finally, I thought I was in the clear. After about 3 weeks, I had a little spasms in my left leg...from the foot to the hip. It went away...and a few days later it showed up in my right leg...from my foot to my hip. My right knee is currently on fire...and I can't walk really well. I have a tendency to dray my right leg behind me. It gets better after a period of rest, but as soon as I try to walk...it's back again. I stopped taking Zocor a few days ago, and I see the doctor tomorrow.
-- By trinity33 | Reply | (1) replies | Private Message me
July 21th
2008
10:49 AM
Over 6 years ago, the following Petition was submitted to the FDA, I would encourage every patient being treated with statins to read it and bring it to the immediate attention of their physician:
CITIZEN PETITION TO CHANGE THE LABELING FOR
ALL STATIN DRUGS (MEVACOR, LESCOL, PRAVACHOL, ZOCOR, LIPITOR, AND ADVICOR) RECOMMENDING USE OF
100-200mg PER DAY OF SUPPLEMENTAL CO-ENZYME Q10 TO REDUCE THE RISK OF STATIN-INDUCED MYOPATHIES (INCLUDING
CARDIOMYOPATHY AND CONGESTIVE HEART FAILURE). http://www.fda.gov/OHRMS/DOCKETS/dailys/02/May02/052902/02p-0244-cp00001-01-vol1.pdf
May 24, 2002
Petitioner:
Dr. Julian M. Whitaker, M.D.
This Petition is based in part on the clinical findings of Dr Peter H. Langsjoen, MD, which he also reported to the FDA:
Statins kill people - lots of people - and they wound many, many more. All patients taking statins become depleted in Coenzyme Q10 (CoQ10), eventually - those patients who start with a relatively low CoQ10 levels (the elderly and patients with heart failure) begin to manifest signs/symptoms of CoQ10 deficiency relatively rapidly - in 6 to 12 months. Younger, healthier people who's only "illness" is the non-illness "hypercholesterolemia" can tolerate statins for several years before getting into trouble with fatigue, muscle weakness and soreness (usually with normal muscle enzyme CPK tests) and most ominously - heart failure. In my practice of 17 years in Tyler, Texas, I have seen a frightening increase in heart failure secondary to statin usage, "statin cardiomyopathy". Over the past five years, statins have become more potent, are being prescribed in higher doses, and are being used with reckless abandon in the elderly and in patients with "normal" cholesterol levels. We are in the midst of a CHF epidemic in the US with a dramatic increase over the past decade. Are we causing this epidemic through our zealous use of statins? In large part I think the answer is yes. We are now in a position to witness the unfolding of the greatest medical tragedy of all time - never before in history has the medical establishment knowingly (Merck & Co., Inc. has two 1990 patents combining CoQ10 with statins to prevent CoQ10 depletion and attendant side effects) created a life threatening nutrient deficiency in millions of otherwise healthy people, only to then sit back with arrogance and horrific irresponsibility and watch to see what happens - as I see two to three new statin cardiomyopathies per week in my practice, I cannot help but view my once great profession with a mixture of sorrow and contempt.
-- By drmike4777 | Reply | (1) replies | Private Message me
July 19th
2008
6:59 PM
I am 31 year old been on zocor for 8 months. Doctror prescribed it for cholesterol was 230. I have had muscle weakness, pain in shoulder, chronic neck pain,anxiety attacks, hives,and uncontrolled itching,and have been put on meds for depression.I am stopping the medication tomorrow thanks for all the posting very enlighting. Will post again in a few months.
-- By dianabarnett | Reply | (3) replies | Private Message me
July 8th
2008
12:26 PM
I've used the Zocor generic, Simvastatin for approximately 7 months with no problems. Suddenly, I began to experience pain in my muscles and joints. From one day to the next, my body was in excruciating pain especially my knee, I could barely get up from a seated position, and could barely lift my legs to walk. I told the doctor, I felt like a very old person. I am 53 and never had any problem with my knee. The doctor advised me to stop taking the pills. Now, all muscle pain is gone, but the knee pain is still huge problem. I am wondering if this will ever go away or will I be crippled for the rest of my life. Prior to this, my only illness was high blood pressure. I know that my recent problems are from taking Simvastatin.
-- By mhodges03 | Reply | (1) replies | Private Message me
July 4th
2008
3:58 PM
I have been on Zocor for one year. I am a former athlete used to dealing with pain associated with playing and training at a high level. Since using Zocor, my energy level has decreased significantly, very tired, before, during and after workouts. Muscle pain specifically in my neck, back and legs has significantly increased without cause. I have a constant feeling of a stabbing pain in my abdomen, accompanied with nausea, bloating and abdominal gas. After seeing some of the posts on this site, has there been a lot of reporting of abdominal pain? Bloating? Gas?
