Mirena Hands and Lips, Progesterone, Weight Gain, Breast, Psuedo Seizures
Ladies, I am here on behalf of my wife, who is recovering from the worst four days of her life....I found her face down, unresponsive on Monday morning. I called 911 and she was rushed to the hospital. There they did every test imaginable (MRI, Cat ... more »
Ladies, I am here on behalf of my wife, who is recovering from the worst four days of her life....I found her face down, unresponsive on Monday morning. I called 911 and she was rushed to the hospital. There they did every test imaginable (MRI, Cat scan, x rays, spinal tap, multiple blood tests....) They found nothing...She began having pseudo seizures while at the hospital. Unfortunately the Dr.'s at the local hospital were not able to find anything abnormal. We then ask that she be transferred to Mass. Gen Hosp (Tuesday). All the while she was continuing to have these pseudo seizures more often and with more intensity. She also complained of numbness and tingling in her extremities. (For months her hair was slowly falling out and she had been complaining of unusual neck and back pain, headaches and carpel tunnel like symptoms as well.) At Mass Gen she received the best of care and the utmost attention. She was placed in the neuro ICU. There they reviewed all the tests and data and decided to put my wife on a streaming EEG. The Dr.'s hoped to catch her brain activity on the EEG to rule out, or in, epilepsy . The EEG in fact showed that it was not epilepsy and these were some kind of convulsions, that very much appeared like a seizure (hence, "psuedo seizure" was introduced). The doctors could find nothing neurologically wrong and all tests were normal. Meantime the the psuedo seizures were coming every twenty minutes by now and were progressively getting worse and my wife's body was starting to really give out due to fatigue. She was nausea this whole time as well. A friend called me and asked me if I had seen some of the things posted on line, about the side effects of the mirena (Tuesday). I told her I had not. Luckily, Mass Gen had a computer lab open to patients and family of patients. I ran down there and started perusing through copious amounts of information and anecdotal info about the terrible side effects of the mirena device. I printed up a lot of the heavy hitting material and went back to the doctors "armed and dangerous"......It all fell on deaf ears. I told the Doc. that I didn't care what they thought and that they had to take out the IUD, period! They finally removed it after some "counseling" and protesting (Wednesday). Amazingly, within 8 hours the seizures subsided and my wife's conditioned dramatically improved...I warned her, based on my reading that she would be experiencing some unfortunate issues due to her body having to readjust to "being on it's own". We are now home, 48 hours later and she continues to improve by leaps and bounds! The Dr.'s will not admit that it had anything to do with the mirena. They say it is physiologically improbable that it had anything to do with these issues.....Tell that to my wife. As a side note, my wife did not experience any side effects for the first 2 years after having the IUD implanted. If you have the mirena or are considering using it as birth control, please consider all the pros and cons. The last thing I do want to say is that these side effects will probably not happen to most women. My wife does have a history of adverse reactions to progesterone. (We were hoping this device would be different because of the local release of the hormone.) I am NOT telling everyone to not use the mirena but BE CAREFUL! If you are experiencing any of these symptoms and have the mirena in.....consider removing it.