PredniSONE Dispite, Hematologist, Itp, Severe Depression, Acne Problems
I had been on 60mgs of prednisone for a month and a half for ITP. Initially it brought my counts up slightly but they crashed back to where they were when I started after a month of the treatment. I did my research, and demanded I be given anti-D ... more »
I had been on 60mgs of prednisone for a month and a half for ITP. Initially it brought my counts up slightly but they crashed back to where they were when I started after a month of the treatment. I did my research, and demanded I be given anti-D treatment (win-rho). My hematologist (blood vampire) gave me it and it brought my counts up considerably. Three weeks later they fell and he won't let me be weaned off the prednisone saying that its jepordizing my counts. The prednisone did not work for me, dropping as it did while on such a high dose. He says he won't advise me to go off the drug nor will he write me a perscription for a tapering dose. I go to a clinic because I'm a poor 23 year old that just graduated from college. This drug has made my life a living nightmare. The first two weeks it gave me severe depression and I did not eat. Gave me horrible mood swings, killer fatigue, joint pain, double vision, skin and acne problems, nasty taste in my mouth, muscle weakness, fat distribution on my stomach, waggy skin, etc. I am so ashamed of my body. I got edema all in one place my stomach one night and I could barely breathe and my heart was pumping so hard. It stretched out my stomach permanently and gave me stretch marks. I have gained 17 lbs dispite following a strict diet - I went off sugar and watched my salt and carb intake. My idiot of a doctor won't let me get off this drug from hell. I am so miserable and depressed. I basically threw any chance away of growing into a healthy person when I am older, I think. I think that because of this drug I am facing irrepairable damage. I am not even married or have children and yet who knows what damage it is doing to my reproductive system. If I knew what I knew now, I would never put that drug in my body, or I would have never even seen anybody for my disease, I would rather bleed to death. This drug should be taken off the market. It's handed out like it is candy. If I was just given the safest treatment for my disorder (anti-d) and seen that it worked then I would have never had to gone through this. But preds are nice and cheap let's give it to a 23 year old and ruin her life. What do they care what it does to me? They ignore me, even after telling them it made me suicidal. I feel like a shell of a person and haven't been myself since. I'll either have to find another doctor or taper myself off which I hear isn't too good since I'm on 20mg pills and can't accurately measure a taper. I'm lookin foward to premature aging with prednisone.