I too, have had trouble sleeping, accompanied by unexplained itching, and now after seeing these posts probably some mild depression. I believe I've had some short term memory loss - but then I can't really remember - LOL. Is the drug worth it? Physicians all seem to downplay the side effects, justifying the desired lower cholesterol, as more important than the side effects.........is it?
At 46 years old and formerly a competitive athlete at an elite level, I'm wondering if feeling better by NOT taking the drug is better than feeling worse and taking it. My training regimen was very intense prior to starting Zocor - NOW - it seems as if I can't keep up any longer. Any response to these problems would be greatly appreciated.
June 27th
2008
2:59 AM
i was a healthy 35 year old male but had high cholesterol, so the doctor prescribed lovastatin (mevacor) and tried it for a month but developed muscle weakness. months later, i'm still experiencing severe muscle spasms and my neurologist is stumped -- mri's, spinal tap, emg -- all normal. I just want to feel normal again. can anyone help? please email me!
-- By folrsi30 | Reply | (4) replies | Private Message me
June 16th
2008
4:20 PM
This is my second post on this subject. The short story is I had a stroke at 43 years old, doctor prescribed Zocor to me, 90 percent of side affects posted here.
I went back to the doctors afraid I was going to get the treatment from mmy doctor that most others got "your crazy, and it's psycholog". To my surprise the doctor knew exactly what I was going through with the only information that I was on Zocor.
The doctor was aware of the undocumented side affects and told me stop taking it immediately. She prescribed Lipitor and so far so good.
Most of the side affects have gone, the foggy head totally gone. The doctor said I was lucky to be recovering so quickly as most take months and some times years from the damage of Zocor. The longer you take it the longer the recovery time which makes sense. The doctor said that Zocor is cheap and highly dangerous.
I urge anyone coming across this website to see your doctor for a medication change ASAP.
I will post again in six months and give an update.
-- By kevin11 | Reply | (1) replies | Private Message me
June 4th
2008
3:13 AM
Like many posts describing side effects, I was not sure that all the new little health-related issues I've been noticing were connected to taking Zocor. I'm thinking that perhaps my issues are related to the drug, especially since the only other drug I take is Levothyroxine (for hypo-active thyroid). I have been on the generic for two months. (I'm a 39 year old female.)
In the first month, my total cholesterol score was 278. After taking it for one month with no change in diet or physical activity, it reduced to 207. So, the drug does work! Now I need to determine if the cost is worth it.
In the past week, I've noticed several of the side effects listed in some of the posts: sharp pain in knee (feels like there is a paring knife in it!); lower back pain; joints creaking and popping; skin on tips, sides, and underneath of fingers kind of blistering-hardening and peeling off; brain fog in the morning; difficulty maintaining a deep sleep; crazy dreams; general increase in skin blemishes; heartburn; loose bowel movements; and increased sinus congestion.
-- By jendama | Reply | (2) replies | Private Message me
April 1th
2008
10:42 AM
I`ve been on Simvasatin for years- 10 mg. Secrist at ctcn.net The last 2 months blured vision, nausea, numb foot, hands & chin, burning feeling in legs & bladder. stopped the medicine about 4 days ago, will it ever get back to normal? Arlene
-- By secrist75 | Reply | (1) replies | Private Message me
March 31th
2008
3:36 PM
Has anyone been diagnosed with ALS (Lou Gehrig's Disease) after taking Zocor? My mother was just diagnosed and we feel it could be due to the medication. She is/was also taking Toprol.
-- By trose34 | Reply | (1) replies | Private Message me
February 10th
2008
7:34 PM
Everyone should check these web sites to keep themselves sane. I've asked my Doctor about numbness in my arms and hands. I was told that there is no way for it to be from Zocor. The burning pain brought me to tears. I've been on this medication for 8 months and I'm removing myself from this medication. I will advise if and when there is improvement.
-- By debbielv | Reply | (1) replies | Private Message me
January 14th
2008
12:09 PM
I am 27 years old, male, and have had type 1 diabetes since I was 8.
My doctor prescribed Zocor repeatedly in 2007(for high blood pressure) and I was reluctant to taking it because I have no respect for any of the miracle drug companies and feel that they are only looking to make money, not help anyone with their health problems. I finally started taking Zocor (generic) in Nov 2007, then started getting some strange side effects that my doctor never mentioned when I asked him.
My side effects were, but not limited to, muscle pain in the legs and back. I noticed sharp pains in my knee like arthritis and Charlie horses in the calf during time at sleep. I noticed these after about 1 week of taking the drug and lasted through till the end. I stopped taking the drug in Dec 2007 and been off it since. I have yet to talk to my doctor about it, but I talked to his nurse and she recognized the symptoms. I reached my conclusion long before speaking to her however.
Now 2 months have passed since I stopped taking the drug and the pains in my back and legs have disappeared. The arthritis type feeling in the knee has gone away. I have more flexibility and none of the pain that I felt while taking the drug. I am astounded that the clinical trial for this drug doesn't note the muscle pain; at least the notes from trials I found on the internet didn't note it as a side effect.
