Mirena Toxic Shock Syndrome, Cervical Laceration, Clue Cells, Irregular Vaginal Bleeding, Loestrin Fe
I have been sick for 7 months! I got the mirena in June of 2008 because I was still breastfeeding and wanted something that wouldn't interfere with that. While on it I bled every single day. I kept reading that it was normal to have spotting for a few ... more »
I have been sick for 7 months! I got the mirena in June of 2008 because I was still breastfeeding and wanted something that wouldn't interfere with that. While on it I bled every single day. I kept reading that it was normal to have spotting for a few months so I stuck with it. I did have vaginal dryness and pain with intercourse. In February 2009, the pain with intercourse got worse and then i could no longer feel the strings. I went to a new GYN and she said she could only see the tiny end of one string and did i want it removed? YES! I was relieved that it wasn't lost inside me! I saw it and it looked intact. I went back to Nuvaring which I had used before I had my 2nd daughter and liked it. March was ok. When I put the new ring in in April I immediately started having vaginal itching. It got progressively worse to where i could not stand it! Went to the GYN and she said it was "the worst yeast infection shes seem". Put me on 2 pills of diflucan. The next day started abdominal pain, fever, and severe itching! She said to take benadryl. By Monday I was VERY ill and went to my family dr. He said I had "clue cells" and diagnosed as Vaginosis but said he thought the nuvaring might be causing toxic shock syndrome. He removed it. I went on Flagyl, Bactrim, and had a rocephin shot. He tested me for every STD. Everything was normal except my elevated WBCs and sed rate. I slowly got better. Then 3 weeks later decided i needed birth control and started loestrin FE. Had sores in my mouth, abdominal pain, nausea, fatigue, hair loss, irregular vaginal bleeding. After 1 month switched to Ortho tricylcin Lo. Had continued abdominal pain and terrible headaches. But also had 9 days of bleeding midcycle and then started having rectal bleeding, bleeding when i brushed my teeth, skin tears around my fingernails. Then a cervical laceration from very regular intercourse. Quit birth control! I was sure it was making me sick. I had a pelvic ultrasound because of the bleeding. They found my uterus is the size of a 12 week pregnancy but dont know why and that I had a functional ovarian cyst. Then started having pelvic pain so bad it hurt to walk or sit down. Went to a new GYN (mine was on maternity leave). She diagnosed PID. Rocephin shot, Zithromax. The pain got better. But dr. called when everything came back negative and wanted a followup. Then she said there wasn't anything wrong except a yeast infection and why wasn't i on birth control? They dont listen!!!! Also said it sounds like something wrong with my immune system so I went to my GP and had a physical. Everything is normal. He thinks all my problems are coming from the GYN stuff but didn't run any labs to check my immune system. 2 weeks later I got a lump in my armpit and they put me on Bactrim. The next week I got a cold and had to use my inhaler 10 times a day and I usually never ever need it. They put me on nebulizer, oral steroids and antibiotics. 2 days later I began having horrible itching, rash on my perineum, and discharge, with the pelvic pain and low grade fevers. Went to my old GYN and she was very concerned. Put me on flagyl and 7 days of diflucan. Then 2 days later went to the er with pelvic pain. CT showed ovarian cyst, went home with vicodin. Next day the pain was so bad i couldn't drive myself to the doctor! They scheduled emergency laparoscopy. My right ovary was twice the size of the left and full of blood. I thought that had been the culprit all along. 1 week later i got huge painful lumps with pus exudate on my labia. Doctor said it was a skin infection, put me on Bactrim. 1 week later the pelvic pain returned worse than ever before! Worse than the post op pain! Dr said it does present as PID but i have no cause. Put me on 2 weeks of Levaquin and Flagyl and scheduled a biopsy to test for endometritis (chronic inflammation of the endometrium). She said she thought the Mirena IUD might have started all of this. Slowly got better. Biopsy was very painful. Got the results today. Negative. I am again having pelvic pain, itching, discharge, rash on my perineum. I found a specialist at the Houston Medical Center and miraculously got an appointment for next week! Another GYN I talked to said she thought i was having an immune response to the Mirena IUD or an allergy to something in it. I am still very ill! The Dr.s have mentioned a hysterectomy. I cant believe that I am going to lose my uterus and the possibility of any more children at age 28!!!! And I feel like i am slowly dying! I have spent thousands of dollars at this point on tests and copays and medications. Please help me!