Mirena Pitting Edema, Polycycstic Ovarian Syndrome, Lack of Appetite, Class Action Lawsuit, Arms and Legs

Posted over a year ago

I am so relieved to have found this site. I suffer from PCOS (Polycycstic Ovarian Syndrome). I am also morbidly obese, but I have been on a diet for 3 years and I enjoy the diet, sounds funny, but it is true. I lost 30 pounds the first year. Now, I have gained it all back, I can't do anything, I am in so much pain. I have back pain, knee pain, I have swelling in my legs they are so huge (the calves) They have grown three inches in circumference since I started the progesterone therapies. I have pitting edema in both my legs and my hands swell all the time. The only way to reduce the swelling in my hands is to hold my arms over my head for about 15 minutes and that seems to help enough to get my rings off. Mirena was supposed to NOT cause any side effects. Well let me tell you I got them all. The same way I did with the pill form. Only Mirena took longer to enter into my system. I am waiting for my Doctor to get back from vacation and I will be insisting on its removal. ... more »

Here is my list:

Pitting Edema in arms and legs
Headaches
Severe abdominal pain
Severe backache
Heart palpitations
Constipation
Lack of appetite
SEVERE WEIGHT GAIN (how can this be, I have been a diet for three years...and I am sticking to it) MY PANTS won't fit anymore.
NO energy
Fatigue
Nightmares
Nausea
Dizziness
Unable to concentrate
Slight double vision (right eye only)
Anger
PIMPLES ( I am 38 for Pete's sake, I didn't have pimples as a teen!)

My Doctor lied. Plain and simple. He told me there would be no systemic side effects. Either Bayer (Mirena) is lying to him, or he is lying to me....either way...I see a class action lawsuit coming if they don't remove this thing. I will kill me if it stays in any longer. I just know it! For those it works for good. I am pleased. For those of us who is don't, I truly feel your pain!

3 Replies

Monteria414 - Hi~ I don't know if you will get this response, but I am curious if you had it removed and if any of the symptoms went away. I am suffering from the pitting edema as well in both legs and I actually had swelling in my arms last night. This is causing me to become very anxious. I am afraid to sleep for fear that I won't wake up. I have a 4 month old and am terrified something is gonna happen to me while he is in my care. My Fiancée works 15 hours a day so it's very hard to deal with this. I hope you have some good news about the removal of Mirena.

Posted over a year ago - Reply

Tara P. - I had the mirena inserted in like February- and since then, my legs and feet are swollen constantly. Ive had venous duplex, venousd insufficiency scans, abdominal ultrasounds, groin ultrasounds, blood work, etc, and they cant find ANY cause. yes Im overweight- have been for years. Ive gained about 50 lbs since february- walking up stairs causes shortness of breath but an echocardiogram showed that my heart is functioning fine, so no congestive heart failure. Only thing I can think of is the Mirena- the covering md for my pcp is on vacation- so Im calling my GYN and gonna request it be removed and see what happens then. Hopefully then the swelling will go down!

Posted over a year ago - Reply

Monteria414 - Hi Tara~ I had mine inserted in Nov. 2010 (6 weeks after my son was born). In January 2010 I started getting severe pitting edema in my calves and ankles, and suffered from anxiety, which I never had before, and I gained about 35 lbs in a three month period (I was already about 60lbs overweight to begin with). I finally had it removed in April 2011. Nothing was getting better so I decided to go see my general practitioner. And of course he said that the Mirena had nothing to do with my symptoms. I went through a battery of tests... ultrasounds on my legs, blood tests to check my liver and kidney function, echo cardiogram. All came back normal!! Dr put me on water pills and anti-anxiety pills. Finally after about a year of having it removed the symptoms started to go away, except the weight gain. I can't seem to shed any of the weight. Dr attributed the reversal of all the symptoms to taking the anxiety pills. Still would not even consider the thought that it was the Mirena. Well, now, low and behold the symptoms are returning... not as severe though. I have read that once women use the Mirena their symptoms have never really gone away. I just want to get back to normal!!! I am tired of feeling this way. I hope you feel better after you have your removed!! This little BC device is evil and should be taken off the market.

Posted over a year ago - Reply

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