-- By nheitz | Reply | (2) replies | Private Message me
January 7th
2008
8:02 PM
Is anyone here when referring to Zocor taking the generic or the brand name? I have had trouble with vivid dreams and after several months I am exhausted from this sleep interruptions. I used to take the name brand before they had the generic
and had no problems at all.
The vivid dreams started after taking the generic.
Any responses would be appreciated.
thanks
-- By tammywags | Reply | (3) replies | Private Message me
January 1th
2008
3:47 PM
I can't really say I have anything new to report. I had been taking Lovastatin for maybe a couple of years, first 20 mgs, then 40. I don't remember having any problem with that. Then about 4 months ago my Dr. switched me to Zocor, 80 mgs because my cholesterol was 240. First I started having numbness in my feet and legs, cramps in my feet and Charlie horses at night in my legs. I mentioned it to my Dr. but he just seemed to feel it's part of the aging process and not to worry. Then my knee started hurting so bad I couldn't bend it and could hardly get up and down the stairs. I went in and they said I had arthritis and gave me Nabumetone and Vicodin which I didn't want to take because of the side effects. I finally gave in because the pain was getting worse. I was supposed to take two pills bit I only took one and I only took the Vicodin if I just couldn't stand it any longer. I took the drug for about 3 weeks and I wasn't getting any better. In fact my other leg started hurting, and my elbow and two or three times my lower jaw felt numb and I thought, Oh my God, I'm having a stroke. Anyway by some miracle I found this web site and see that many others are suffering the same symptoms that I'm having. What is wrong with the doctors? I am trusting my Dr. with my life. I'm sure he's heard similar complaints before about these drugs, but he acts like it's no big deal. I told him I don't want to take this anymore and he said well sometimes people do get some muscle pain but you can take a over the counter medication, not sure of the name, CO-2, something like that.
I'm wondering what's happened to the Dr's integrity? Why do they keep pushing these drugs when they know they are harmful? I guess I have to look for another Dr. My Dr. is with Kaiser. I guess they all pedal the same poison. So sad that we are controlled by the drug companies for profit. They are killing us. Look what happened with the HRT drugs. Meanwhile I'm afraid to quit this drug cold turkey since I was on such a high dose so I'm cutting the pills in half, 40 mgs, and then in about 2 weeks I will go to 20 and hopefully by then I will have selected something natural and safe. I am 67 years old. Before this I was active and I used to walk my dog a mile everyday. I can no longer do that. Right now my leg hurts so bad I don't want to take another pill but I'm scared if I quit cold turkey something terrible will happen. It's a holiday...
December 24th
2007
11:19 AM
I have been on Lipitor for several years, but switched to generic Zocor (Simvastatin) for 3-4 weeks because of the high co-pay. I didn't seem to have any bad side effects with Lipitor (or not as bad as Zocor), but have had swollen ankles, sore knees, and difficulty walking for the past couple of weeks--that's why I'm here--to see what others are experiencing.
-- By linda3411 | Reply | (2) replies | Private Message me
December 21th
2007
11:48 AM
I was reading the various side effects and I have one more to add. Has anyone experienced vertigo--not dizziness but spinning. It lasts for about 15 seconds and it's enough to scare you to death! I've also noticed that the whites of my eyes turn red.
I've also experienced pain in my legs, heels and knees. It's so difficult to walk that I had cortisone shots in my knees and three series of epidural in my lower back. No doctor ever thinks it could be from medication. I've been on Zocor 10mg for two years
I've gone to more doctors now than I have in all my years. Everyone is a specialist. No one treats you as a whole. Now I have to go to a neurologist for the vertigo.
I'm thinking all this is related to Zocor. The only other medicine I take is Protonix.
December 13th
2007
8:10 PM
I am a 48 year old male. Was placed on Zocor last year. Since the day I was placed on it, I have felt weak, no ambition, no drive, feel like a zombie. I eventually had pain in my legs so severe that I had to take Hydrocodone so I could sleep. The skin on my thumbs and two first fingers peels off. I haven't had a good nights sleep since the second day I was on this crap. I haven't been taking it since June and still have a lot of problems. I still am very weak, no energy, tired all the time, skin is still peeling off my fingers, can't think, can't keep a straight thought. I have pretty severe pain in my hips that started when I was on Zocor. Also, my knees are very weak, and they pop every time I get up. At the time I stopped taking it, I was unable to make it up a flight of stairs.
My doctor constantly denied any link between any of this and the Zocor, but amazingly, after I stopped taking it, some of the symptoms reduced. I still suffer from many.
I was a small business owner with 7 employees and have since lost everything. I have been unable to find a job now for almost a year. The doctors are all "programmed" to think and tell you that these are good for you.
