Ladyjane1950

ladyjane1950

Due to my health problems I spend a whole lot of time going to docs and for infusions, etc. I am thankful my neurologist was finally able to diagnose me after almost of 7 months of symptoms and 4 months of his trying to figure it out. CIPD, the most serious of my problems, has no cure, but is treatable. I take IVIg (Gamunex) every 3 weeks for 3.5 hours. It worked like a miracle for me a little over two years ago when I started on it. I think I would have been in a wheelchair within the month had I not been diagnosed and started on treatment. Since then I have had a few other diagnoses added that are also considered autoimmune. I have read that if a person has one autoimmune disease they are very likely to develop others. Praying I don't develop any more! Would really like to compare notes with others who are suffering from CIDP or fibromyalgia or any other of my maladies.

My Posts

  1. link Ladyjane1950
    Gamunex and me
    Gamunex has been a life-changer for me. I was on a rapidly progressing downhill course to almost complete lack of use of my legs by the time I was dia - 76% more...
    Ladyjane1950- over a year ago - 4 Replies - in Gamunex
  2. link Ladyjane1950
    Don't know why it posted twice.
    Ladyjane1950- over a year ago
  3. link Ladyjane1950
    Thanks for your response. How did CIDP initially manifest in you? For me, both big toes became profoundly numb at the same time! For several months be - 94% more...
    Ladyjane1950- over a year ago
  4. link Ladyjane1950
    Thanks for your response. How did CIDP initially manifest in you? For me, both big toes became profoundly numb at the same time! For several months be - 94% more...
    Ladyjane1950- over a year ago