Macrobid Charcot Marie Tooth, Wallet Size Card, Postural Tremor, Expereince, Degenerative Disease
I just received my Patient Medical Alert card from the Charcot-Marie-Tooth Association. It is a wallet size card for me to carry with me that list drugs that have or possibly have severe side affects for people with CMT. Seeing MACROBID on it reminded me ... more »
I just received my Patient Medical Alert card from the Charcot-Marie-Tooth Association. It is a wallet size card for me to carry with me that list drugs that have or possibly have severe side affects for people with CMT. Seeing MACROBID on it reminded me of my experience with it about 10 years ago.
I am very prone to UTIs. My GYN prescribed MACROBID. After only 1 pill, my right thumb went numb. It spread to my index finger and then my middle finger. I was scared and called my GYN who told me there was no way that the Macrobid was the cause. I didn't stop with that answer. I then called the drug store, where I purchased it from and spoke to the pharmacist. I explained what was happening. He also told me that the Macrobid couldn't be the problem. I didn't take his answer and asked him to please get the contra -indications list and read it. There, in fine print, was possible peripheral numbness that can lead to death. I had 4 small children at the time, so you can imagine my horror. He contacted the pharmaceutical company that makes MACROBID. They called me to record my side effect and told me to NEVER take it again, that I could die if I did. It took several weeks for the feeling to come back in my fingers and hand. They had told me it could have been permanent. I didn't know I had CMT then. And this little card didn't exist then. I am writing this to warn others. If you don't know what CMT is, go to ******. It is a neurological degenerative disease. I am affected worse in my hands. I have a postural tremor in both hands now.
I hope my story helps someone.