December 9th
2007
2:11 AM
I am male 37 years old. In June 2007, my blood test shows 249 total cholesterol. After that, I was taking super B-complex, fish and flax seeds pills. It went down to 213 total cholesterol (40 HDL, 136 LDL and TRI 176). And I asked my family doctor to give prescription for Zocor(I asked particular drug because I will get good discount rate at my employer's place). he gave me Zocor 20 mg. After taking 1-month medication I felt some inconvenience during sex . You don’t feel it normal. I can’t do much exercise and some times feel depressed. I usually do 1-hour exercise or any form of exercise (Yoga). After Two months I tested my blood cholesterol level. It shows now total cholesterol 181(LDL 93, HDL 42 and TRI 223). And also showed ALT and urine protein little elevated. Now I stopped medication for past two days, feeling better at day time but night I am having weird dreams and indigestion problem. I guess these are withdrawal symptoms. I would go for natural medication like regular exercise, diet (oat meal, high fiber content, less sugar, less white rice). No more Statin drugs. Any one have same problem?
-- By ksenthil | Reply | (2) replies | Private Message me
November 16th
2007
7:20 AM
I had Hodgkin’s Disease in 1981 at which time they removed my spleen.
I was given a supply of Erythromycin antibiotics as a prophylactic, as a result of my Splenectomy to counteract any ongoing infections etc. and I have used this now for years, on an as necessary basis rather than continual, with good results.
In 1994 I suffered a Heart Attack and they found my Cholesterol level to be 9.6. I had Angioplasty and a Stent was inserted to hold the artery open.
Following that, I was prescribed Zocor (Simvastatin) to reduce my Cholesterol level.
My eyesight, which has always been very poor as I have Cone Dystrophy, deteriorated over the next three years to a point where I was registered as blind in 1998. The form indicated “Primary loss of central field”.
I suffered various side-effects from the Statin including General Weakness, Panic Attacks and Palpitations. My Cholesterol during this period averaged around 7.
The Doctor changed my Statin to Lipitor (Atorvastatin) in 1998.
In 2000 I complained to the doctor that I had severe muscular problems, to a point where I had to wear knee supports just to climb the stairs. He referred me to the Physiotherapist who manipulated my legs and gave me exercises to help strengthen the muscles. I was unable to walk after that for about 2 weeks!
By sheer fluke, I went on holiday in 2001 and forgot to take my Statins with me. I did not start taking them again straightaway when I returned and I noticed my muscles improving. As I had an appointment with the doctor, I started taking Lipitor again and found that my muscles again deteriorated.
Apart from the muscle issues I experienced lethargy and some digestive problems.
I suspended taking the Statins in October 2001 and my muscles gradually returned.
My Cholesterol crept up to 9.2 and I was referred to the Lipid Clinic at St. Bartholemews Hospital in March 2002.
The specialist there put me on Lescol (Fluvastatin), together with a diet of fruit, beans and chicken.
My muscles continued to return but I suffered from sleeplessness, nightmares and headaches and generally felt unwell. My Cholesterol did, however, reduce to 6.1 and my Triglycerides fell from 14 to 2.3.
In July 02, I stopped taking Lescol (due to erectile dysfunction) and my general well being improved immediately.
I was not prescribed any other Statins at that time and by February 2003 my muscles had returned to almost normal but my Cholesterol had crept up to 8.7.
In February 2003 the Lipid specialist at Barts tried me on Supalip 180 Fenofibrate together with Ezetimibe, due to my intolerance to Statins
On this combination I suffered from fatigue, impotency and again, muscle wastage so I stopped taking any Cholesterol reducing medication for a few months and my Cholesterol rose again to 8.3.
Between May and August 2004 the Clinic tried me on Pravastatin and Ezetimibe but I still suffered from fatigue and impotency and stopped taking any Statins, with my Cholesterol at 7.3 and Triglycerides at around 7. Lipid clinic suggested trying Rosuvastatin (Crestor) but I had had enough by then and thank my good judgment for not taking it, as the side effects are reportedly worse than other Statins.
For the next 3 years, I felt fit and strong with no problems with my muscles nor any sleeplessness, panic attacks etc. In July 2007 my GP took a blood test. My Cholesterol level was 7.4 with Triglycerides at 7.
Over the last few months, I have been taking my glasses off more and more to be able to see more clearly. In the last few weeks the clarity of my vision has improved considerably and I can now see people’s faces and generally much more detail. Red things, like buses and traffic lights are now considerably brighter and I am now able to watch TV from a distance again rather than sitting a foot from the screen. I find I no longer need to wear glasses with a special red tint to improve my vision.
My vision appears to have almost returned to the level it was in 1994 before I had my heart attack and Statin therapy.
