10 Years of Pure Hell
I'm 43 years old, and had 2 sets of lupron, one prior to it being FDA approved, with a set of zoldex in between. I didn't have many symptoms the first set, and the zolodex gave me more bone loss, but the 2nd set did something to my body. I guess I was ... more »
I'm 43 years old, and had 2 sets of lupron, one prior to it being FDA approved, with a set of zoldex in between. I didn't have many symptoms the first set, and the zolodex gave me more bone loss, but the 2nd set did something to my body. I guess I was lucky to have it wait til the 2nd set.
It started with kidney stones. I was in the ER frequently with back pain and each time they found more and more stones. Eventually I had to stop working, and the fight for disability started, which I was finally granted from UNUM after they found they were throwing out cases that should have been approved.
Over the past 10 years I've been diagnosed with fibro, TMJ, IC, osteopenia, joint pain, thyroid enlargement. I have spasms in every part of my urinary tract system, headaches, chronic sore throats, painful intercourse, and the list just grows every few months.
I'm basically in bed most of the time now, trying to give my kids a smile and talk to them as much as possible (thankfully they are adults now, and very helpful to me, I don't know what I'd do without them.), watch movies, whatever I can do to spend time with them, trying not to let them see me in pain. But when I'm laying on the floor, curled up in a ball due to the pain, it's hard to ignore.
I did have my family Dr admit a few times that Lupron did this to me, but he conveniently forgets other times, but luckily he's very supportive of my problems and helping me with them.
I've been to every kind of Dr that there is, and although they all say I'm in a lot of pain, when it comes to putting it on paper, the story changes.
When I had my cystoscopy, I started waking up, and my BP rose quickly, they had to give me more meds to put me out, and remove the liquid quickly because it was so painful. Stupid me thought that was going to be the turning point, and I would be believed, I mean, who can fake that? Also, whenever I go and they have to touch my pelvic area, the skin is so sensitive, I can't stand to be touched. I've become sound sensitive too. I just shake with fear and pain when I have to be checked for anything.
I feel like I'm about 90 years old, and have gone from a thin file in my drs office, to 4 thick files that barely fit in the filing room shelves.
The other thing that happened to me was that after the last set of lupron shots, I had a hyst. I never had bleeding problems for any other surgery, but almost bled to death that night. My GYN wouldn't answer any calls, or had anyone on call, so I suffered all night long until the rounds Dr finally checked on me and rushed me to the OR. I think the lupron caused the bleeding problems, although the GYN said it was the pain meds I was on. Having to go back to him afterwards was even worse to hear him comment on his handywork.
I've had a 2nd cousin that died, not sure if it was from the depression or the pain she was in after lupron, but I'm sure lupron had a hand in it. I just don't want to see anyone else be a statistic.
Even after all these years with no hormones, I still have some Drs that say that my pain is from endo, and others that say it isn't possible. None can agree on anything, and I have adhesions so bad it feels like someone punched me in my belly, but to fix them they have to operate, and noone (including me), wants to go through that again. I've already had 2 surgeries for that, and in between the 2 my bowels stopped working for a little while.
All of this has caused depression and PTSD. I'm terrified of Drs, and believe I also have CFS. I might have a few good days, but if I exhert myself, I'm back in bed with a fever, normal temp is 97.6, but anything above 98.6 and I feel very ill. The past 4 weeks it's been 99.5, noone can tell me why.
I think everyone reacts differently to this poison. And while I'm happy for those that have no problems, I wonder what will happen to them later in life, I don't think this drug ever leave your body, and I believe the damage it does is ongoing for the rest of your life. It may be something that you would have gotten later in life, or not at all, but I think lupron speeds the process up, and makes it worse. From what I read, and the other things out there to help (which we all know that lupron doesn't really help endo, it comes right back), I don't know why this poison is even on the market.
If I could do it over again, I would have ran as fast as I could from this GYN.