Remicade Illeostomy, 3 Takedown, J Pouch, Seratonin Levels, Levels of Anxiety
My son was diagnosed with Severe UC Feb 2005 at 21 years old. The first Dr.he had put him on Prednisone and Asacol. In a nutshell, he got sicker and sicker. We Changed doctors. This one was better but still not good enough. He just did not get the ... more »
My son was diagnosed with Severe UC Feb 2005 at 21 years old. The first Dr.he had put him on Prednisone and Asacol. In a nutshell, he got sicker and sicker. We Changed doctors.
This one was better but still not good enough. He just did not get the disease under control... Then on Jan 26, 2008 Bob had such a bad flare that he ended up in the hospital for 3 weeks and had 2 blood transfusions. The doctors there were genius..they started him on Remicade after telling us all about the risks. Because Bobs choices at that point were only trying Remicade or having his colon removed, he opted to try the drug. Remicade gave him his life back for 1 year. he had no side effects (took tylenol and Benadryl at each 6-7 week infusion). He was good to go for a year. Then the Remicade failed...His doctor brought him in twice for Double doses (925 mg) each time. No Help. Bob had his colon removed Sept 2009. Illeostomy/bag to Jan 2010 #2 surgery to "build J-pouch", Illeostomy/bag to March 2010 Surgery #3 "takedown"/close illeostomy. Currently recovering with some complications. Since taking Remicade He has developed Migraines. Right now they occur every couple of months or so. He becomes completely debilitated for about 24 hours. His hair started thinning in 2009, and has become very thin since then. We often wonder if he had just had the surgeries in the beginning and NOT opted to try the Remicade, if his physical health would be better at this point and his high levels of Anxiety would not have resulted as well. We are going to consult his doctor to see if there is a blood test to determine if his Seratonin levels are abnormal or if they can see if the Remicade has affected anything else in his endocrine system. He also developed allergies (out of the blue), as soon as he Started Remicade infusions. Before onset, Bob had no health problems, no headaches, no anxiety.
I, Personally would advise anyone who has severe UC to think twice before having any of the infusions. You are pumping that "miracle drug" into your body that MAY buy you some time, but if it doesn't work
it's too late and you still have to have the surgery. It could mean double trouble.
Really ask yourself...do you want to take that chance?
Good luck. :)