I have recently found that one of the side-effects of some Statins is blurring of vision, particulary the statin Zocor, and that this is also a symptom of Rhabdomyolysis which is caused by the taking of Erythromycin with Statins. I do not know what the nature of the blurring is, but nobody has ever mentioned that Statins could affect my eyesight.
Looking back at the timings, I had been on Zocor for 3 years when I was declared blind, and it could be only now that I have been off Statins for 3 years, that my eyes are recovering.
Whilst researching the side-effects of Statins which include, in particular, muscle breakdown and blurred vision, I have found that they should not be taken with Erythromycin!
I believe I suffered blindness, resulting and much discomfort for years as a result of misdiagnosis of the side-effects of the Statins and the prescribing of Statins whilst being prescribed Erythromycin.
I believe that Cholesterol levels in people who have had a Splenectomy are abnormally high and people who have a Splenectomy should be warned to immediately go onto a low fat diet and not have toasted bacon sandwiches on the way to work every morning as I did!
The Lipid Clinic also suggested that my complaints about various side effects were psychosomatic and even told me not to look at the side effects leaflet with the pills, just to give them a try for 6 months..
I recently visited my GP and suggested that the combination of Erythromycin and Statins was the cause of my severe muscle breakdown and eyesight deterioration and questioned whether the Statins should have been prescribed when I was on Erythromycin. He advised that he would not do so, would suspend one or the other, but that they probably knew more now than they did a few years ago.
I just wonder how many other people have been suffering for years, just thinking their health and vision is deteriorating with age, when it is probably the medication they are on!
October 30th
2007
10:22 AM
I am 59. Not overweight and now eat intelligently .Had moderate heart attack in August 2001 and have taken 20mg of ZOCOR every day since.About four years ago I stated getting mild pain in right buttocks muscle and groin but thought this was just "AGE" setting in.Doctor thought it was arthritis in lower back and causing associated musle strain.Went to physio but no progress in pain alleviation, in fact pain and weakness kept getting steadily worse.Pain then started in left shoulder last spring (2007) then about three months ago really severe in left hip and buttocks. Sleep was interrupted every night by pain.Movement from sitting position to standing/walking was like a ninety year old,slow and stumbling.My legs felt nearly numb when walking.Getting out of bed in the morning and putting on my socks became an ordeal of PAIN.
Seen my doctor last week and told him of current status and that I couldn't go on like thisanymore.He said to STOP the Zocor immediately. I can feel the difference already, in one week!!! Not perfect but maybe 50% improvement!!!
He ordered a battery of blood tests including PSA . I just hope something else isn't now really F--ked Up from taking this stuff for six years ?
I will defiately NOT TAKE ZOCOR or any other STATIN again!!!
October 14th
2007
7:56 AM
I take zocor 20mg every night. My ankles are puffy and do hurt, but my biggest problem seems to be my intestiines. I know this isn't a very nice subject to talk about but I was wondering if anyone else has these same problems. I have awful smelling gas and non formed stools every morning. I don't know if this is a side affect of zocor or not, but it seems to have started about several months ago after taking zocor for awhile. Any help anyone can give me will be greatly appreciated. I am also a type 2 diabetic and take metformin twice a day.
Thanks
-- By retirednana | Reply | (1) replies | Private Message me
October 1th
2007
6:32 PM
I am so happy after taking myself off ZORCOR in mid August 2007. I have my ankles back. They had been swollen. My knees were swollen and were so painful. Although I am 66, I have been active all my life in activities which included running(now walking) aerobic dancing, swimming, hiking to name a few. In June 2006 following a strenuous down hill hike, I experienced knee pain and swelling. I was taking 10 mg. of Zorcor at that time. I went to see an orthopedic doctor and he gave me an injection of steroid in the knee joint. It did relieve the pain. Then the right knee started. My knees were so painful, that I could not sleep, I had difficulty doing stairs. In fact I began walking backwards down steps so the knees would not bear the weight. It was after I was advised to increase the dose to 20mg.that the addtional side effects began. I was having difficulty standing from a seated position and even purchased a sofa that was more firm so I could rise from it.
I could not sleep,I had shoulder and arm weakness and lethargy set in. Normally I am active from 6:30 AM until 10:30 PM still working and very involved in my community as well as hobbies. At 20 mg. I was tired, losing interest and was content to be a couch potato. So I went on the internet and read everything I could find on Zorcor. I noted that I had 5 of the 7 major side effects which included itching skin, particularly from the knees down, itching,scalp, trigger fingers (thumb index and middle fingers were locking as much as 3 times a week. Just touching my legs to put on body lotion was painful. I felt as though I was getting the flu, just really down(depressed) and tired. I decided to stop the ZORCOR so I could sleep. Within 3 days I found that the pain in my knees was gone. I had my ankles back (no swelling). It has been six weeks since stopping Zorcor and I am back to my former self. I will never take STATINS again!
I will continue to exercise and maintain a diet rich in fiber and fruits and veggies.
Quality of life still vies for Quanity in my book.
September 27th
2007
7:51 AM
I have been off Zocor now for almost 6 weeks. I am not sure if my symptoms are from Zocor but they have been slowly, very slowly getting better. I have had numbness in both my legs, groin area and feet. Now there is this crackling feeling in both my feet and the numbness has changed to a feeling that my muscles are tightly flexed all the time. Has anyone else had these effects? I am trying to see if it is the Zocor or may be some other problem I may have.
-- By shinkosky | Reply | (1) replies | Private Message me
September 12th
2007
1:33 PM
My doctor started me on Mevacor a few months ago at 40 mg - I could hardly stand up to walk - my back was killing me! Then she put meon 5 mg of Zocor - okay for the first few weeks, and my cholestorol went down so she told me to double it to 10 mg - then the leg cramps started. I stopped taking if for a few weeks and restarted at 5 mgs (again) last week - now my legs are aching and my ankles are swollen big time. Also noticing fatique and some blues/depression. I told my doctor today that I am not taking it anymore! Not asking her, TELLING her.
-- By madammarina | Reply | (2) replies | Private Message me
June 28th
2007
4:47 PM
on zocor since dec 2006, i have alot of other medical problems, arthritis, fused foot, very bad lower back and some osteoporesis, but i believe more so, than not; that my symptoms increased after a change in dosage. now i'm very tired, extreme muscle weakness, knee pain, having trouble walking, weight gain (10 lbs in last 2 months) and unbelievable swelling in ankles and top of foot, very painful
It's hard to blame zocor on this, but i don't just want to wear compression socks and so forth, because that could be masking the cause, and maybe just a change in lipid medication will change things around. it's a vicious circle, cant work out or walk, to tired to do anything, but work 14 hours a day, it's such an effort to walk (I keep blaming the weight gain) but maybe its really the swelling and joint pain along with the muscle weakness that's to fault.
June 14th
2007
2:23 PM
When I started taking Zocor a few months ago I also had added aqua jogging to my exercise routine and I thought that the tiredness, fatique, muscle aches and the swelling in my knee were from exercising. I thought it was strange the my body never adjusted to it because it should have become easier with practice. At that time I was also walking 3 miles a day. About two months ago the doctor increased my dosage. The pain in my legs became unbearable. I tried walking and it was difficult when starting out and became increasingly harder until I started feeling light headed and just couldn't go any further. I have also been experiencing blurred vision and pain in my shoulders and I thought that was from aqua jogging. I called my pharmacist to see if I was taking anything that could be causing those symtoms. Immediately he said it was the Zocor. My doctor doesn't agree. He has since diagnosed me with diabetes but my meter has never shown and readings that would indicate high blood sugar and he has ordered ultra sounds on my legs that showed nothing. Where does one go to get help with this problem? I have missed so much time from work that I have gotten a "warning". Also, I am registered to go back to school in the fall and I am afraid I may not make it if I am not feeling better by then.
-- By gg4262 | Reply | (1) replies | Private Message me
June 14th
2007
8:17 AM
I had my first MI at age 57 on Oct. 29th 2004. I was given Zocor 40 meg. and my problems started in the hospital. I had terrible leg aches and they even looked for clots. Finding nothing I was sent home after 5 days with two stents and told if I got tired just rest. I had to take two months off work. In January I returned back to work but the leg aches continued at night. In January I returned to the hospital with another episode and received three more stents. My cholesterol was at 110. The Dr. continued me with the Zocor 40 mg. twice a day now. I continued to have problems with clogging arteries and in the next four months I had another 4 stents. In the summer I walked a lot and still continued to have leg aches at night. After a year of complaining I was put on Vytorin and things really got worse. In six months I couldn’t walk right, kept falling, couldn’t sleep with the cramping, my joints all felt like they no longer supported my frame. I was put on Crestor, then Lipitor, then Zetia, and then I took matters in my own hands. I stopped the statin drugs. My cholesterol skyrocketed of course to 289. It was only 189 at the time of the first MI. I have slowly regained my ability to walk and joined Curves. This is about all I can do and am slowly getting better. I tell everyone I can about my horror story with statin drugs. I’ve been to an arthritis specialist, negative on all forms of arthritis causing this. I went to a gastric specialist and no stomach problems. I was sent to a neurologist who told my muscles were very weak and not to take statin drugs, but like all the Dr.’s I’ve been referred to none would touch the statin drug issue. My last referral was to an orthopedic surgeon because of my walking problems, and at first I was told that if my hips didn’t stop degenerating I would need them replaced to be able to walk. Last month after 9 months off statin drugs he retook x-rays and said my hips are looking fine. There is hope. I have been on a strict diet and exercise program and am ready to start stationary bicycling to try to rebuild muscle mass lost during the 2 years on different statin drugs. I also took C10 150 megs. after getting off statins to see if that would help and I don’t know, but I am told to keep doing what I’m doing. I hope the cholesterol will come down as I eat more oat bran or oatmeal. I hope my story helps some of you because I do believe I am getting well.
-- By swakasuperwoman | Reply | (2) replies | Private Message me
June 5th
2007
9:43 AM
I have been taking zocor for about 3 years. Started out with 10 mg every other day, then every day; for nearly the last year I have been taking 20 mg once a day. It did lower my cholesterol enough to suit the doc. Did not really notice any symptoms at first. It seems I have been noticing more and more problems recently. Especially after my husband decided to tell me that he thinks something is very wrong. Maybe my problems are just age related. Most recently I have had two falls brought on by a simple "toe stubbing". For the past 3-4 months I have had unrelenting lower back pain and hip pain. Both to the point that I can't sleep and am having trouble walking. All of that I attributed to arthritis which I do have in my hands. The tingling, pins/needles sensations and foot pain started over 2 years ago but my doc said that couldn't be the zocor. My liver function was normal every time he checked. Diabetes has been ruled out. I am overweight so I just wrote off the fatigue to that. But - three years ago I was walking daily on our farm - up and down hills for over one hour at a time - and teaching high school full time. I am retired now and I don't think I could do that much walking because of the pain and stiffness. Does any body know how long it will take me to get rid of the symptoms? I stopped the zocor without the doc's knowledge day before yesterday.
-- By horselady | Reply | (1) replies | Private Message me
May 28th
2007
2:00 PM
After by-pass heart surgery in 2002, my cardilogist put me on 40mg of zocor.
I was in good health with no physical limitations. I had no heart damage. The restriction of heart arteries were found due to my stress test that was performed each year as a part of my annual Physical. After surgery I was on zocor for three years, during that time I experienced a little tiredness, little weakness, a little muscle aches. some tingling in my right arm and shoulder. I went to my heart doctor Jan. 2006 and he changed me to vytorin (10mg zetia and 40mg zocor). about 6 months all of the about symptoms got worse.
By Jan. 2007, my muscles became so stiff, I could not walk, had balance problems, severe muscle aches and cramps, numbness and tingling in both arms and hands, also stifness and pain in my hands, stiffness and pain in both feet, stifness and pain in my back and weird nerve sensations over my entire body. During Jan. and Feb 2007, I was seen by my family doctor, a neurologist, and a muscle doctor. Thanks to the internet, I found info on zocor and zetia, which is the drug vytorin. Warnings described the same symptoms I am experiencing. I stopped vytorin, I am not taking any statins drugs now. My doctor order a blood test to check for muscle damage, It indicated severe damage, a Creatine level of 770. This level should not be over 200. After being off the drugs for 30 days the creatine level dropped to 645. My condition has improved by 25%. I am walking a little better, but I still having muscle problems, there is improvement. I think there will be a very long recovery. There seems to be some evidence that these Statins affect people of age much more than the young. I am 70 years old. PLEASE PEOPLE, IF YOU ARE TAKING STATINS DRUGS, STOPPED NOW! SLOVE YOUR CHOLESTROL PROBLEMS BY OTHER MEANS. Since I stopped my cholestrol has gone from 157 to 280, but I am not going back taking these drugs. I am trying the natural way now. I have read post after post on many web-sites of people with the same symptoms that were using these drugs. The drug companies and the FDA are responsible for the the degradation of people's health taking these statin drugs.
May 20th
2007
9:14 AM
Anyone have peripheral neuropathy on Zocor? I had shooting pains down both arms for a few days one month into taking Zocor. This stopped but is replaced with intense muscle pain in arms, hands, shoulders and back - and recently hot flashes. I stopped taking the Zocor 3 days ago AMA (against medical advice) as my doc said the neuropathy is not a side effect of Zocor.
-- By lizzieborden | Reply | (5) replies | Private Message me
April 30th
2007
4:00 PM
I had hot flashes while taking Lipitor and now am experienceing them with Zocor. Anyone else experienceing the hot flashes.
-- By phshleach | Reply | (3) replies | Private Message me
January 30th
2007
7:37 PM
after 1 week on drug, my legs began cramping and were very painful. I walk regularly 3 miles every day, and with this drug I could not walk at all.
Worse, this drug triggered tinnitus (ringing in the ears) that has persisted after discontinuing the drug.
-- By elabogado | Reply | (3) replies | Private Message me
April 12th
2006
11:01 AM
Started Zocor in May 2005, took for approx. three weeks. Had been given samples by GP. Stopped June 10, 2005 due to problems. Following is a list of symptoms as they occurred. Head shake, thinking and speaking problems, difficulty swallowing, weakness, low back pain, muscle spasms, pain in legs (especially left leg) Kidney pain, dark urine for one day only, and especially extreme fatigue. GP said was Myopathy. didnt seem to know cause. Continued to get worse untill approx. July 15, 2005. Started phy therapy. This helped to build back the muscles lost but would only build to a certain point. Presently, april 2006, Most of the symptoms have abated but I still have difficulty walking and standing very long. Had to quit working, could not handle. I will keep updating as I progress. This has been some nightmare.
-- By chop1111 | Reply | (1) replies | Private Message me
April 10th
2006
8:31 AM
So glad I found this site! I have been on zocor for several years and began having pains in my hips and had tension headaches. X-rays were taken and the dr. said I had arthritis in my neck and back, ok, I accepted that but what about my fingers, elbow, arm and shoulders? I know I have carpal tunnel in my right hand but getting on and off the toilet was very difficult with the pain. I could hardly move, my legs ached so bad. my memory was terrible, i thought old age! I am 55 years old! I have hot flashes, night sweats, don't sleep well, vision is getting blurry. I decided after reading everyones comments which sounded like I was writing them, to go off of zocor. Within 3 days I began feeling less achy. I do wear a brace on my hand for the carpal tunnel, which helps some but not totally. It has been a full week and i can move so much better. My hands and wrist are still sore but my arms and legs are feeling better. I just hope in weeks to come I feel alot better. We got back to the doctor the beginning of May so I am hoping he will agree with me for going off the medication. After all, it is my body!
-- By suef | Reply | (1) replies | Private Message me
June 1th
2003
2:26 PM
JOINT PAIN, LEG PAIN, WATER ON THE KNEE, GOUT SYMPTOMS, WHAT A WONDERFUL DRUG!
I have been on 20mg for a month and a half. My doctor has said it cannot be the ZOCOR. I have never had problems like this before. Almost two months since stopped taking medicine but my knee has limited use. DO NOT TAKE ZOCOR!
April 11th
2003
4:06 PM
I am a 62 year old male I have been in excelent health all my life. Ive been on zocor for 3yrs and complaining to to my cardioligist for two years about leg pain and cramps.Ive been off zorcor for 6wks with little or no improvement, I have severe leg pain and spazims my arms are numb my face is twiching my chest is giving me similar symtoms which scares the hell out of me. Ive had to take zanax anti depressant meds. How long will it take to go away? After reading about all the other people with the same symtoms, it's deplorable that the doctors are still handing this stuff out to paitienst. HELP! HOW LONG TO GET RID OF THE PAIN. LETS GET TOGETHER AND SUE. JERRY
-- By jandhprop | Reply | (1) replies | Private Message me
April 29th
2003
5:32 AM
My 84-year-old mother's been on Zocor for 2 years. Her dosages increased from 20 to 40 and then to 80 mg. On the lower doses, she only had leg cramps when she missed her twice-daily calcium supplement. Since the 80 mg., she has leg cramps constantly. When I finally realized it was the Zocor, I had the doctor take her off of it. But 4 weeks later, she can hardly bear weight on her legs and has generalized flu-like symptoms. I'm really worried that the muscle damage might be permanent. Does anyone know if it can be?
-- By anbrec | Reply | (1) replies | Private Message me
May 8th
2003
2:08 PM
I am 38 years old, put on 40mg Zocor 3 months agao because of high cholesterol. While it lowered my overall numbers, I started having a fuzziness in my head, not sharp minded, fatigue. I exercise 4x a week and was losing energy. At first, I associated it with stress until my stressful project was finished, doctor upped my dosage to 80mg and it hit me, it was the Zocor. I have been off for 10 days now, headaches still there, but hoping they will go away. If anyone has thoughts, let me know at build2suit@excite.com
-- By www.build2suit | Reply | (1) replies | Private Message me
November 28th
2008
11:25 AM
I have been taking Zocor for 6 months. In the past 3 weeks I have developed intense tingling and burning in both legs from my feet to my knees. I also have a feeling of numbness in my right foot that at times is in the whole ball of my foot but will move to the side of the ball of my foot. I have been to the ER twice and all my neuro checks were normal even though my legs felt like they were on fire. I just this past week had a MRI of cervical and lumbar spine. My doctor is thing the symptoms may be related to the significant arthritis I have in my neck and may be due to nerve compression at one of the discs but I don't think so. I was worried about MS and Guillian Barre as these can be symptoms of those diseases as well but I didn't have any other symptoms of those diseases. At my last ER visit the doctor put me on Neurotin for the burning in my legs. I just happened to think to look on line for med interactions and side effects of the meds I am on and would have never expected that Zocor could be the culprit. I was astounded to find that the tingling and burning was more than likely due to the zocor. I stopped taking it about 4 days ago and am showing some improvement but I am still taking the neurotin. Does anyone know how long it takes Zocor to get completely out of your syste.? I also have nerve conduction studies scheduled.
-- By tjob | Reply | (1) replies | Private Message me